Since last appointment and scan test result of last Friday MORE bad news husband now refereed for Palliative care. can anyone tell me is this a sing of end of life
i am so scared we have put so much effort and treated him with stem cell it looks like there is no light end of tunnel
Any one has been through this ?
So sorry things haven't gone the way you had hoped ... what has your medical team /consultant told you regarding palliative care ... it does not only mean end of life care ...some cases then of course but it is also to help some patients manage a serious health condition and lead a better quality of life ... it also helps with your emotional aspects of the illness and offers a support network in order for the patient and family to all be working together and getting all the input they need to maintain their illness ... obviously you will know a little better regarding what is your husbands prognosis but remember where there is life there is hope and everyone reacts to treatment different ...Oh I only know cos my brother in law is going through the same thing( palliative care ) ...xxx
Good Evening
Thank you for your response the respiratory nurse has said they are there to help decide next step to make a decision at the end, , my husband prognosis is IPF progress severity the professor at the hospital said he has referred him to Palliative care no other explanation given all he said is there is nothing to be done he cannot help anymore, as you say there is a life there is hope ..pls keep us in your prayer
thank you
You seem like a very strong lady xxx wishing you both strength and prayers xx xx
You nd your husband are in my thoughts and prayers.
Hi Hun, as other people have already said everyone is different !!! There is always hope XXX they put me on pallative care 2 years ago , I was very poorly in and out of hospital five times in twelve months !!! Pneumonia, plurisy ,sepsis and other bits , then my son died and I didn't care if I lived or died , then realized I had a husband that loved me two daughters ,five grandchildren and three great grandchildren !!!! And decided I was not going anywhere !!! I told the drs I'm not going anywhere till our Jacob gets married , he was twelve month old at the time !!! Haha I have my really bad days and everyday is a struggle on oxygen ,but hey I'm still here !!!! So please try and stay positive ,every day is a new day XXX bless you both xxxx
Thank you Ergendl and caz2408
you are an inspiration to us this is what i keep telling my self i need to be strong for my family i have 3 beautiful granddaughters, we are very close family and there is so much help given to us by my son and daughter in-law. i want my husband live longer too see his granddaughters grow up and we will stay positive thank you
I hope you both have many more years to enjoy with your lovely family x
I was referred to the Macmillan palliative care nurse and also got a bit worried. That is until it was explained to me that the system has changed. Palliative care is now put in place if possible at a time when it can be enjoyed, if that is the right word, and not at the end. I now go to a local Hospice Day Therapy unit one day a week, which is fun and interesting, over alternate six week periods. Hope this helps ease your thoughts. Wish you both all the best.
Been through it with my mom. They managed her symptoms. Continued medications and gave moral support to her and the family. I am praying for you and your husband. Hopefully he,will be comfortable and not sufferand there is a ways hope. I was diagnosed with COPD last year and try to keep a positive attitude. May the Lord be good to you both
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