Endobronchial valves

[samie1999]

Hi all, I was looking for info on these valves which can be inserted into the lung/s have found a bit about them but what I would like to know is who do you speak to about getting these, how , where to start, and are they available in Scotland NHS? Any info will be gratefully recieved, many thanks! Sam x

[Nikkers]

Hi Sam.

I don't know about Scotland, but I know that the Royal Brompton in London do them. They're not for everyone ........I know because I went to the royal Brompton to see if I was suitable and was turned down because although I have emphysema, I also have bronchiectasis and the valves won't work for that

I was told that although there has been a degree of success with them, they're (the Doctors) are still not sure of the long term benefits and they're wondering if the valves will need replacing after a period of time?

If you're looking to get them I would give the Royal Brompton a call, I'm sure they'll tell you anywhere that is doing them in Scotland. Good luck. XX

[samie1999 in reply to Nikkers]

Thank you Nikkers for your reply! I am currently looking into these valves for my dad after seeing an article in the Daily Mail,( we are always looking for new treatments), any idea how to find out more about these valves as help up here doesnt seem to be forthcoming?! Also if I found the number for The Royal Brompton is it ok to just call them? Thanks for all your info, hope you have a good day! Sam x

[Nikkers in reply to samie1999]

Yes, it's fine to call them. Just tell them where you live and ask them where the nearest place to you would be for this treatment? It may be that they will ask you to come to London. Good luck. XX

[jeanlock]

hi,i had LUNG VOLUME REDUCTION at ST JAMES LEEDS in April feel a lot better asked x

see if your suitable x

[markM36]

Hi Sam. You may want to try Dr Alan Kirk at Golden Jubilee National Hospital in Glasgow. Just found a general number 0141 951 5000. I believe he knows about the valve and has a clinical study ongoing. Good luck for your dad.