i am so fed up i seem to try so hard and feel i am getting no where nobody under stands how awful this illness is x
fed up: i am so fed up i seem to try so... - Lung Conditions C...
fed up
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jeanlock
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27 Replies
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r bless keep your chin up hun i know how your feeling , everyone takes us for granted
Oh jean, I know exactly how you feel, because outwardly we look fine people think we are making excuses, sometimes my family included. I find losing myself in a good book helps. Try to keep positive, it does help your overall well being. Wish we all lived near each other we could met and have a good natter and a laugh. As nannyb says chin up best foot forward. xx
wouldn't that be lovely! What a laugh we could have. Try and keep going.... I find swearing helps......of course, I live surrounded by fields, no neighbours, so can get as lavatorial as possible and scream things at walls...I even find reading difficult when I am truly down and fed up, so I tend to watch stupid television programmes where I don't have to use my brain (or what's left of it) Wish I could use the wine, but I have arrythmia of the heart and wine sends it skyrocketing....ah well. Sending you positive thoughts. 
Louisiana, Bl%$^& Ba*&()£ illness!
Hm feels better!
Brrrrilll........:):) you take good care and know you just cheered me up no end, ....thank you Let's hope today is a nice day for you. sending lots of good wishes
Lousiana, Thank you so much for your good wishes. My wife, who is long term in hospital with bipolar disease came to see me and upset me by telling me the "reasons" why she gets ill. I so wish I could change this and heal her! She tried to comfort me, I cried even more!
my heart goes out to you. I do know how deeply emotionla it is to have someone you love hurting.....try not to take it on yourself.....it isn't your fault. You take good care....dont forget the group are here
big hug to you Louisiana. It's fortunate that I am an optimist. it's sometimes that I really get upset because I cannot do anything. The staff tells me that they have a plan to move my wife where she will be nearer me and where they will supervise her 24 hours a day. I used to do this and had to have her to hospital because I just couldn't cope; it was disturbance during the day AND during the night. At least, she is well looked after now and has the freedom to go to Canterbury or come and visit me.
I find it very helpful to say it like it is and have a moan then feel compassion for yourself then look at what's still good and what can help it be better. Acceptance at same time as ambition hope you have more smiles soon xxx
helingmic• in reply to
I quite agree with you Julie, we have to have great compassion to ourselves and to our body. That's another thing to repeat in front of the mirror, I love you so much body and mind. You can be creative in those affirmations.
I pray, but that's me!
• in reply tohelingmic
Great mantra x
Sometimes we feel like that,it's because unless you experience what it feels like to go there,you'll never understand what it's like,but some days are so wonderful to meet others who experience the truths about respirortary disease ,there is a lot more groups popping up in areas we don't have to get to without oxygen( me being cynical) .anyway have hope!!!
I hope you have woken up today feeling much better! It is so difficult - this is such an invisible illness. My husband looks fine - and I am sick of people telling him how well he looks - he does until he tries to move!! We went out for tea on Saturday with my sister (who used to be a nurse) - they got to the restaurant first and found a table - upstairs with no lift access! When we had found a table we could actually access my sister apologised and she was upset and said she just "didnt think". My husbands reply - "No-one ever does"! And I think that sums it up! Take good care, look afer yourself and try to stay positive TAD xx
Hi jeanlock I know exactly how u feel, it's gets me down too, I try and be positive but just doing some of the daily tasks of living is exhausting it seems a constant battle, but we have to stay strong ( as much as we can ) and not let it win, ( harder said then done sometimes ) but like others say chin and smile, as long as I wake up each morning I've something to be grateful for. All the best. Sonia xxx
One way to deal with those awful feelings is to look in your mirror and say to yourself, "From now on, I shall not be a victim any more."
If you could start with gentle lung exercises, you can improve too. here is a set:
youtube.com/watch?v=iIrAUL_...
Sorry you are going through a bad time, but you will see the end of it. Take charge with courage.
And if you feel exhausted, there is absolutely no shame to have a little nap. It helps your body fantastically to stop and drop! I do this very often. Of I don't sleep, I actually read to take my mind of it, and rest my swollen ankles too!
Hope you feel a bit more cheerful soon! Hug from someone who has experienced it !
hi jeanlock [hope youve not got a brother called pad:)] i hope you can smile at that jean xx,,,,
jean, i know how you feel, in fact i would say most on this forum would know how you feel, as we have all felt like that,,,i think it was suzy who often called me" her wee jovial jock" , in the past few weeks i let my guard down, i was certainly not the "wee jovial jock lol" because i have been ill, and let myself get somewhat down a bit, but when you think about it, thats really quite normal, but thats the part of the disease we must conquer, hard as it is,, i find hobbies help, a good joke helps,theres a good joke page on the forum, [often spoilt by me lol] a talk with a good kind compassionate friend helps, [and theres plenty on this forum willing for this] , one thing to remember is, no matter what, or how bad things seem, theres always someone worse off than yourself,,,,. then sometimes it helps to let off a bit steam [meant in the best possible sense, off course!!!.] you keep working on it jean, i am sure you will get over this rotten period.as i am trying to do,,,, god bless you love, xx jimmy
p.s.i have just rambled on best i can in the few minutes im burning my dinner lol, but will just add a genuine letter i have under a photo, i have on my wall, of a dear departed old friend who was blinded in the war,,this has often given me great inspiration.....
"nothing in this world is more unpredictable than life itself, and there is only one way to live it, and that is by one day at a time,
after 40 years of blindness, there are, strange as it may sound, blessings to be counted.
there are times i feel desperately sorry for myself, but on these rare occasions, i remind myself of my great fortune,
i fill my lungs with wine like air of the early morning , and i bless my good fortune of another day"
j,j 1985
stick in jean, fight when the fight is hardest, you will get there, lots of kindest wishes,,,jimmy xxx
That's a beautiful letter Jimmy xxx
It is most definitely a beautiful letter. Feel better soon Jimmy. You will always be my "wee jovial jock" xx
thanks for all your great replies had a bad hangover for the last 2 days having a laugh reading all your messages cheers bless you all xxx
we do....even though most of us have different problems we know how bad it is so moan to me anytime x
Would love to join you with a glass ( or bottle of wine )lol! Can't anymore, blooming meds, used to love a drink , sometimes found it a " cure all ".mood will lift. Take care Anne
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