Sorry if I haven't responded for a while, but I have been in hospital as I went to doctors due to swollen feet and stomach,it got so bad i couldn;t breathe..Dr rushed me to hospital..I had ct scan which showed a swelling on my left kidney and to top it all gall stones..corpulmonale was the final diagnosis,right sided heart failure. .No wonder I felt ill .Oh well some other ailment to add on lol.yay .I have had a letter from Royal Brompon to say I will be having an op but no date as yet!! I was in for over a week, and because of the high dose of Morphine I had to have an enema, I can hear you all laughing, not funny at all..Hope every one has been as well as can be expected..xxx
Hiya everyone I am back.... - Lung Conditions C...
Hiya everyone I am back....
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49 Replies
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OMG I read the other post first and glibly hoped you were feeling better!! You have been really ill and I have been wondering how you were. Gall stones - nasty, and the right sided heart failure - you must have been so ill. Glad you have had a letter cant expect a date as well!!! Yes the enema did make me laugh - I do have a horrid sense of humour! Are you feeling a bit better? xxx
in reply to
Feeling a bit better Tad,but after bubble blowing,bed rolling ,huffing,I just want to sleep..lol When I wake I go through it all again..The right sided heart failure sounds worse than it is,as the g.p says its because my body is struggling to breathe and my heart is working harder to compensate..Enema not nice at all that scared me more than when they go in my artery for the gases..Just been told I will have the full rlvs and have to stay virus free...Hope your doing ok? Keep smiling! xxx
Your having such a terrible run of bad health Porche, as you say, no wonder you've been feeling so ill !!! The sooner you get your op the better. It's bound to help ease your suffering. Gall stones are agony I've been told. You must be tough lass to have coped with all this but at least they can start picking them off, one at a time. xx
in reply to casper99
I think they thought I was hyporchondriac with all these ailments,until my body blew up like the Michellin man lol.I am trying to stay strong and they say I am amazing for what I am going through, but alone I do have the odd tear and frustration,but there is always someone worse off ..xxxx
Talk about through the mill, lets hope you can start feeling a better now. Goods news about the Op shame no date but it's a step forward. Rest and get yourself fighting fit.
Kim xxxx
in reply to kimmy59
Thank you Kimmy for your kind words,The peeps on here are so lovely,Regarding op I have to be virus free for 3mths then have some tests and allsorts..Cant wait to have it done,I have been told they are doing it through the front of chest.I will be buying pretty scarfs lol Take care and stay well xxxxx
kimmy59 in reply to
Where is your Op. xxx
in reply to kimmy59
Royal Brompton hun, xxxx
kimmy59 in reply to
My doctor has wrote to them asking for me to be part of the trial for lung coils, not heard anything yet, but a friend of mine is going in 29th June for lung reduction. So I'm keeping everything crossed.
Kim xxxx
in reply to kimmy59
My specialist wrote regarding the coils for me,but they have decided to do a lung reduction..Can you please let me know how she gets on bless,as I am scared stiff..I have been told I have to be virus free for 3mths(I am just getting over a chest infection groan).How long did she have to wait?I hope all goes well for her, and you get a reply soon as they keep you waiting a long time before they reply!.Keep in touch and good luck..Laura xxxx
kimmy59 in reply to
I don't know where my reply went. You'll be fine it's marvellous what they can do. I will keep you informed about my friend the she is a he actually. Have they not suggested Azithromycin as you get constant infection.
