Sarcoïdosis - diagnosed today on top of Tuberculosis

[conventgirl]

Any fellow sufferers?

I have gone from 5mg steroids to 80mgs

[sassy59]

Hi conventgirl, having sarcoidosis and tb isn’t nice. The two are on parallel with one another.

My husband was diagnosed with sarcoidosis in 1991 and also had other health problems including COPD. He started on 30mg of steroid and is now down to 10mg.

Please be aware that a high dose of steroid can result in osteoporosis so make sure you have regular checkups.

BLF have a brochure on sarcoidosis so you can request they send you one. Good luck to you. Xxxx

[Linnie13 in reply to sassy59]

Make sure you get calcium tablets off doctor I'm on two 500mg of caliche with D3 a day

[conventgirl in reply to Linnie13]

Thank you xx

[Linnie13 in reply to conventgirl]

That was calcichew

[conventgirl in reply to Linnie13]

Thank you but more concerned about 80 NHS steroids daily x

[conventgirl in reply to sassy59]

Thank you x

[Thomac in reply to conventgirl]

Calcium and vit D is not recommended for Sarcoid patients Check with your specialist before taking.

[judg69]

Hi conventgirl, I second the concerns about about such a high level steroids on a daily basis. While not a Dr, I can forcefully advise you to discuss stepping down gradually asap with your Dr. Steroids have a place and can be lifesaving, but quite literally they can also make you sicker and lead to one's demise. Nothing but all the best Wishes to you! judg69

[conventgirl in reply to judg69]

Thank you - Osteoporosis’s is a major side effect and additional concern