Good news for bronchiectasis patients

ersnet.org/the-society/news...

[cofdrop-UK]

Does anyone know what it stands for and if there is any infortmation on how to do this form of physio please?

cx

[mrsmummy in reply to cofdrop-UK]

"Twice-daily slow expiration with the glottis open in a lateral posture (ELTGOL)" but it was a very small study. Full study report is here, if you are a member:

erj.ersjournals.com/content...

[cofdrop-UK in reply to mrsmummy]

Thank you mm. Read the article this afternoon. It doesn't really explain in any way how to do it. I am a visual learner and need to be shown. Maybe too soon as they have only just finished this study. For the timebeing I will stick to my known and trusted lung clearance until it becomes commonplace, or not.

I don't understand the placebo bit either. There is no way I could miss physio and I wonder how they would know really as we all differ in the amount we usually bring up in any event. Would need more information than that within the article.

love cx

[O2Trees in reply to cofdrop-UK]

Im wondering what 'lateral position' means? Would it mean lying on your side? If it does, then lying on left hand side would be ok for me, but a no-no on the right, due to Barretts and silent reflux.

[Hidden in reply to O2Trees]

On the side yes

[cofdrop-UK in reply to O2Trees]

paramedicine.com/pmc/Patien...

I reckon we're ready for anything now! Now just show us how to do it........please.

cx

[O2Trees in reply to cofdrop-UK]

wow! thanks cof x

[Titian8 in reply to cofdrop-UK]

Hello Cofdrop, I've just looked at some demonstrations of ELtgol on you tube for a clearer idea of what it's about. None in English though but you get the idea. Unfortunately, not something you can do without assistance.

[cofdrop-UK in reply to Titian8]

Thanks for looking Titian.

If you can't do it withoug assistance then I can't see the point in bothering. It's hard enough to find a physio in hospital, never mind doing physio at home twice a day. May be a good method for physis to do to very sick patients until they feel well enough to do their own though.

cx

[Hidden in reply to cofdrop-UK]

Sorry I don’t know anymore but maybe contact them?

[O2Trees]

This is kind of you Fran, thanks.

[Hidden]

Very interesting, happylondon! I do Autogenic Drainage but am always up for something new so I did a spot of googling & found this from 2005

forum.physiobase.com/cardio...

The last entry, from a physiotherapist, says the technique requires a physio to exert "an abdominal push of a hand and a pressure of counter-bracing on the level of the supralateral costal wall of the other hand, to obtain the most complete infralateral lung deflation." I'm afraid that's too technical for me but it doesn't sound like something we can do unaided. It'll be interesting to watch out for more information about it though!

[Hidden in reply to Hidden]

I suppose there must be specialist physiotherapists trained in that field..worth asking..

Is there a Bronchiectasis Society?? Maybe they know..

Glad you found it useful xx

[Cateran in reply to Hidden]

As far as I know there isn't a Bronchiectasis Society. I believe that there should be one and would happily join such an organisation. Perhaps Scotland is the place to start one. Patient power is one way of advocating such a Society, if only to alert the clinicians specialising in bronchiectasis to support it from whichever source that it might arise. Patient advocacy is often a trigger for initiatives like this one. So is patient peer-group to peer-group. Vested interest declaration: I am a member of a bronchiectasis patient support group in Tayside.

Terry.

[cofdrop-UK in reply to Cateran]

A good job you do too Terry. Good points you make. There are fewer people with A1A than bronchiectasis and well done them as they have formed a charity.

cx

[Hidden in reply to Cateran]

Ok thank you Terry. I think those groups are useful. I have benefitted a lot from the LAM action group in Nottingham and similar LAM groups..the US foundation is very active, and I have learned a lot from the Symposium reports on their website.

Have a good day x

Fran

[Izb1]

Hi Happylondon, thank you very much for this information, all if of it helps. I am a bit like cofdrop and like to be shown, am waiting an appointment to see the physio nurse so will ask her when I go. Irene x

[Hidden in reply to Izb1]

Of course Irene. I need to be shown several times even! I tend to forget all those exercises plus physios have all their own way of doing them. I have to write them down in Fran’s words to remember how to..

Have a good day xx

Fran

[Sandy-]

Thank you for that Happy London, no doubt all will be clear in time and who knows we may get help with our lung clearance!! x