Study on IPF: Have you had IPF for more... - Lung Conditions C...

Lung Conditions Community Forum

56,332 members66,949 posts

Study on IPF

RFPM profile image
RFPM
4 Replies

Have you had IPF for more than one year? Maastricht University and King's College London are conducting an academic survey on IPF. The 15 minute survey will ask you for your personal views and opinions and your answers will be anonymous - please click below if you'd like to take part.

A small donation will be made by Maastricht University to the BLF as a way of saying thank you for your time and effort. We’ll get more information about the results next year, which we will share online.

Thank you for taking part!

scripts.hcscommunity.com/sc...

Written by
RFPM profile image
RFPM
To view profiles and participate in discussions please or .
4 Replies

OK done!

HuwieHex profile image
HuwieHex

I completed the survey but most of the questions seemed to have no relevance. Far too many questions about medicines agencies, one of which I had never heard of.

RFPM profile image
RFPM

Thank you Alan and Huwie for doing the survey! I appreciate Huwie that some of the questions may not be directly relevant to you, and I will feed your comment back to the researchers. If you'd never heard of the agencies then I guess that will tell the researchers something in itself. Ruth, from the BLF

Little-Lung-Lulu profile image
Little-Lung-Lulu

Completed the survey, but I think I might be a bit biased as it was the medication I was given for a UTI infection that gave me the IPF in the first place. Namely Nitrofuriantoin. Would like to know if there are anymore people like me who have this disease because of this antibiotic, which is still prescribed today.

Not what you're looking for?

You may also like...

IPF Week - 23-29 September BLF Leading the Fight Against IPF

Do you or someone you know have IPF (idiopathic pulmonary fibrosis)? You may like to add a date to...
BevWears profile image

Patient survey - IPF/ILD

Hi all, IPF Week is coming up in just under two weeks (16-24 September), and as always we’ll be...

Carer for Mum with IPF

Hello All, I do hope you or your loved ones are okay in this blasted muggy weather... Ive been a...

Research study - Do you have COPD? Using computers and mobiles to help keep active.

Hi Below are details of a research study being carried out at the University of Sheffield. If...

IPF Week

Had a message today from someone at the BLF about doing an article about IPF to be published on IPF...
tanyamarie profile image

Moderation team

See all
AsthmaandLung profile image
AsthmaandLungAdministrator
moderator_AandLUK profile image
moderator_AandLUKAdministrator
Claire_ALUK profile image
Claire_ALUKAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.