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Have basal fibrosis and pulmonary clots treated with warfarin. Can someone help me with my walking and breathing difficulties.

10 years ago•7 Replies

Been treated with Warfarin for 3 months and have advanced prostate cancer whose treatments make you tired but not this tired. My legs ache to just walk a short distance but oxygen levels are ok at 95%

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smith1assoc

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PeterK110 years ago

Hi, been through the treatment for the cancer myself, yes it makes you feel tired and can also cause damage to the hips via small fractures, it can also cause lung problems by thickening the lung walls, ask for scans to the hips and have the lungs checked out for thickening walls. I could not find the energy to walk and breathing was very difficult, I bit my lip with the walking part and forced myself to walk a little bit further every day, it worked. The breathing was helping by holding my breath with full lungs for as long as I could, (about 10 seconds), This I would do 5/6 times a day and then I increased the count to 12 then 15 seconds. I am now walking a good distance even though it hurts like hell and I can hold my breath for 45 seconds now so things are getting better the more I push myself, plus I got the GP to prescribe a new inhaler called Relvar Ellipta which has worked wonders. Hope this helps and good luck.

Peter

smith1assoc in reply to PeterK110 years ago

Peter thanks for your comments. I will try your ideas and see if they work for me. I suspect you might have more will power and tolerance of pain. I have had CT scans and that showed the clots and fibrosis will also try the GP for the inhaler.

David

CornishBrian10 years ago

I totally agree with PeterK1. Still waiting for my prostrate cancer treatment to start but been delayed because my other cancer treatment didn't work. Exercise, gentle but increasing. I have been really lucky in that 4 weeks ago, I started PR.....and one of the main aims of that is to break the negative or declining exercise routine. There is no ned to beat yourself up over it....start off by the warm up exercises only and then try to increase every day in some way. If standing is a pain, try the chair based exercise...don't force the pace, just aim for that little improvement. In my four weeks, my SATS have gone from 88/89 at rest to 97.....I have escaped the oxygen nurse...three cheers. Give it a try....put some enjoyment into it.....stroll to the pub or shops, anything but get moving a litle more and the motivation will carry you on. Good luck.

smith1assoc in reply to CornishBrian10 years ago

Brian once again thanks, you speak a lot of common sense. My problem is also sitting too long at the computer. As Secretary of the Prostate Cancer Support Federation whilst still an unpaid volunteer the workload is high. My wife gets so annoyed that I am stuck in the chair.

Best wishes with your treatment and any help I can give please contact me.

David

CornishBrian in reply to smith1assoc10 years ago

Thanks David....have you tried exercising at you computer desk....easy peasy as the Japanese say. Isometrics, I think the Yanks call it.....getting one muscle to exercise another....such as linking all your fingers together, pushing your arms forward and bracing them. Do that and others while you are waiting for docs to load...always time for breathing control too....thats exercise...lungs are a muscle...ankle twirls, loads to do while sat at a desk. Do you have a can of drink near by when you are on the machine....(best before you open it)..hold it at arms length to the side, raise your arm and pass it to the other hand above your head....great for the arms and getting carbon dioxide out of the lungs.... even get up and do step ups and step downs onto a pile of books....or heel raises...the list is endless. Just a matter of breaking that declining exercise chain. Sometimes we are too well looked after. If I dropped my pen, my beloved would say I'll get it for you and I would let her. Now in the course of 4 weeks I get it myself and I don't go such pretty colours.

smith1assoc in reply to CornishBrian10 years ago

Hi Brian, you are so right about exercise. My problem I think is a combination of indolence and having a single threading mind. It never occurs to me move and take a break from my thoughts. Your wife sounds like mine about picking up things but I let her!!

CornishBrian in reply to smith1assoc10 years ago

There you ago...break that habit...get breathless and go funny colours but deprive your wife of her chance to wait on you hand and foot. a lot of folk always say they get breathless and so they stop. Have they never seen a top class athlete, get to the finish line, bend forward. hands on their knees and carry out breathing control...? They have trained all year for that and they know that being breathless is as much a part of the event as diet, starting blocks and false starts....you can't have one without the other. That is why on PR the limiting factor is Borge 3 or 4.....you have exercised your lungs, got clean air into your body and exhaled the wastes....time to recover and then do it again.

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