I am diligent with ACBT twice daily aided by an Acapella. For the most part mucus is clear bur occasionally there are BITS of thicker creamy mucus which I assume are from deep down in a pocket. This doesn’t happen every day but every so often. The trouble is I worry. I also have arthritis which causes pain in my back because of the vigorous ACBT exercises. Does what I cough up sound familiar to anyone. I walk lots, garden and eat a good diet.
Apologies for the unattractive enquiry!
G
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Primrose63
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My OH has asthma/bronchiectasis and is colonised with pseudomonas. He has produced creamy coloured clots of sputum for years. This is every day, not just occasionally. Like you, I assume it is arising from pockets deep down in the lungs. His problem is coughing them up so he uses carbocysteine. Also has nebulized saline but that’s mixed with Colomycin. If he’s struggling he has hypertonic saline, 7%.
Thankyou for that Bella....I too take Carbocysteine ....it is just reassuring to know others are experiencing similar. This being ‘feeling well’ is an issue because I never feel really well....just grateful not to feel ‘ill’ . BX seems to be a Cinderella of a condition and I do feel like I’m left to get on with it .
Nothing unnatractive here - even gunk! You sound to be doing everything right. I would say to know what is a normal colour for you is what counts. We are all different. My norm is yellow/green and sometimes the changes are obvious and sometimes subtle. For some any deviation from white/cream is an indicator. I always think it’s best to use it as a guide but it matters how you feel. Sometimes you can feel unwell with no change to colour of sputum. Who said being a bronch was easy!!!!
Thankyou cofdrop....It has taken a while to get used to ‘it’ .....but I can appreciate how doing the exercises are so necessary. I appreciate this forum for gleaning information. I do feel as if BX is a Cinderella condition ....I just get tired and anxious at times....like everyone !
I can totally empathise with your feelings. It is acknowledged that BE has been a neglected condition. Hopefully things are changing but these things take for ever and funding of course. The proactive specialists and nurses are very aware of the unequal funding, research, treatment and it’s administration and are as unhappy with it as we are and are fighting our corner at last, as is BLF.
Yes, it’s a very tiring condition and I feel for you and for anyone who has bronchiectasis. Like you, OH works hard at clearance and it takes it toll. He’s had a Smart Vest since last year and it has made a big difference. Makes the job easier and more efficient but there is no getting away from the effort of coughing it up.
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