Kim xxx
Porche, I am not laughing at all. Everything you have gone through sounds dreadful - even the enema, not nice!! I hope you get a date for your op soon and that you are well enough to have it when the time comes. xx
in reply to
Thanks poems I will keep you informed, I hope than once I have the op they wont give me an Enema lolxxxx
Poor love - you have had and sound as if you are still having a rough time. No I didn't laugh - been there. Are they going to remove your gall stones? Hope things improve for you soon. cx
in reply to cofdrop-UK
No mention of the gall stones, They gave me laprazole for indigestion and I try not to eat fatty things and stay with all the good foods..It helps a little..Renal specialist been in touch and will leave the cyst,pustle,lump whatever it is in the Kidney till I have my lung sorted..I just want to breathe its getting harder by the day..Keep well sweetheart and thanks for the kind words xxxx
in reply to cofdrop-UK
The consultant wasn't that interested in my Gall stones as much as my breathing,so I suppose that will come at a later date,With all the scars I am going to look like a road map and to think I got no stretch marks after having 3 kids lol...I saw quite a few on a the scan,no wonder I get indigestion.I was given lamprazole and Gaviscon for the time being for the indigestion..tut...
Dont know about lump in Kidney as yet,I expect they will give me an Aspirin and tell me help myself lol..
Hope your ok?Take care and hugs Laura x
No not laughing, really feel for you, not nice at all,Hope things will be on the up for you now, you really have been through the mill.x
in reply to junespoon
Thank you June,I hope your as well as can be,Take care and keep smiling.xx
Hi porche goodness me what a time of it youve had so sorry to hear . I do hope you dont have to hang about to long for your op.Enemas your right not nice,Ive only ever had the one of those and I remember it well,they used to automatically give them to you when you went into labour! whenI had my first baby and labour started ,worry and being terrified made me go so when I went to hospital and they said time for 'the enema' I tried to refuse informing that worry had had the desired affect ,alas they insisted I spent the next while very embarrassed at the sound effects only,they laughed acknowledging i was right!!! 
Hope your feeling better at the mo take care now 
Janexx
It was visiting time when I had my Enema,they drew curtains around and my tummy was making all these weird noises. Everyone was laughing.and as made a few friends there I had some stick believe me lol..Next thing they brought a commode, and I was adamant I am not using a commode on ward with curtains closed and full of visitors..They wheeled me to the loo on the commode like a wheelchair armed with all my smellies lol.Never again!!!!
They said its the Morphine that constipates you, so I have all the works now laxatives,laxido armed ready for my next stay in hospital..Hope your enjoying the weather? Thanks Jane for making me smile..lots of love Laura xxx
I had gallstones years ago and took Potters Herbal remedy for couple of months ... still went ahead with the op and confused consultant came to tell me that 5 of the 6 big stones had dissolved and the last was very small ... gave me as souvenir ! unheard of them just going ! so google and make enquiries .... truly does the trick.
Is the operation for heart ? all best xxx
in reply to
Wow I will ask my nurse can I try the herbal remedy..Thanks..I am having a lung reduction op ,in the near future.The heart failure where I swelled up was because my heart was working overtime due to breathlessness..I am now on Spirondlactone to take alongside furosimide to keep the fluid off my feet and tum..I was like I was 9mths pregnant,they callled it Achillies or something..I couldn't fit into any of my clothes it was horrible...Take care xxxxx
in reply to
The lung op sounds great for you. I get very swollen feet and take furosimide ...seems I may need the other one too then ! my consultant said it's heart failure recently....urgh !!! glad you getting help after going through tough stuff xxx
in reply to
You seem to be like me Julie,The heart has to work harder to pump the blood around..One good thing my heart is strong! If you are getting more fluid and furosimide not working as good,mention Spirondlactonet to your g.p..It has worked and at least a cpl of litres has been weed away lol..
You are having it hard too Julie,Its like all different stages, things keep happening..My arms are bruising badly from the steroids over the years,and my skin with this sun tan makes me looks like a leather handbag ...xxxx
Ha..from one rather crumpled leather bag to another ... long sleeves needed for me so not to scare folk! Starting to surprise myself in mirror. The age shrinking and steroids with muscle loss a bad combo! Ah well still can just about get to bottom of garden for bbq in a mo..not sure how long to get back up tho! xxx
in reply to
Julie you look very familiar,I was wondering where you live..?There again we all have a double somewhere and my other had the better life lol xxxx
in reply to
Lived in Lancashire Scotland London now Wales. My sister used to be mistaken for me and got hearty congrats on birth of my son ! X
in reply to
I am welsh,originally from Caerphilly.I now reside in Taunton Somerset..What part of Wales?
