Physiotherapy

Hi can anyone tell me why specialist said I need physiotherapy and what does it entail? He also thinks I have bronchaitis. Hope everyone doing well. X

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The physio will teach you breathing exercises and if you have bronchitis he will help you to expectorate all the mucus you have in your chest.

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Hi Sarah. Does your specialist mean that he thinks you have bronchitis or he thinks you have bronchiectasis. To diagnose bronchiectasis he needs to do a ct scan. Then you need to find out if he is an expert in bronchiectasis. Most general respiratory consultants do not know much about it and you would need this specialist care. If you have bronchiectasis, self administered physiotherapy every day to remove the mucus from your lungs is essential and you would need the physiotherapist to yeach you this. There are lots of us on here with bronchiectasis and COPD who do this and once you get the hang of it it becomes easy.

We arehere to support you if you beed to know more.

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Hi, he thinks I have bronchaitis and am awaiting a letter to have one done. Thanks for the reply. I appreciate all the information you guys give.

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As far as I know there isn’t bronchaitis. There is Chronic Bronchitis, which is classified as COPD or Bronchiectasis which is a different condition. As you are having a ct scan it sounds as though he thinks you have bronchiectasis. There are quite a few of us on here who live with this condition and if you do have it we will be happy to support you.

[cofdrop-UK]

Hi Sarah

If I remember rightly you were originally asking about situs inversus (which you have) and I was surprised your symptoms (which were in line with PCD) hadn't rung any bells with your GP to the possibility of you having brochiectasis caused by PCD. If PCD comes back positive I am shocked it has taken as long as it has to refer you to a bronchiectasis specialist, as it means your frequent infections and all the other serious symptoms you had has not been joined up from birth by all the docs you have seen.

The reason your specialist wants you to see a respiratory physiotherapist is because with bronchiectasis, as I think you probably know, most people make lots of mucus, which if left, will pool and cause infection. The physio will show you different methods of lung clearance and gadgets called PEPs (acapella, flutter) to find the technique which suits you best. You will learn how to do your own physio and will need to do this every day for yourself. The best thing we can do for ourselves to keep the status quo.

Please let us know how you get on, especially with regard to the PCD.

Love cx

Just found your post

healthunlocked.com/blf/post...

xx

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Thank you cof for following and caring, I'm in limbo just now awaiting scan for bronchiectasis and specialist in talks with somewhere in Glasgow that will take nose swab and see the outcome with that. He said if that test comes back positive I will have to be referred to he thinks Nottingham or Southampton? As I said don't really know what's going to happen. Can I pick your brain and ask why I was put on nebuliser after all breathing tests? Specialist asked me at end if I had any questions but mind was blank!! Lol. X

[cofdrop-UK in reply to Hidden]

The honest answer is I don't really know as I don't know the circumstances. If it was a full lung function test you would have been asked to use an inhaler (bronchodilator) half way through. I expect for some reason following the test they thought you needed to nebulise (I am assuming a bronchodilator) to open your airways. Perhas something you could ask your consultant when you see them next.

Learn as much as you can re broncbhiectasis in case you have it and jot down any questions. I would do it in bullet form as you will get a bit lost in consulation (from experience). You will find con will cover a lot of your questions before you ask them.

I am going to pop this link on for you. Bit overwhelming, I am putting the link up for you becase if you click on the 'about', dash over our mug shots and you will see one of the partners was the Primary Ciliary Dyskinesia Family Support Group.

europeanlunginfo.org/bronch...

cx

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How do you manage to look so flipping young and glamorous missus?

[cofdrop-UK in reply to Hidden]

I wish

x

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You most certainly do! I realise you're actually quite a poorly lady but at least you LOOK great in that photo. It can be quite annoying though, I've had doctors tell me I look too well to be in hospital ("and your point is? what?") However, that's another topic entirely! Sorry Sarah for interrupting on your post, just had to compliment cofdrop on that lovely pic

[cofdrop-UK in reply to Hidden]

Always knew you were a good friend, the best

Yes that 'you look really well' rings bells.

xx

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Hi Sarah. I'm glad you've found us as you don't seem to have been given much information about bronchiectasis. Thought I'd chip in & give you the link to this comprehensive little booklet chss.org.uk/documents/2013/... which sums it up pretty well. You're in the right place, ask whatever you like, no daft questions here! We'll help if we can

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Thanks hanne. I will certainly take a look. X