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Hello friends and hello and welcome to all new members Ive not met as yet.What a beaut of a day its been.A scribblet update.

longlungs profile image
30 Replies

Have been feeling off for quite a while

Cant find my mojo have lost my style

These lungs of mine are taking over

Not only in body now disturbing my mind.

I'm nasty now fed-up with this disease

Shortness of breath and the constant struggle

You all understand your in the same boat

Oh aint it a pain,I just need a good moan!

I Want more energy cos I have a list

My homes a state and needs a clean

Redecoration is needed in every room!

This time of year the garden needs doing

Pulling weeds,hedges to trim

Planting to do and puppy poo to bin!

Oh lordy lordy how i'd love a fag

On television a person lights up

I inhale deeply on my inhalator

Could I have just the one?

I think not it would be fifty one!

Its 8 1/2 mths,cant give in now

But I would like to have just the one!

Tis good to moan and vent our feelings!

When life feels lonely and an uphill trek!

Well Ive made a start on that list of mine

Have done some cleaning in my filthy kitchen

Cupboard doors and all white goods

Look brand new! this is good, I likey a lot!

Next was the bathroom which almost killed me

time to rest no more that day.

Eldest son has painted his room white!

Bedding,curtains and carpet too

He will learn with his first little spillage

and I'll be there with a wry little smile! :p

Youngest son has started mine

Magnolia walls and crisp white ceiling

New curtains and bedding will bring the colour.

The feeling is good as I look around

Still loads to do but a very good start

I will find my mojo it cant be far?

This sense of achievement with this blimming long list!

The boys behaving! their cruel tongues abated!

Sun shining I'm sitting and writing this scribblet

Enjoying the warm rays,smelling grass and bbq's

Life aint that bad Jane, today is just grand :)

Thats all for now folks

Breathe Easy

Keep well

Smile

:) :) :)

Jane xxx

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longlungs
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30 Replies
Puffthemagicdragon profile image
Puffthemagicdragon

Nice to hear from you again longlungs ! :)

longlungs profile image
longlungs in reply toPuffthemagicdragon

Well thank-you kindly Puffthemagicdragon ,hope your keeping well ? :) Janexx

Puffthemagicdragon profile image
Puffthemagicdragon in reply tolonglungs

I am now, thanks, after a really bad few weeks in hospital . Back to normal now, whatever that is ! :)

longlungs profile image
longlungs in reply toPuffthemagicdragon

Hiya really sorry to hear of your rotten run of being so poorly and such a long stay in the hospital,but delighted to hear that your back to your normal,as you say what is normal we are all different.Here's hoping you have a good long stretch without another gremlin attack on your lungs,keepwell now :) Janexx

Puffthemagicdragon profile image
Puffthemagicdragon in reply tolonglungs

Cheers LL. It's the first and, hopefully, the last I've had since being diagnosed 3 years ago. At least I have gone back the way I was before the infection, thank goodness !

I really enjoyed reading that,exactly how I feel. Omg paint fumes a no no, Bet your home looks lovely. Scribblet some more xx

longlungs profile image
longlungs in reply to

Hello porche296 your not wrong with the paint fumes fortunately its only emulsion which ofcourse smells but doesnt linger like gloss paint,and I dont use that because of its smell lasting so long.Well life is slow for us with dodgy lungs but Im getting there,we're a bit like yoyo's up and down.Thank-you Im glad you liked my scribblet update.How are you at the moment? Keep well :) Janexx

Suzy6 profile image
Suzy6

Hi longlungs good to hear from you. Oh what a little busy bee you are. You will be so happy and smart when it is finished. Take care xx

longlungs profile image
longlungs in reply toSuzy6

Hi there Suzy good to see you too.Well Im trying to be busy every day is different though you just never know but Im on a roll at the min so making hay while the sun shines.Have just seen some curtains in homebase which I wasnt expecting,they are both reds,one is a large flower with brown and flecks of creamy gold,the other is a wide stripe of the same colours both are faux silk feel quite nice to touch.It might be the flower pattern I go for yes decision made lol.Hope your keeping well Suzy see you soon :) Janexx

sue48 profile image
sue48

What a lovely scriblet. !!!it says it all. Good lord. All white. Carpet too. ,He,lll learn ..shoes off etc. Oh well good lads could be worse .When my sonn was about 14 he wanted to do his room in BLACK. ! Needless to say it never happened. ! Lots of love Sue. X

longlungs profile image
longlungs in reply tosue48

Ahh thanks sue I do ramble and scribble I find it helpful aswell especially with a brain like mine feels like theres ten in there sometimes know what I mean haha!

