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rubyred777 profile image
rubyred777
β€’34 Replies

Hi everyone

Trying to find a parkinson forum on here. Don't see it. Anyone know if there is one?

thanks

Rubyxx 😊

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rubyred777 profile image
rubyred777
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34 Replies
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velvet55 profile image
velvet55

Hi Ruby

I have just had a search for you and it doesn't look as if there is one.

If you go to the help pages there is a section telling you how to start a new community. Perhaps worth looking into.

Hope someone comes along that can offer you more help.

Xx

rubyred777 profile image
rubyred777β€’ in reply tovelvet55

Hi Velvet

How are you? Thanks for trying.

Everybody seemed to find it ,but us. Hope you and Mr. V are doing well.

Rubyxx 😊

dall05 profile image
dall05

Try this Ruby :) healthunlocked.com/parkinso...

rubyred777 profile image
rubyred777β€’ in reply todall05

Thanks Tony

How did you find it?

Hope you are well.

Rubyxx 😊 😊

dall05 profile image
dall05β€’ in reply torubyred777

Hi Ruby,

I clicked on 'My Communities' in the green line at the top of the page, then browse communities, typed Parkinsons in the seach box and hey presto there it was :) .

I'm ok thanks, off to the QE today for some routine blood tests which if ok will mean I can get back on the transplant list in a few days. :) .

Hope all is well with you to :) .xx

scorpiolass profile image
scorpiolassβ€’ in reply todall05

Fingers crossed for you Tony. X

dall05 profile image
dall05β€’ in reply toscorpiolass

Just got back from the QE so now I have to wait for a phone call from the lovely co-ordinator Rochelle.

She said she will ring later today if bloods are ok to confirm that I'm live and active on the Transplant list.

So this means I could be back on the list later today :) . X

Suzy6 profile image
Suzy6β€’ in reply todall05

Everything crossed Tony, good luck. You deserve to be back on that list. 110% effort by you

Ha ha another one to the blood tests. Had so many last two weeks, soon I will be empty.

Suzyxxx

dall05 profile image
dall05β€’ in reply toSuzy6

Just got back from the QE so now I have to wait for a phone call from the lovely co-ordinator Rochelle.

She said she will ring later today if bloods are ok to confirm that I'm live and active on the Transplant list.

So this means I could be back on the list later today :) . X

Suzy6 profile image
Suzy6β€’ in reply todall05

Oh Tony you so deserve it. Let us know the answer.

Suzyxxx

dall05 profile image
dall05β€’ in reply toSuzy6

Thanks Suzy,

I will let you know as soon as I know :) xxx.

rubyred777 profile image
rubyred777β€’ in reply todall05

Thats wonderful Tony! Can't think of a more deserving person. Wishing you lots of luck. I'm sure you'll let us know. I'm hanging in there....

Rubyxx 😊

dall05 profile image
dall05β€’ in reply torubyred777

Just got back from the QE so now I have to wait for a phone call from the lovely co-ordinator Rochelle.

She said she will ring later today if bloods are ok to confirm that I'm live and active on the Transplant list.

So this means I could be back on the list later today :) . X

Toci profile image
Tociβ€’ in reply todall05

Crossing all appropriate body parts.......

dall05 profile image
dall05β€’ in reply toToci

Just got back from the QE so now I have to wait for a phone call from the lovely co-ordinator Rochelle.

She said she will ring later today if bloods are ok to confirm that I'm live and active on the Transplant list.

So this means I could be back on the list later today :) . X

Toci profile image
Tociβ€’ in reply todall05

Here's hoping, Tony xx

dall05 profile image
dall05β€’ in reply toToci

Thanks Toci xxx

rubyred777 profile image
rubyred777β€’ in reply todall05

Wonderfull news Tony! I'm so happy for you.😊 You try so hard to stay healthy and positive. Finally you will be rewarded.

Good luck😊

Rubyxx 😊

Jessy11 profile image
Jessy11β€’ in reply todall05

Hi Tony, here's hoping you get the news you want today. You really deserve to be on the transplant list.

Have you been on any more interesting walks recently?

Take care & good luck πŸ‘πŸŒΊ

Ha ha Ruby I found it easily as well. You should go to Specsavers :) xx

rubyred777 profile image
rubyred777β€’ in reply to

Hey Cough, What can I say? You're one smart lady.😊 I looked at my profile, where I checked off , what I wanted to be notified about. No parkinsons on that list. Specsavers sounds good. Been wanting some red glasses. How are you doing? Sats better? Stupid pill for uti, made my tongue swell up! Wondered why I was stuttering! Lol 😊

😊.xx

β€’ in reply torubyred777

Ha ha Ruby you are a card :) Now behave yourself and stop being such a minx :D Red glasses? lovely go get 'em girl. Bev xx

rubyred777 profile image
rubyred777β€’ in reply to

This blonde chick is gonna be rocking red glasses! I love red and purple. Whats your favorite color? Did you see my fashionable cat post?

😊.xx

β€’ in reply torubyred777

I did too Ruby :) My fave colour? if you had asked me when I was young would have said red. Now I guess it's blue coz that's mainly what I wear. You glasses will look chic on a chick ha ha xx

velvet55 profile image
velvet55β€’ in reply to

Hi CAL

Clever sod !!

β€’ in reply tovelvet55

Moi? :d xx

That happens to me a lot looking for something and it is staring at you in your face. Just have to laugh it off

rubyred777 profile image
rubyred777β€’ in reply to

Yup, especially in the store. You ask where something is, and they point right in front of you!

It's like cough says..... time for specsavers!

😊.xx

β€’ in reply torubyred777

I know specsavers should have loyalty cards never out of the place xx

rubyred777 profile image
rubyred777β€’ in reply to

You break them or lose them? Lol I do both..

Xx

β€’ in reply torubyred777

I wish it was no for eye test been twice in last 11months and needed new glasses both times and I think I will be going soon for another one I can't look at things for very long without my eyesight going blurry I think it has something to do with my Psoriatic arthritis but that's life just have to get on with it

rubyred777 profile image
rubyred777β€’ in reply to

Didn't know arthritis effects your eyesight.

Thats rough, getting new glasses so often.

You have a great day

Amanda.

Rubyxx 😊

butter-fly profile image
butter-fly

All good wishes to you Tony. Could say you have earned it!

Sara xx

butter-fly profile image
butter-fly

Oops! Sorry Ruby. Glad you got to your community anyway. xx

Sara

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