Tell us your experiences.: Hi As part... - Lung Conditions C...

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Tell us your experiences.

MarkPilling profile image
24 Replies

Hi

As part of our (BLF) on-going service improvement, we are keen to find out about the experiences of living with lung disease amongst people who currently do not have access to, or do not currently attend, a Breathe Easy group. If you are happy to be contacted by us, please email Sumita.sharma@blf.org.uk.

Thanks

Mark

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MarkPilling profile image
MarkPilling
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24 Replies
Plumbob profile image
Plumbob

Tried to send e-mail but Sumita.sharma@blf.org.uk. was coming up as unknown e-mail !!! is it correct or is it me , I copied and pasted so can't be a typing error !!!

termite profile image
termite in reply toPlumbob

anything .org is a web site, you need an e-mial address! Perhaps if you log onto the website there will be a contact link available.

Please pass on ... I am willing:)

Moderator profile image
Moderator in reply to

Try this sumita.sharma@blf.org.uk

Plumbob profile image
Plumbob in reply toModerator

I am more than happy to take part so please pass my info onto the appropriate person!!!

Ohtwo profile image
Ohtwo

I will happily take part

Kindest GJ

Moderator profile image
Moderator in reply toOhtwo

Try sumita.sharma@blf.org.uk

kimmy59 profile image
kimmy59

I'll take part, if you could pass on my details please.

Kim

Moderator profile image
Moderator in reply tokimmy59

Try sumita.sharma@blf.org.uk

lindiane profile image
lindiane

Hi I tried to use the provided email address but gmail email say it doesn't exist .

Anyway I will be happy to help in any way. please pass on my details

regards Linda

Moderator profile image
Moderator in reply tolindiane

Try sumita.sharma@blf.org.uk

katieoxo60 profile image
katieoxo60

I would love to take part have just sent an email

Bryju124 profile image
Bryju124

I will happily take part again cannot access email address.

peege profile image
peege in reply toBryju124

Just change the first S to lowercase s

Nikkers profile image
Nikkers

I tried to send you an email at the address you've given, but it came back unrecognised, so this is what I wrote.

Hello,

I don't mind talking about my COPD if it can be of any help to you?

I have had Bronchiectasis since I was a baby (I'm now 72) and in recent years have developed

Emphysema too. I take 2 inhalers daily and have stand-by antibiotics for infections.

I attended a pulmonary therapy group earlier this year for a few weeks, but I'm not sure if that

is what you're referring to?

Regards

Nikki

corazzon profile image
corazzon

I will take part.:)

corazzon profile image
corazzon

I will happily participate too. :)

huggs profile image
huggs

I have taken part and outlined the facts and how I feel about not having access to Breath Easy. I don't know if that is what they want, but I have provided enough information to give a background and if they want to contact me again, then they can.

To anyone having problems with the email address Mark originally posted. Use all lower case letters, me thinks Mark made a slight error in putting a capital S instead of a small s. I digress, as usual!!! hugs xx

onamission profile image
onamission

I would take part we do have a group in our area so I'm not sure I would be suitable

Offcut profile image
Offcut

I would be happy to take part.

Offcut profile image
Offcut

Had a reply just a matter of waiting to see what happens now.

Sokrackers profile image
Sokrackers

Hi guys, here comes the newbie! Do we have a live chat facility?

Jeremy76 profile image
Jeremy76

Why not just tell your experiences here?

Jeremy76 profile image
Jeremy76

It's been a 18 months since I was diagnosed with early stage emphysema.

I had a check up about 6 months ago and it seems there has been no progression or regression of my condition. I have an occasional cigarette (about 1 per month avg) and feel it really gets to me the next few days after, so i'm working on avoiding the cravings and giving in to them. Overall, i'm doing ok.

Putting on weight is more a concern right now!

Damn this appetite post smoker deal!!!

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