Polymyalgia Rheumatica

[Usauna]

Hi everyone. I'm super freaked out. Ive just been diagnosed with Polymyalgia Rheumatica, and I have to take steroids for a year. I'm terrified of getting fat. I've been overweight a few times in my life, and I can't function. I was wondering if anybody knew of any ways to stay thin on this stuff...

thanks!!

[Aidi-Joll]

Hi Usauna

A family member was diagnosed with the same. I will check how they got on.

Have you been given advice regarding how to manage the symptoms (other than steroids) and establish the possible cause for the condition?

Anyway all the best to you.

A-J 🌻

[Caspiana]

Hello Usauna .

Oh I understand about the worry of weight gain. I have also been overweight during a part of my life. It was draining. When I was put on steroids I voiced my concern to the doctor. He said the steroids increase your appetite. Eat healthy and keep moving. He also ventured to remind me that having a rounder face is the least of my worries and that if the steroids can help that is the most important thing. So, I have been on them for a few months now. My face is definitely fuller and I have gained about four pounds but I believe that is from being in hospital for two weeks without my usual excercise. I am back to walking now so expect to lose it slowly.

I am sorry about your diagnosis. Hang in there and do let us know how things go for you.

Sending best wishes,

Cas xx 🌈

[Azure_Sky]

I had it many years ago and it was cured with Feldene and gold injections. When a blood test was taken after a couple of years, there was barely a trace of it left.

[Usauna in reply to Azure_Sky]

Feldene and gold? What is that, and how do I get it😀😀😀😀

[Azure_Sky in reply to Usauna]

Don't know, the doctor prescribed, or rather a consultant did. I used to go for regular check ups at the hospital. Later I got osteoarthritis. Not much fun as I am allergic to anti imflammatories.

[ConventCassie]

I too used to be really heavy. I even had "allergic to Prednisone" added to my medical chart. (Because of the weight gain) I finally lost the last 4 pounds I'd gained on Pred a few years ago doing the Whole Foods Plant Based No Oil program. So when they said PREDNISONE I wasn't as concerned as in the past. Also considering the amount of Pain - it was a no brainer. I may have gained a couple of pounds and watched it religiously. Scary though as I was content at 92 (only 4'10") & when I dropped the Pred to around 8 mg a day I am fighting to stay at 88. On 4 now.