Pete's problems: I don't often post but... - Lung Conditions C...

Lung Conditions Community Forum

56,326 members66,957 posts

Pete's problems

sassy59 profile image
22 Replies

I don't often post but do like to read what others have to say but today Pete got a letter saying he may have sarcoidosis in the heart muscle. He had an MRI heart scan in July and apparently the hospital tried to phone us but did not get through. No idea why but will check. Pete is going to hospital on Friday for a Novacor test for one week. He has to push a button if he gets chest pain and it will take a reading, then he goes for an Angiogram on the 23rd to find out what is going on with his heart as he has become more and more breathless on exertion of any kind.

It has all come as a bit of a shock really but we will get through. Still no word about the MRI scan for his back though. Sleep well all. xxx

Written by
sassy59 profile image
sassy59
To view profiles and participate in discussions please or .
Read more about...
22 Replies

Hi sassy, so sorry for Pete a lot more for him to go through, but least they are doing something and hopefully make things better for him, and how are u , as this bears on u 2, having to stay strong for both of u, take care BOTH of u. X Sonia x

sassy59 profile image
sassy59 in reply to

Bless you Sonia, I am ok and staying strong. Trying to keep Pete going and not worrying too much. As you say, at least they are doing something for him. xxx

in reply tosassy59

Well u know everyone is here for both of u, always on for a chat when needed. X Sonia x

sassy59 profile image
sassy59 in reply to

Thank you. xxx

Louisiana profile image
Louisiana

Poor Pete - it's wonderful that he has you to give him the emotional support. You both need a HUGE hug - wish I could give it to you, but I am sending it. Good luck with the results. nite nite....:)

sassy59 profile image
sassy59 in reply toLouisiana

Thanks for the hug Louisiana - much appreciated. You take care. xxx

Hi Sassy,sorry to hear of your probs.Hope Pete gets some good results from his tests.

I'm glad you both have each other for support.

I would question how the hospital took so long to contact you,something not right there!

I sincerely wish him well,do let us know how it goes,

Hugs & love to you both xxx

sassy59 profile image
sassy59 in reply to

Oh I will be asking questions Wendells. Even if they could not get through on the phone, a letter could have been sent out much sooner. We are getting used to having to wait though now unfortunately. I will let everyone know how Pete gets on and wishing you well too. xxxx

jenss profile image
jenss

Dear Sassy I am so sorry to hear of Pete's additional problem and worry. I hope he will get some good news when he has his tests. Thinking of you both. Lots of lovexxx

sassy59 profile image
sassy59 in reply tojenss

Thanks jenss, hope you and the family are doing well. xxxx

Crossing everything for you both Sassy. The only good thing I see about this is that at least his doctors seem to be proactive and keeping a good eye on him. So many of the doctors we hear about on this forum are careless about checking out extra symptoms. Wishing for the best result possible !

sassy59 profile image
sassy59 in reply to

I agree Argana and I am grateful something is being done. Thank you xxxx

Suzy6 profile image
Suzy6

Hello sassy, keep strong and try to keep positive. Pete is one lucky guy to have you. Will keep you both in my thoughts and prayers. Tell him to stay in there and keep fighting and I'm giving you both the best of wishes.xx

sassy59 profile image
sassy59 in reply toSuzy6

We are both lucky to have each other and our family close by too. Thanks for your kind wishes Suzy and Pete has lots of fight left in him yet. Best wishes to you too. xxxx

So sorry for you and Pete - especially when you should have had a phone call. On the positive side at least he is getting the medical attention he needs and will hopefully help him. Take good care of each other, lots of love TAD xx

sassy59 profile image
sassy59 in reply to

You take care too TAD and thank you very much. xxxx

peege profile image
peege

So sorry to hear this Sassy. Thinking of you both. P xxxxx

sassy59 profile image
sassy59 in reply topeege

Cheers peeg, much appreciated. xxx

oh Sassy I am so very sorry to hear of this new development with Pete and hope you are both bearing up under this.

You are both in my thoughts xxx

sassy59 profile image
sassy59 in reply to

That is so kind of you eyes. In fact everyone on here is wonderful and I do appreciate the kindness and support. Take care xxxxx

THEY TRIED TO RING YOU IN JULY !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! they didnt try hard did they thats bloody disgraceful

you know we are here for you if you need to blow your top x x x x

sassy59 profile image
sassy59

Thanks mandy, we did think that was wrong and will be mentioning it on the 23rd. I just don't get it and why does It take so long to send a letter? Ridiculous!

Thanks for being here for me everyone. Lots of love, xxxxx

Not what you're looking for?

You may also like...

Pete's angiogram

We have just returned from Pete's angiogram appointment and he does have sarcoidosis in the heart....
sassy59 profile image

Pete's home and doing well

Just to let all you kind and caring people on here know that Pete's back surgery went very well...
sassy59 profile image

What a day

Pete has had some heart pain which he thought was angina and kept taking his tablets. Doctor at his...
sassy59 profile image

Brompton visit

Well, we did it. Pete, myself and our daughter went by train to London to visit the Brompton,...
sassy59 profile image

Back to the back

Just an update on Pete's on going back problem - he has a letter for his pre-assessment at long...
sassy59 profile image

Moderation team

See all
AsthmaandLung profile image
AsthmaandLungAdministrator
moderator_AandLUK profile image
moderator_AandLUKAdministrator
Claire_ALUK profile image
Claire_ALUKAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.