Prof denton meeting

[Inamoment]

I wasn't sure whether to put this in heart, lung or scleroderma as it's a bit of everything. Dr denton comes down to bognor hospital once a year to see pah patients and i got to see him.

He's a nice chap and sat right next to me to talk which is good. But. He told me what was wrong with me which i knew. He said i was quite interesting as i have loads of diseases. He said i was on the right medication, which i also knew. I asked about the third pah treatment which is a syringe driver. I'm not keen on that but he said there is now a pill that has a much better half life, the stuff in the syringe only lasts for six seconds.

And that was it, I'm not sure it was worthwhile.

There were two other doctors there, one i didn't know and the lovely rheumatologist from chichester.

There actually wasn't anything else he could have done and it was good to meet him. I mentioned i was on this forum, he looked pleased.

And i completely forgot to ask about the two things i wanted to ask. As usual

[sassy59]

How interesting Inamoment, Pete used to stay up at the Royal Brompton sometimes and there would be people there with scleroderma. You seem to have lots going on but it’s good to meet a decent doctor.

It was probably worth the visit to Bognor hospital if you didn't have to travel far. We haven’t been to Bognor in ages. Xxxxx

[Inamoment in reply to sassy59]

I go to bognor often for inr blood tests, it was drop in but now you have to ring and check. It's just a small place but they seem to do quite a lot, smarter than st richards.

It's about a mile down the road. The brompton is terrific but i don't travel well

[sassy59 in reply to Inamoment]

Yes we know st. Richards too. Pete can’t go to the Brompton anymore. Xxxx

[Inamoment in reply to sassy59]

My gp said st richards has good consultants because people want to live in chichester. Brighton are awful. I asked to be referred there because my consulant went there from chichester. They completely ignored me for nine months. The referral back to chichester was one of the best things i have done. Rare diseases are a nuisance

[sassy59 in reply to Inamoment]

You take care and wishing you well. Xxxx