Hello just joined, I have sever emphysema, I've had it for years but just kept it to my self till I ended up with Numonia in June 2017 then July 4th went in to hospital and had surgery on my left lung, they took the top part away,I felt lots better, I don't know any one with my condition and it can be a very lonely place, so just want to join this community to chat about things Thankyou for reading ❤x
Introducing my self to say hi, - Lung Conditions C...
Introducing my self to say hi,
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Hello Dollybow and welcome to you. This is a very caring, friendly community and I hope you get more replies soon. Xxxx
Hello sassy59 Thankyou looking forward to talking to people and finding out more about people's tips and illnesses and help or just a chat 😊x
I’m carer for my husband Pete who has sarcoidosis, COPD (bronchitis) and back problems. At the end of last year he also had severe sepsis.
We enjoy being together though and are fortunate enough to have family nearby so life’s good.
Wishing you well. Xxxxx
Hi sassy59,I look after my self the best that I can I'm actually doing really well at the moment, I don't have family near buy to help, but I have few friends that do, your so lucky to have each other, and glad life is treating you both good, also wishing you both well, and we keep fighting because we have too,😘xxxxx
Hi! Sassy, hope you and Pete are doing very well, and enjoying the spring.
Take good care both of you,
Meg xo💕🌸💕
Hllo Dollybow, welcome to our very friendly, informative site. Here you will find lots of kind people who can give you advice, have a laugh with you and share moments in their lives. X
Welcome Dollybow, I'm sure you'll meet up with people with a condition similar to yours and certainly plenty of others ready to chat. 🙂
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Hi Don-1931 thankyou so much 😊x
Dollybow glad you've found this great forum. There are members of all ages,all types of lung problems and all of these are able to give advice through experience but we also love a poem,a rhyme or two,a rant! and pets and gardening also get a good look in. I'm certain you'll find your feet and fit in just wonderfully.
Looking forward to chatting with you soon.
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Hello Dollybow so lovely to meet you, we love having new members. I'm looking forward to chatting with you and hearing how you are getting on. Take care of yourself and have a good night 😊 Bernadette xx
Hi Dollybow great to meet you and welcome to the site. We think of ourselves as a big HU family who are always there for each other. x
Well hello Dolly as the old song goes. I also have emphysema. I have personally found the site a great help in many ways. Hopefully you will too. Welcome to our happy little band.
Hi Badbessie, Thankyou,for your kind message, emphasema too, gosh I have found the right place, finally 😊x
Hi Dollybow
Think you will find some lovely caring people on here as I did.
They help all they can and lots of lovely posts and pics to look at too .Rhymes from our Don so a nice mix of stuff .
Welcome 🌹 x
Hello and welcome. You'll meet so many friendly people here and get huge amounts of support and advice and laughter and poems 🌈
Welcome Dollybow! It is a very friendly and helpful community. Glad you are here. J
Hi Dollybow . Welcome to the forum. It's nice to meet you. xx 🌞🍀
Hi welcome.dollybow. i have severe asthma . bronchiolitis obliterans an sayer james syndrome .so not same as u. But lots of people will be along to reply.were all in the same boat with bad lungs.i was in hosp in feb for 9 days with flu which turned to pneumonia.now on pulmonary rehab course. An bein refered to gym.were all here to talk anytime x
Hi Coral12, Thankyou for your welcome, pneumonia is just awfull isent it? I hope your feeling a lot better, it can still be in your system for months after the intravenous antibiotics,you will gradually gain your strength with Rehab, it's really good for you 😊x
Hi! Dollybow, I had a CT scan to check for gallbladder problems....gallbladder was fine...but, they found mild emphysemous changes. So, far, so good. On this site you find the most wonderful, kind, caring people, alot of knowledge. Alot of talented people also!
Welcome,
Meg
Hi megshafer, I hate haveing scans,lol so you have mild emphysema,I once got told by a Dr to stop smoking when I had mild emphasema,and it should not get any worse, but I never listened, I haven't smoked for 3 years now,glad your gallbladder is alrite, and thanks for the welcome 😊x
Hi Dollybow and welcome to the site, there are lots of people on here who have emphysema and am sure will give you lots of tips and advice. Hope you are keeping well. Irene x
hello dollybow please research magnesium deficiency and symptoms of magnesium deficiency also vitamins d3 k2mk7 good luck
Hello Dollybow nice to meet a new member . regards Davy boy xx
Welcome Dollybow. You have come to the right place to get support, knowledge, friendship, fun and caring. I don't have emphysema, I have bronchiectasis and other issues but I know there are folk here who will be available to help. Glad you are feeling better since your surgery. Keep as well as you can. Best wishes from Oz.
