Good news for me today: I was on 4lpm... - Lung Conditions C...

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Good news for me today

Bryju124 profile image
17 Replies

I was on 4lpm continous flow oxygen 15 hours per day plus ambulatory, at resp clinic about four weeks ago reduced oxy intake to 2lpm only when sleeping and amb. Today have come out of the clinic, stop oxy at night and only require ambulatory on pulse and resp nurse going to talk to consultant about stopping ambulatory, we shall hear the outcome of this later. I am over the moon and some of that improvement is down to you folks, I read everything and take on board and try various things you talk about e.g vitamins, manuka honey, I have been going to pulmonary rehab and pushing myself, I have joined a walking group and get out twice a week, also taking azithromycin which is my miracle drug. Happy day :)

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Bryju124
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17 Replies
Puffthemagicdragon profile image
Puffthemagicdragon

That is so cool ! Great news ! :)

Well done ! It's great to read such an encouraging post and an incentive for all of us to do our best.

coastal1 profile image
coastal1

Brilliant news . I think that exercise lifts the spirits as well as being physically beneficial . I too joined a walking group afew months ago ....good exercise , fresh air ,meet new people and see new places .

Hope you continue to improve .

Cheers Coastal .

thomas8 profile image
thomas8

Great news, it is so good when there is improvement, so pleased for you

Wowed. Well done. Do you know criteria for needing ambulatory oxygen?

Bryju124 profile image
Bryju124 in reply to

Hi juliekay, my sats were 72 when I first went to respiratory clinic and I desaturated quickly when I did 6 min walk test so my organs were not getting enough oxygen, so immediately they put me on 4 lpm fifteen hrs a day and ambulatory, other than that I don't know x

RibvanRey profile image
RibvanRey in reply to

From what I remember the general indicated is when your blood oxygen regularly is reading 92% on an oximeter. That is certainly what trigger my referral. Rib

Offcut profile image
Offcut

Impressed!

Well done great to hear a very positive result.

Be Well

Wow,go girl! You must be so pleased with yourself,marvellous effort,congrats xxx

Bryju124 profile image
Bryju124

Thank you all for your comments, couldn't have done it without this forum x

junespoon profile image
junespoon

How did you do that please.x

Bryju124 profile image
Bryju124 in reply tojunespoon

Prescribed azithromycin which has helped me enormously eight weeks now, take multivitamins and garlic capsules daily plus a spoonful of Manuka honey daily. Exercise at pulmonary reghab twice a week and at home, plus I joined a walking club, that's all I have been doing. I think most if it down to azithromycin however the rest has helped xxx

RibvanRey profile image
RibvanRey

Congrats. You must be so pleased. I cannot imagine how wonderful it was for you to get the news. Fingers crossed for the ambulatory. Rib

pollyjj profile image
pollyjj

Well done for working so hard for that fantastic achievement.

polly xx

RobbyDrum profile image
RobbyDrum

Blimey ! Well done you... That is inspiring

2malinka profile image
2malinka

Well done! You are an inspiration. I too am on oxygen at i/2 litre 15 hours daily + - low because I am a CO2 retainer. One COPD Nurse told me that once you were on oxyen that was it for life! Dangerous woman. Once again, congratulations.

Cheers

wazoo profile image
wazoo

That is great! must try the manuka though. Keep it up.

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