Hi Everyone, for those of you who remember I have severe bronchiecstasis and recently carried out a drug trial, well that is all finished now and I am back to Clinic visits. I went to Papworth this week, I saw a Doctor I have not seen before and probably won't see again (she is pregnant) who reviewed my notes, asked all the usual questions, listened to my chest and said 'come back in a year's time'. I was not weighed, had no spirometry test, no walking, nothing. I usually visit Clinic every 3 months and now, to ease the pressure on the staff, the Clinics are very busy I had to wait quite a while, they are asking you to phone one of the Emergency Nurses if you are ill or have any questions.
Whilst at Papworth my Research Nurse came to see me to ask me if I would take part in another trial which only required a blood test so, of course, I said 'yes'. The University of Cambridge and Addenbrookes Hospital are testing the blood of bronchiecstasis sufferers to see if they can find any links between them and so are checking their DNA, this requires 2 phials of blood (an armful!) - let's hope they find something and so can help us all.
All good wishes for Christmas and a Happy and Healthy New Year to you all and thanks for another year of friendship and support. Take care, Love Lizzy x