I know what is he like, its like walking into surgery,Ive tried to suggest some rugs in areas that might suffer with accidents but no,he will learn he's not that good!Hope your well in yourself? :) Janexx

scrobbitty profile image
scrobbitty

That's a scriblet and a half there Jane! Your mojo had a temporary holiday, if it sees mine, tell it to get back here now would you :D xx

longlungs profile image
longlungs in reply toscrobbitty

Haha what a waffler Iam.Thanks for making me smile scrobbity.Mojo's dont like you being down and just bugger off for a while,yours and mine have been giving it large somewhere else time to get back where they do belong :p Are you doing good at the moment ? See ya soon :) Janexx

Toci profile image
Toci

Long time no scribblet, longlungs!

longlungs profile image
longlungs in reply toToci

Hello Toci I know it has been a little while.Life can be troubleson at times and mine has just had its share for now.Slowly slowly getting there now happy days I hope are afoot. Keep well nice to see you :) Janexx

Bengunn profile image
Bengunn

Hi Longlungs.Nice to hear from you again,thought you had gone out on gerty and got lost.I finally got the hibernator out and went for a spin but I had to take my oxy bottle with me as my breathing is pretty bad now is getting worse by the month.Have to see my consultant on Monday and I hope to persuade her to let me change from bottle oxy to a portable concentrator as the bottles are getting to much for me,i am expecting to be put on oxy 24/7 as I think I have moved on to final stage and the Med I am on don't appear to be doing much.Hope you stay well.Bengunn.xxx.

in reply toBengunn

Good luck on Monday Bengunn! Sorry to hear things not so fab,at the moment,make sure you let her know how you're feeling!

Best wishes,& love Wen xxx

longlungs profile image
longlungs in reply toBengunn

Hi Bengunn very good to see you .Glad you had a little spin on the hibernator it is lovely to get out there.Oh Bengunn this is no good to hear! I really hope your consultant is able to help,make sure you mention everything you want to,make some notes before eh?Sending ((((Bengunn)))) Please keep in touch and let us know how your appt goes? :) Janexxx

Hi Jane,what wonderful scribblets you do,have realy missed them! Big Huggles to you,gentle ones of course!

Now don't go overdoing it gal,you made me tired listening to you! But it is a wonderful feeling when it's done isint it?

Have you been getting out on Gertie?Im sure she was missing you,or maybe enjoying a rest ha ha !

Had to smile at the sons choice of color,have a feeling he will regret the white,or maybe become very clean conscious??

Anyway,take good care of yourself,& we will look forward to the next edition of life with long lungs!! love Wen xxxx

longlungs profile image
longlungs in reply to

Hi Wendells nice to see you aswell,thanks for the huggles much appreciated let me tell you.Ihave a garden thingy that you can sit on which has little wheels so I bought that in along with bucket so I didnt have to keep standing to rinse my cloth made things a lot easier.Sometimes when things have been left a while before they've seen a cleaning cloth its so satisfying to see the difference when you do get round to it :p Yes I think he will anyday now hahaha they dont listen he will learn! I shall be out on gertie over the weekend need to go to get a few plants etc not too many just a few for a little colour,my spider plant has had loads of babies so I shall be planting them outside.Afew stringless runner beans and 2-3 cherry tomatoes and my strawberries which are expanding every year and thats my lot more than enough for me to cope with me thinks.Hope your keeping well and hows your hubby doing?See you soon :) Janexxx

nanaber profile image
nanaber

Hi Jane lovely to hear from you and good to see you posting. I know the feeling of mojo going missing maybe must be on holidays maybe it's visiting yours. I have mountains of clothes to iron and and stacks of baby clothes that are gone to small for my grandson to put away. Hope I get my mojo back soon otherwise the clothes in my home will take over

in reply tonanaber

Hallo Nanaber,you sound very busy with your little Grandson! Hope you're looking after yourself too?! We've missed you, hugs Wendells xxx

longlungs profile image
longlungs in reply tonanaber

Helloo nanaber how good to see and hear from you I bet your feet havnt touched the ground very often since your beautiful grandson arrived?You pace yourself hows your daughter coping now it cant have been easy for her,you have been a fantastic mum ,dont forget you though hun eh?Yes I think there must be a mojo sanctuary where they revitalise and then come back to us lol,hope yours and mine hurry up back they are very needed! Keep well :) Janexx

victoriablue profile image
victoriablue

Best read for a while think you got it all in there how a lot of is feel. Got a friend comes every other week tomorrow her house is like a palace and she has the odd dig at me oooops sorry mate might get more done next time you come

longlungs profile image
longlungs in reply tovictoriablue

Hi victoriablue thank-you.I dont think some more able bodied people really get just how difficult it can be for us at times , even all the time!Long gone are the days when I could go through the house in a day.I put washing on the line the other day,just getting from the backdoor to washing line was difficult enough,to peg a towel on the line warrants a sit down get breath back and carryon so quite major or it is for me,if it then rains im in all sorts of trouble!We do what we can Im sure your friend doesnt mean to offend to be friends is more important than how clean your home is,she could offer to help lol!Keep well now :) Janexxx

Good to hear from you lots of love xxx

longlungs profile image
longlungs in reply to

Hi Tadaw nice to see you too hope you and hubby are keeping well?I think the last I read you were going to the docs was hubby getting a tad anxious? :) Janexx

FarmerD profile image
FarmerD

Hi Jane,good to see you puttng quill to parchment (lol) again love your scribblets.Lets us all see we,re not alone in our struggles.Stay happy!D.

longlungs profile image
longlungs in reply toFarmerD

Hi there D thank-you.Life is certainly a roller coaster at times with these ere lungs we have,they can show off at a moments notice and stress doesnt help either,the thing is that tomorrow will be different to today good or bad! Here's to the good in life eh! How are you in yourself D? :) Janexx

FarmerD profile image
FarmerD in reply tolonglungs

I,m enjoying the sunshine thanks Jane.Hope it stays with us for a while,easy wheezie lol.D.

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