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Still Fed Up UPDATE

Sherrill profile image
8 Replies

Thank you for all the replied to my post. They were very helpful and supportive. It is good to know I am not alone.

Anyway back to the update. I was incredibly nervous waiting to go into the consultants room. When I walked in I recognised the consultant as one I had seen on the ward on one of my many admittances. She had been nice while I was on the ward so I was more hopeful. She asked loads of questions which seemed relevant and seemed to show understanding of my problems.

To cut a long story short. The appointment was successful I was so relieved I cried. I am having the scan and they are looking at everything connected to my breathing. I also am having a test where I have to walk for 5 mins. Probably impossible but to get a diagnosis I will give it a damn good try, even if it makes me ill for a few days.

At last someone has listened to me and hopefully I am on the road to a diagnosis.

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Sherrill profile image
Sherrill
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8 Replies
Katinka46 profile image
Katinka46

Hello Sherill

I’m sorry but I seem to have missed your earlier posts. What a horrible time you gave had. I soooo sympathise with you. I am sure things will begin to fall into place now you have a good consultant. I so understand your weeping with relief. I have been there a few times. And the worst experience is when doctors give a beaming reassuring noise along the lines of: “Well, you will be pleased to know there is nothing wrong with your lungs.” And we know differently. I hope things continue and let us know.

Kate x

Ergendl profile image
Ergendl in reply toKatinka46

Even worse, a doctor said to me after treating me in a cottage hospital like a hypochondriac for 10 days, "Good news - the x-ray shows you have two compressed lumbar discs". Then he told me to sit during the day - but I wasn't able to sit for 3 months because the spasms were so bad. I ended up discharging myself and seeing an osteopath, who improved things relatively quickly.

Spacecat1 profile image
Spacecat1

Yes I did walk think positive try and take someone with you for support walk at your own pace don't rush otherwise you will struggle take a few puffs on your inhaler to help you. Good luck let us know how it goes. They want me to do more exercise for valves op next year but I suffer terribly with anxiety and being in a room with other people scares to help and back. So hubby said we will buy a treadmill and do a bit each day build it up. And hopefullyit will help. I do a lot of walking around in the house , I'm determined to be able to walk into consultants surgery next year. I hate feeling useless. So fingers crossed I can do the walking on a treadmill. And then be put forward for the op let us know how you get on

X

Hacienda profile image
Hacienda

Hi Hun, Please don't stress out as you have now found a Good Consultant who Listens and explains. Now, the Tests to Diagnose, it all takes time. I have just done my 6 Minute walk at my Transplant Hospital, it's not Difficult , in fact I have improved over the last 2 years, every 4 months check up and I am pleased with the results of Exercise, Meds, Consultants, generally the NHS have been magnificent. Do as they ask. Hope Your Lady is as Good as My Amy, whom I have every Confidence in.. Good Luck Hun, Be Strong, Be Calm, and above all be Positive. XXXX

sassy59 profile image
sassy59

Thinking of you Sherrill. Take care xxxxx

Kristicats profile image
Kristicats

Good luck hope you get to know about you soon.

I’m so pleased that you now have a consultant who is listening and investigating. Do remember that the walk test is not a test of your grit and determination but a test to discover what help you need. Take it steady and if it is becoming too much tell them. Good luck, I hope everything improves for you soon.xx

Shirleyj profile image
Shirleyj

So glad someone is listening to you now, hope you get all the help you need x

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