CTED and Bronchiolitis?

[Katinka46]

I have chronic thromboembolic disease and a small airways disease that is looking like obliterative bronchiolitis. Been a nightmare getting diagnoses and even now after five and half years not quite there. Anyone out there with similar conditions? Would love to compare notes.

[Hidden]

Hi Katinka46 nice to meet you and welcome to the site. I can't help I'm afraid but just wanted to say hi. I am sure others will be in (probably tomorrow now as it is late) whom you can compare notes with. . x

[Hidden]

Good Morning - can't be much help I am afraid but did want to say Good Morning and welcome. Perhaps the helpline could give advise - You can call the helpline on 03000 030 555 Lines are open Monday to Friday from 9am to 5pm. Lots of love TAD xx

[Nanaeal in reply to Hidden]

Sorry can't help just wanted to say Hello & welcome.

Do keep posting there will be somebody who can answers your questions & were all good listeners if you just want to chat about what's happening. Beat wishes Nan

[Katinka46 in reply to Nanaeal]

Thanks all you kind people. Makes a lot of difference to me. This is real zebra of a condition. Right at the end of the text book and unrecognised and under researched. Heigho.... I've hoping that some eager research person might get inspired and write me up.