Hi Dollybow, I’ve only recently joined, but people have been so welcoming helpful and informative xx
Hi Dollybow i am Ozzy 76 years i also have severe emphysema and i know how lonely it can be i have friends but as you when it's bad no one can help i haven't had surgery as i think the doctor thinks i am too old but hey ho life goes on and every day brings something new so keep your chin up and look on the bright side all the best and welcome to the site
Hi welcome to the group I’m glad you feel much better after surgery
Hello and welcome to Facebook for people with lings and brains xx
Lovely to meet you, Dollybow. No longer alone here.
Hello Dollybow and welcom, I dont put much on here but I read a lot of everyone else's.
I have COPD bronchietasis and heart failure apparently, didnt have a clue until they told me ha ha.
Also all my organs are reversed, it does have a name but I've forgotten, some syndrome, anyway it means I'm all right. 😃😃😃. See what I did there!!!
Welcome Dollybow to your newly found extended family.
So many members have said so much theres not much I can add except I hope that joining here improves your life for the better, as it has done mine. Once you have joined here I guarantee you will not feel lonely anymore.
Good wishes.
Welcome to the site Dollybow! It has helped me a lot. I have Idiopathic Pulmonary Fibrosis and don't know anyone in my immediate circle with it . Its useful to discuss it with other sufferers here. I am glad that you are managing to cope,that's all we can do?? I see the Chest Consultant on Friday so am hoping things are still "stable" ! ( my writing changed to Italic for some reason,sorry!!)
Hi Dollybow, welcome. Liz x
High Dollybow, welcome to the site, you will find lots of friends, advice and laughs on here but most of all people who are sympathetic as we all suffer with lung problems in one way or another. XxxPeg
Firstly Welcome. As someone that has multi conditions it is important that you are not alone and there are plenty of peeps on here that has or has gone through many issues that you may have or might have in the future. All in all we are a good bunch of people!
PMA
Be Well
Hi, another newbie here. Everyone is very welcoming and you will find lots of support I am sure. Very best wishes.
HI & welcome. I also have emphysema. Several years ago when I was first diagnosed I was on the internet & found some very scary information, However I came across this site & it changed my world. The people on here brought me out from a dark place. I cannot say good enough things about this group. Good luck to you.
Hi revagayle, Thankyou for the welcome, I also was reading scary stuff,and thought I was given a life sentence, and wouldent face it, but all of a sudden pneumonia came, then last year half my lung removed, now I'm at peace with it as I'm living and every ones different, I try my hardest I never give up,but never meet anyone in my situation, or our situation lol, now I'm not going to feel so alone, hope your haveing a good day 😊x
Welcome to this positive, informative and friendly site. All kinds of knowledgeable people belong to this site. 🐞
Welcome. Lots of friends here to talk with.
Hello and welcome Dollybow
So glad that you had the lung reduction surgery and that it helped you so much! Hope to hear more good news from you.
Hi Bettz, yes it did really help,I felt like I had a knew lung, but it went down a bit but I'm still so much better than I was,Thankyou hope your well 😊x
I'm glad that you could have the lung reduction because everyone can't - my problem is scattered throughout the lungs rather than just the top. Sometimes the damage is just at the top and then they can do surgery to remove that. It's not lucky to have lung damage but lucky to be able to have the surgery and have it help! God Bless!
Hi. Dolly bow This a good place and welcome. Why did they remove part of lung Iam. Tricity125 waiting on. A lung Trans I've. A1AD. Genetic Empysema. 53. Had since 42. Well. Take care. And bye.
Hi Tricity125, I had the top half of my right lung removed as it wasent doing anything it was just laying on the bottom half of my lung and I was finding it difficult to breath,also my emphysema isent genetic,they told me lung transplant list for 10 yrs time that will be 8 by now lol,I found out I had it when I was 42 but they just said it was copd then,dident really know a lot about the lungs back then, Thankyou for welcoming me 😊x
Welcome Dollybow, You will by now see how Popular our Forum is, Here to Help and advise when we can, more so to be a Friend and to have a chat and get to know most of us. Enjoy every day Hun. Love n Hugs. Carolina. xxxxx