zepher valves

[kapre]

hi every body i wonder if any one could help me! i am trying to find out about these or any thing similer or how do you find out about where or how do you go about finding the doctors that fit these please can any body help as i am desperate thanks kapre

[stone-UK]

Hi

From a member.

healthunlocked.com/blf/post...

For further information

pulmonx.com/ous/products/ze...

Further information also at

nice.org.uk/Guidance/IPG465

[Hidden in reply to stone-UK]

Hello stone, I just started reading up on Zephyr valves. johnwr sounds positive and so full of hope for the future now. I do hope kapre can be helpd.

[kapre in reply to Hidden]

thankyou so much for caring just to see that sombody out there cares made me feel better thankyou jennifer-s

[kapre in reply to stone-UK]

thankyou stone for all the infomation

[mrsmummy]

Good response from stone. Lots of info there.

[ross-35_]

Hi there, Is this the same as the Coils? I have just been advised that I can't have these fitted, as the mortality rate is too high...as yet..but here is hoping they manage to sort them as it seems a great idea. Its good to know that improvements are being worked on

[themrs in reply to ross-35_]

I am also doing research on these as my husbands consultant suggested it,as there is now a dr at the hospital that does the procedure. So ask your g.p. Or consultant. From what I have read so far the valves are different than the coils. There is some info on you tube

[ross-35_ in reply to themrs]

It was planned for me to have the coils, it was then that my consultant said my hospital were not going to do them until they were more advanced, due to the mortality rate. I am now going to see about a lung transplant now. However i wish the coils were suitable for me...perhaps they are OK for others. I will ask about the valves when i go to Manchester Hosp. Thank you for your suggestion.

[Jacqs63 in reply to ross-35_]

I had a lung volume reduction op in August 2016 - the surgeon cut out a third of the top lobe of my right lung. Keyhole surgery and back to work 6 weeks later. It's improved my breathing by about 20-30%. I have emphysema and COPD and am 64. Doc says that if I start wheezing again 2 - 3 years down the line, it will be the emphysema in my left lung and they will be able to offer me the same op. Feel so much better and enjoying life again.

[kapre in reply to Jacqs63]

thankyou so much all of you for your help

[ross-35_ in reply to Jacqs63]

I am so pleased for you, and happy that you could have that done. I was hoping to have the same but left lung not suitable, so its maybe transplant..but i am not certain about this until i know all the facts.

[kirin1]

i spoke to my respiratory consultant, he referred me to surgeons who were conducting a trial, had them fitted in August, have had more chest infections since having them done, so not noticed an improvement as yet, still hoping. Another chap who had them done the same day said he felt an improvement immediately, its a very individual outcome, so a talk with your consultant is important.

[ross-35_ in reply to kirin1]

Hi, its wonderful to hear that they are working ! I hope they start to work on you soon. My son and I tried and tried to get this treatment, i offered to do a trial also, but was refused. I am 63 so perhaps it could be an age thing? No idea. Hope you feel better soon

[kirin1 in reply to ross-35_]

hi ross-35_ there was a chap on the same trial as me who was in his early 70s, so not an age thing where i live, south wales, but there were other factors, when i was on the trial, we had to be within a certain range of breathing, i only just made it in, but they were thinking of doing more trials and changing the parameters. Do you know why they refused you, could be worth asking again. Have recently read of a new treatment that involves burning the nerves in the lungs, i think stop stop the lungs tightening up, can't remember where i read this, but it sounded very good. hope my ramblings help! x

[ross-35_]

Hi Kirin 1

I really do appreciate the info you have given me especially the age comment!! I go to Manchester Hospital soon, so some off you comments will be added to my list !!... Hope you are well.