New inhaler: I have asked today by my... - Lung Conditions C...

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New inhaler

jimmyg23 profile image
15 Replies

I have asked today by my respiratory nurse today to try new inhaler in stead of encrust and seretide it is called trelegy I am wonder if anybody else is on it and what they think of it

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jimmyg23
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15 Replies
shadow4me profile image
shadow4me

I have been on this for a month now horrid taste and sadly no improvement but every one is different xx

jimmyg23 profile image
jimmyg23 in reply toshadow4me

Thank you I can only give it a try

janno profile image
janno

I have been using it for about a year now and it is working out quite well for me. I really like that I use it only once a day.

James48 profile image
James48

I was put on it about 6 months ago and I've been fine. Before I was on 2 Incruise inhalers so it's easier just taking the one. Good luck

whit profile image
whit

I used it for a month ,then had to come off it ,it did nothing for me

Hummingbird2 profile image
Hummingbird2

I was put on it a month ago could walk quicker and longer been to see the COPD nurse today and told her my SATS are down to 93/4 which she confirmed normally 97 so she has asked me to go back on my previous inhalers and see if sats rise if they do she may put me on trimbo to try that.

jackdup profile image
jackdup in reply toHummingbird2

What were you on before and do you know why they were changing your inhaler?

Hummingbird2 profile image
Hummingbird2 in reply tojackdup

Sirdupla and Braltus I believe they are looking to give one inhaler instead of 2

jackdup profile image
jackdup in reply toHummingbird2

Ok, thank you. I know you mentioned your sats were down, did you notice a difference in your breathing as well?

Hummingbird2 profile image
Hummingbird2 in reply tojackdup

Less breathless

jackdup profile image
jackdup in reply toHummingbird2

That is the important thing, glad to hear it.

Shazrab profile image
Shazrab

Hi jimmy sorry never heard of it but I wish you easier breathing with it I do hope it works well 👍 , could you tell me please how you manage to get a respiratory nurse . I don’t have one and it’s never been suggested to me nbut iv noticed a few ppl seem to talk about their nurses many thanks. Take good cattle of yourself 🌹🌹

jimmyg23 profile image
jimmyg23 in reply toShazrab

When put on oXygen we Goethe respirator nurse s.hee comes to see us every three months

Shazrab profile image
Shazrab

Sorry that was meant to say take good care of yourself 😂😂

Doddery profile image
Doddery

I have been on Spiriva and Seritide for a few years and I did not have any problems. Fourteen days ago I was told to start using Trelegy and after this time period I can say I used to be able to climb up and down my stairs four times in a row without a problem, now one climb leaves me breathless, scarey. I also have an enlarged prostate and now I have to visit my favourite room about every 30 minutes. My legs have a very bad, "throbing" sensation in them and they feel very heavy. I have been back to the nurse and I have to return on the 30th May 2019 to talk things over. Am I happy?

I always had a philosphy that if something is not broken, do not fix it.

In the meantime, as I am a prisoner in my own home, life will change drastically.

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