Bone scan,possible bioosy.

[Lin76]

Oncologist ordered bone scan thursday,had labs again. They want mri of head. Either i looked "out there",lol or they know this likes to spread to head. Plus had terrible headaches. If no "hot spots" on bone scan,then I will have bronchoscopy with bi lateral transverse multi lil snips in both lungs. Thats scairing me,heard bone biopsy easier but I'm hoping and praying its not there,that be bad. All would be but its only the beginning of what this langerhans disease can actually do! Aggressive. Debilitating and praying not in brain. Or head bones. I was not impressed with just how cut and dry this young oncologist was,but there's no cure for this,just some things they try as its that rare and so new to me yet. Got it one dr apt done and labs again soooo got quite a ways to journey on this disease. Glad I have my web site here my friends on here,and a place to vent this disease info. Thank you my friends across the ocean.

[mskpjb]

Morning flower. You do have a lot on your plate. I don`t know a lot about Langerhans or all the investigations you`re about to undergo. But I know you`re a very brave lady and I and many others of our site family here are sending you positive thoughts all the time. Love Sheila xxx

[Lin76 in reply to mskpjb]

Thanks Sheila for you response. I agree this site is filled with bravery and joyful cheerful people ith positive attitudes and thoughts. Thank you again xx