On learning how to cope: I joined last... - Lung Conditions C...

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On learning how to cope

Babyjim profile image
11 Replies

I joined last week. Love your sight. I'm an American but have learned more from you guys. I use oxygen most of time but do a lot of treadmilling. I love to keep moving and it took along time to get used to caring tank on my back.when you're told you're dying I've found a sweetness in day to day living I'm 66 and must make 5 years for my 50th wedding anniversary. What has. Been your experience with portable oxygen generators for distance travel.

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Babyjim profile image
Babyjim
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11 Replies
Damon1864 profile image
Damon1864Volunteer

Hi, I'm not on oxygen, but I'm sure some people on here can help. Welcome to the forum and please keep posting. Take care 😊 xxx Bernadette

stone-UK profile image
stone-UK

Hi

Depends on your flow rate, light weight portable are usually pulse delivery system.

I have a Imogen G3 I use 4lpm standard battery gives 2hrs double battery gives 4hrs.

Can be charged in car.

Light weight ar 2.2 kg.

The new version goes to 5lpm same weight.

As I only use for Ambulitory, I have no need to use when driving or resting so in theory could be out all day.

Caspiana profile image
Caspiana

Hello Babyjim . I wanted to say hello and welcome. I'm afraid I don't know an awful lot about portable oxygen generators but wish you a lovely trip and many congratulations on your wedding anniversary. Best wishes to you.

Cas xx 🌿🌻

Joseph260268 profile image
Joseph260268

Hi there, I find this forum fantastic.

Scud profile image
Scud

I am also on oxygen 24/7 but I have travelled abroad to stay with my friend in Spain (from the UK) the airlines are very helpful.If I am at home and go out for the day and there is lots of walking involved i use a carrier that is on wheels especially made for carrying the cylinders . Like you I like to keep on the go I get out as much as possible and don't let anything stop me. So babyjim I think you have the right positive attitude and hope you get to your 50th anniversary. Hope this helps

Love Sue

gingermusic profile image
gingermusic in reply toScud

Hi Sue can I just ask how you get your oxygen when on holiday in Spain? Love Ruth

Scud profile image
Scud in reply togingermusic

Hi Ruth I stayed in Murcia, I contacted Airliquide in Murcia and with my e111 card they supplied it free I had a very good service from them it always arrived at my destination 2 days before I got there, but unfortunately as we are about to leave the EU it will no longer be free will still be able to get it but I think it will be very expensive, I will make enquiries and post once I know. Hope this has helped you

Love Sue

in reply togingermusic

Hi gingermusic there's a lot of information on how to arrange oxygen in Spain on the Healthcare in Spain website here: healthcareinspain.eu/

In particular, have a look at this page healthcareinspain.eu/visiti... - it lists the documents required and the forms that you'd need to fill in. The Spanish healthcare authorities normally need around 4-5 weeks notice in order to arrange everything, but it's a pretty efficient system from what we hear (generally).

As Scud mentions, when the UK leaves the EU in a couple of years time, the arrangements around the EHIC (formerly E111) system will change, but for the immediate future, it's still very much worth using for trips to Spain and EU countries in general.

Best wishes,

Ben

BLF Helpline

gingermusic profile image
gingermusic in reply to

Thanks Ben that is most helpful but I am very daunted when having to deal direct with a country when I cannot speak the language. It has proved very difficult in the past. I am more likely to want to visit the Canary Islands particularly Tenerife if I go abroad again.

in reply togingermusic

Yes I understand that completely gingermusic

I love the Canary Islands. Tenerife is beautiful!

Margaret_craft profile image
Margaret_craft

Hi Babyjim. I'm not on oxygen., but I know you will get some good informative replies. And your very welcome. You sound a very positive guy. You will get to your 50th anniversary, and more. Take care. Maggie x

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