Lung TX. And Fev 1 score.

[Tricity125]

Hi. I just got on transplant list. My Fev 1 is not good and if you had TX or got binned please cos things are desperate at present my care is freaking out. Iam on 2 week respite. And know I've got a a winter to do. And my mind is struggling to keep it. Going but. My. Metal will shine till the end. One way or another. Many thanks. So. Please. Sent. Me your. Score. Only. Pre. TX. Or. But f removed cos score got to low.

[Damon1864 Volunteer]

Good for you having an attitude like that. You will be fine through the winter just take good care of yourself. Take care and please let us know how you are doing.

😊 Bernadette xx

[Tricity125 in reply to Damon1864]

Hi. Bernadett. Did you. Get. On at. Is it. Freeman s Why you think you had. Heart. Attack. If. That's. Ok to ask. If. Not. Ops. Well. It's getting late and. I'll. read. I hope. Reply. Tomorrow. BW. Paul.

[Damon1864 Volunteer in reply to Tricity125]

I definitely had a heart attack, but they now have things under control, still waiting to hear from Freeman's, hope it's not much longer. I'm really pleased you are on the list . Good luck.😊 Bernadette xx

[sassy59]

Glad you’re on the transplant list and wishing you well. Keep going Tricity. Xxxx

[Tricity125 in reply to sassy59]

Thank. You. &. Take care.

[Vonnie50]

Congratulations keep going x

[Caspiana]

Glad you made the list Tricity125 . Try and keep as strong as you can. The operation is massive and will take a lot out of us. xx 🌿

[Carnival567]

Hope all goes well xx

[flo1]

Keep well and strong mentally and physically its a biggie but plenty get out and through the other side and do well , wishing all the best to you!

[Tricity125 in reply to flo1]

Hi flo. How's life what. You doing about yr lungs you told me some time back that you wanted. Treatment oh. Yea. Was it. you that increased yr. Fev I. Am on waiting list. They have been. Pretty. Good at Harefield my. GP. Referred. Me. Not. Brompton All the best. Take care.

[Izb1]

Keep your positive attitude, that will help you fight on and look after yourself through the winter, double your vit c and keep away from people with bugs. Wishing you well, let us know how you get on. Irene x

[donut43]

Keep going never give up and do your best.

Dan

[Hacienda]

Stay Strong & Positive Hun. I am, with Winter Approaching, I am Listed Double Lung at QE Birmingham. Good Luck . XXXX

[Whitechinchilla]

Keep going and never, never give in. Best wishes

[flo1]

doing nothing as yet, everything on hold. Was looking at Valves, up next year see how I am then, if good leaving it alone, if not back to drawing board, I might leave it alone altogether re Valves, as the duration is not great with AATD in results around 12 to 15 months max not a lot in the scheme of it, but better than nowt if you need something and then of course you can look at it like its a bridge to assessement for TX..I really keep me going here been dedicated to the disease and it pays off mostly daily walking attributes to holding steady and avoiding the toxins, its a way of life for me after 11 yrs of this crap but I enjoy it and if I end up not its time to do something, great your moving forward I wish you the best in this and I really hope you get what you need ..no lung journey is easy we all deserve a medal or two..respect to you .

[Hidden]

Read some of your posts. I raced motocross and still ride bikes. A Harley switchback at present. No bagger. Sporty. The wife rides her own bike too. I partied crazy in my youth. Was around second hand smoke all my childhood. At 47 found out I was alpha one ZZ. Now Fev1 25%, not a candidate for tx. I’m now 57. My bike riding days are probably getting close to being over. As long as I stay shiny side up I can do it. If I dumped it I’d need someone to pick it up.