Lung transplant accessement

[Michelle12120]

Got my date for my 4 day lung transplant accessment. It's 23rd February. They told me last week it would be April before I was going back up there. But my consultant in nottingham has spoke to them and brought it forward. As I'm now really struggling with my breathing

[sesh123]

Thats grear news Michelle i see my consultant next month to see if i can go on surgical list, good luck x

[Michelle12120 in reply to sesh123]

Thank you and good luck xx

[Hidden]

all the very best Michelle - great news

[Michelle12120 in reply to Hidden]

Thank you xx

[Jolyn]

That's wonderful news Michelle...wishing you well. xxx

[Michelle12120 in reply to Jolyn]

Thank you I just want my life back xxx

[butter-fly]

My nephew had a double lung transplant just over a year ago and he's never looked back so I'm delighted for you Michelle. Life will be so different and you can enjoy it as you are meant to. 'Til then look after yourself. Sara xx

[Michelle12120 in reply to butter-fly]

Thank you I'm so looking forward to getting my life back. I'm only 39. What hospital was your nephew in xx

[butter-fly in reply to Michelle12120]

He was in Harefield Michelle. xx

[Michelle12120 in reply to butter-fly]

I'm going up to Newcastle I live in nottingham. How does he find all the anti rejection drugs xx

[butter-fly in reply to Michelle12120]

He didn't have any problems with them at all but he was a bit naughty at first and missed taking them a few times. Which is not good! He very quickly found out that they are not to be messed with.

I've heardgood things about Newcastle. xx

[Michelle12120 in reply to butter-fly]

That's what my worry is if I forget to take them. I went up there for my one day accesment they was lovely people. I just want my life back I'm only 39 with 3 kids xxx

[butter-fly in reply to Michelle12120]

Not to worry. If you do forget them occasionally you won't die! But you will begin to feel the effects if you become careless. And typical man he was being careless. He was 56 by the way when he had his op. No problems at all.

You'll be fine sweetie. Just look after yourself.

Sara xxx

[Michelle12120 in reply to butter-fly]

I just find it all scary but I know the transplant will give me my life back. How long was your nephew in hospital for xxx

[butter-fly in reply to Michelle12120]

He was in hospital two and a half weeks but the aftercare is excellent. They will really look after you. After all you are a big investment! xx

[mattcass]

Hi Michelle12120. Great news for you there are people here who have been for the same tests you are going to have and there are others on the transplant list for and I'm sure they will share their experiences with you, I met my respiratory team in Edinburgh 2013 to discuss me going on the double lung transplant list but was put on hold for the time being as I have Rheumatoid Arthritis as well and because it was the RA that too half my Lung space it may still happen, Good Luck Matt

[kimmy59]

That's brilliant news, good luck.

Kim xx

[Dedalus]

That's fantastic news for you - hope all goes well - good luck x

[FarmerD]

Hi Michelle,glad to hear things are progressing for you.I,ve just been told transplant is the next plan for me,if the rest of my old body can take it,just about to start preliminary tests.I wish you the very best of luck for the 23rd,please let us know how you get on.Regards D.

[Offcut]

I wish you the best for your new better beginning!!!

[Nanny49]

Such good news - hope all goes well for you, Michelle.

[Michelle12120]

Thank you everyone I just want to get on the active list. And get some new lungs and have a life I'm only 39 and hooked up the oxygen 24 7

[jackdup]

That is good news and I wish you the best of luck in the assessment and hope you are eligible.