Haha she was well pleased I bet! x
in reply to
North east Wales... lovely and peaceful after London ...guess Taunton better for breathing than wet Wales. Would love to live in cornwall near sea. Maybe next home? Have good day. X
in reply to
Somerset beautiful and the air fresh .I came here 15yrs ago and was asked by a specialist which pit I worked down lol..I live at the foot of the Quantock hills,really lovely,pity I can't walk them any more though....x
in reply to
Me too. Look at lovely hills here. Still..so lucky to be living in such lovely place whatever life we have ...its great eh! x
in reply to
Love the country air,I am beginning to get claustrophobic even in the shower lol! We are the lucky ones!!
Enjoy the weather,heard there is a shower on the way to clear the air. mxxx
I had two elasticated bandages to put on my arms to stop knocking them.Ha quite a look from postman, as he must of thought I had had enough I contemplated suicide..Bless him when I explained..Steroids have made my skin so thin on one arm its like tissue paper..
Have a nice evening,save me a sausage lol xx
seems like no one is getting answers to their messages I'm looking but don't see any related conversations strange
So this is where every one is the new upgrade thought you'd all run away and left me
in reply to oxytic
Aww bless you thought we all left you.We would't do that Eric we need everyone we can get to share their experiences and help others..Have a lovely evening.xx
Morning.
Yeah I will keep you posted, it's actually a he. You'll be fine, it's fantastic what they can do. Have they never discussed putting you on Azithromycin, if you get constant infections.
Kim xxxx
in reply to kimmy59
I will have to look into it Kimmy thanks! I am prone to infections, due to the high dose of steroids I am on,but if I wean down a bit off the steroids , my breathing goes down.Its a catch 22 situation...Thanks for advice I will ask my nurse about them...Laura xxxxx
sue48 in reply to
Mornin laura ...how are you feeling today. ? Any better ? We eventually arrived at caravan after bloody sat nav took us scenic route !! Anyway we here and im not moving out of this chair for 3 weeks .weather beautifull. Glourious view of sea and doin lots of people watching. !? Vicar called.y day re vows. She is lovely so looking 4 ward to it not for 2 weeks so chill till then .. hope you feeling improved. Thinking abt you. Sue. XXxX
in reply to sue48
Yay,your officially on hols...I was thinking of you and hope you have a lovely time..How romantic renewing your vows,What are you wearing?
I am finally knocking this bug on the head ,gee it was a buggar to get rid of ,but my breathing is up a bit today..Don't know if its the six steroids still swimming around in me or I am on top of things!
Have a lovely time and behave yourself!! Take care Love Laura xxxx
sue48 in reply to
Oh i really glad you bit better. Seems to take lonnger each time doesnt it ! I just wearing linnen ditsy dress with frill round bottom ( dress bottom ..not mine. ! ) and flip flops ....swollen ankles. !!!!! Will complete the look. . Bill have to sort his bloody self out !! Best go bill appeared with a Magnum. !!!! Hmmmmmmm. Message u later in week. Xxx keep on top of things laura. Xx
in reply to sue48
Feeling better a bit..I love the ditsy print,I have a top like it..There are some pretty flip flops about,but at the end of the day its all about the two of you, and what it means..I think its absolutely lovely...Enjoy yourself, forget forum for time being and have a lovely time...Laura xxx
hi all its me having a look at you all good day to you and hope its gunner be a better day for you all
in reply to oxytic
Afternoon Eric,Hope your ok? finally getting over this infection but phew its so muggy....Hope you have a good day ..xxx
oxygen kills bacteria Im told
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