Oramorph?: My consultant suggests I try... - Lung Conditions C...

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Oramorph?

FarmerD profile image
26 Replies

My consultant suggests I try this to help with breathlessness.I,ve had a lot of opiates over the years for various reasons,always thought they were constrictive.Some older post seem to say it,s none addictive,I find that very hard to believe.Any recent views?D.

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FarmerD profile image
FarmerD
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26 Replies
stone-UK profile image
stone-UK

Hi

I been using Oramorph for several months, 2ml once per day, sometimes a second lesser dose early evening, no problems as yet.

wales.nhs.uk/sitesplus/866/...

FarmerD profile image
FarmerD in reply tostone-UK

Thankyou Stone,good link.Regards D.

helingmic profile image
helingmic in reply tostone-UK

Good info stone, I'm glad it helps. Mic

I had some morphine of some sort was opiat of my doc cant remeber name might started with D or something

Only thing i remmberd to do .. is run back for more when i run out

Funny how that works

FarmerD profile image
FarmerD in reply to

I know that feeling Denis, :D

jimmyw123 profile image
jimmyw123

hi farmer, to answer your question on a oner :) it is addictive.

as far as the breathing is concerned [copd] about 2ml is supposed to help.

i am on 10 ml for pain, which has the opposite effect on breathing,, not good, seems i cant win :D

hope that helps D

jimmy

FarmerD profile image
FarmerD in reply tojimmyw123

Thanks Jimmy,take it easy friend 😜

jimmyw123 profile image
jimmyw123 in reply toFarmerD

good lad D ,, will do thanks :) i've just posted my own experience there D,,[10ml every 4 hours if needed ]

all the very best my friend,, jimmy

FarmerD profile image
FarmerD

I seem to have lost a couple of posts from friends,sorry if it was my fault but Don,t know how.😩

RibvanRey profile image
RibvanRey in reply toFarmerD

I deleted mine as the advise and link were the same as Stone posted

FarmerD profile image
FarmerD in reply toRibvanRey

Haa haa,thought I was going even more crazy,cheers!

My sister had this for osteoarthitis and it said on the bottle not for those with breathing problems. The doctor was concerned about addiction so it must be addictive. x

FarmerD profile image
FarmerD in reply to

I,m an alcoholic ( dry ) I was addicted to IV morphine in my 20 s,comming of that was a walk in the park compared to the booze so I,m not worried about it just surprised it is not considered to be addictive,because of the low dose used for respiratory use.It will be interesting and not a little ironic,lol Thanks D.

Well reading the link, it all seems very positive. Let us know how you get on with it.

I'm on Durogesic patches, opiate based. I was also told they aren't addictive but even reducing the dose made me feel flu like.

Lolly2 profile image
Lolly2

My French doctors have kept me been on a low dose Morphine Patch since I had my cancer diagnosis. I questioned this, but was told that a low dose could help my breathing. Also it helps a bit with the pain I get from osteoporosis. So I'm an addict! Love Lolly. x

billy11153 profile image
billy11153

hi my specialist recommended oramorph for breathlessness 1.25mm 4 times daily it is to help when panic sets in ,I did not want to try it as I know is addictive but it does help me calm down ,so as long as I stick to my dosage hope will all be ok ,but can lead to dependence so use with caution

FarmerD profile image
FarmerD

Thanks Billy, it seems it,s such a low dose it should,nt be too difficult to avoid dependence,Good luck!D.

notlocal profile image
notlocal

I had a bit of a party last night and did 6ml instead of 2 (ok, plus some 'green' tincture). Sob's really bad this morning. Never experienced it before a horrendous infection requiring 11 days in hospital in January, but it really helped stabilise my breathing, especially in the mornings. They gave me a small 100 ml bottle to take home but now my GP's given me two 300ml bottles and I'm a bit worried about liking it too much! Mind you, being a low level morph addict's probably the least of my worries.

FarmerD profile image
FarmerD in reply tonotlocal

Hi Notlocal,I,m glad you posted.I thought my GP had got the amount wrong.I thought it said " take 2 x 5ml 4 times a day.Just checked with pharmacist and it,s 2.5ml 4 times a day so I,ve O D,d already lol.Wondered why I felt so cheerful haa haa.So you have probably saved me quite a lot of trouble,thankyou!I,m going to have a kip now to sleep it off.Cheers,D. :D

notlocal profile image
notlocal in reply toFarmerD

:)

onamission profile image
onamission

Hi Farmer some people have a addictive personality so they find themselves getting addicted to anything. I understand your concern and admire you for giving up the drink well done. Like Jimmy I'm on morphine for pain I have patches I would talk to your GP he might put your mind at rest

FarmerD profile image
FarmerD in reply toonamission

Hi Ona ,I was being a bit tongue in cheek,having had a morphine habit many years ago and stopped( on my own) and also being an alcoholic i can assure you giving up opiates is a walk in the park compared to giving up the booze.It,s just a matter of not associating with the people who use it,not so easy with the booze.I found a lot of my friends were actually jealous of the fact I could stop drinking.I even got banned from playing dominoes because being sober I kept winning lol.I,m way passed caring about being addicted to meds if they help me breathe I ll take anything.Regards D. :D

onamission profile image
onamission

I used to buy synadoll over the counter they contained codeine and caffeine and they really helped with the pain they were taken off for a short time they have changed them due to people being addicted to them. I think when you get to our age anything that's helps with pain is worth a go that's why I never read the leaflet that comes with the drugs before I get some side effects

Gidge profile image
Gidge

Hi - I know this post is a bit old now, I don't come onto the site so often now my husband is no longer with us; he had pulmonary fibrosis, and the only thing which helped him when he de-saturated deeply when moving about was Oramorph - it was a real godsend, helping him to get his breathing back under control. Not something to be scared of when used at the doses for breathlessness - I don't know how we would have managed without it. Eventually he was having 5mls pretty much whenever he needed it.

FarmerD profile image
FarmerD

Hi Gidge,must admit when they first said " palliative morphine " I thought I must be on my way out as my sister in law was given it when dying of cancer.But it is actually helping a lot I just have to keep the dose low as I like it a bit too much.Sorry to hear of your husbands passing,take care.D. 💐

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