i carnt believe what my GP has told my x husband .

[beverleylouise]

he has told him that my 5 year old son doesnt need to sleep with his monitor on ,so he is now refusing to put it on when he has him at night ,its a good job i didnt take any notice as his alarmed sounded again last night as it does most nights ,this time his o2 levels dropped so low that i had to resus him for the second time this month ,ive got photographic proof when it reached 58% .i have now had to stop overnight contact with his dad as i carnt risk my sons life.im sorry if this is the wrong place to post this but im so mad about this

[Steph57]

Hi Beverly it's ok you will get advice off here. I wouldn't let his dad have my child over night in this situation if he needs a monitor his dad shouldn't put him at risk. Doctors are not consultants that's why there called general practitioners.. Xxx

[TEDTHEBEAR]

So sorry to hear this. Wishing both you and your son all the best.

[libby7827]

This is outrageous Beverley, you need to get back to your incompetent gp as soon as possible with your photo. Libby x

[zube-UK]

It is outrageous, agree with libby, tackle your gp with your photo.

[longlungs]

Why on earth would your gp say such a stupid thing given your son has obvious problems ! Unbelievable! No you cant possibly let your ex have him overnight.Gosh sounds very scary for you Beverleylouise. I too would be jumping up and down.You've come to the right place dont worry about that.You have some serious sorting to do with gp as Libby said.Grrrr! Janexx

[peege]

That's a real shame beverleylouise, I bet you could do with some respite from time to time to. I can see how afraif you'd be to leave your son with his Dad.

Would the GP contact the ex to say he was wrong?

Hoping all is well. xxx

[cofdrop-UK]

What a horrible thing to happen - no wonder you are angry. You are owed an apology.

Love and hugs to you and your Son.

love cx

[phillips1]

Hi Beverley. As a father and grandfather I would say go with your instincts every time. Mums are rarely wrong and your GP should know that. Stay with the monitor. You have nothing to lose by keeping it on but a lot to lose by turning it off. If your ex won't use it then don't let him have the boy to stay.

Bobby xx

[happyfeet59]

Put a complaint in writing to the practice manager. I assume you have been advised by a consultant to monitor your sons o2 levels so include this in your complaint and say you will hold the practice responsible for advice given to your ex if anything happens in the future. I would insist they retract the advice given to your ex and copy you into any letter sent to him advising him to continue monitoring. Your son should not have to miss his visits to his father.

If you are doing self monitoring, not at the request of a consultant, you need to be pro-active. As someone suggested take timed photos of the monitor recording low sats and take them with you to the practice manager. Ask for a consultants appointment and/or a second opinion.. 58% seems very low.

[beverleylouise]

i have sent a letter of complaint asking just that, ive never stopped my son seeing his dad but now his life is put at risk may have to,he is monitored at the request of a consultant

[O2Trees]

Hi beverleylouise, just to add to the posts above, Im sure you know that 88%, some say 90%, is the cut-off point for safe levels of O2 in the blood, and that below this risks organ damage. So 58% is way below, very dangerous as you're aware, so you're taking the right decision.

Good advice re making a complaint to the practice, and maybe it would be useful to get something in writing that you can show to your son's father, and anyone else who might be relevant. All the best to you both.

[kaz67 in reply to O2Trees]

confused about readings for a child with a finger pulse monitor which I have, which monitors the heart aswell as the oxygen level it is an 02 meter aswell with an alarm but even though Ive read the instructions it's not very clear to understand when should I be concerned!?

[O2Trees in reply to kaz67]

Normally a finger pulse monitor will show oxygen saturation and it will read the pulse. You need to ask your doctor about what you should be concerned about, but as above 88% is the cut-off point for adults anyway - i don't know whether its different for a child so you really need to check. Usually you can make an appointment with a different doctor if you are still having trouble with yours. You can call the BLF helpline - click red balloon top right hand of this page for contacts - for advice, really worth doing that. good luck

[Pedros]

Hi Beverley. Did you hear your GP say this to your husband? If not you may need to make enquires before you sound off at him (your GP). Whatever, I agree with everyone else - it just cannot be the correct advice. Stay firm in your resolve to fix this.

Peter.x

[katieoxo60]

Hello Beverlyloiuse, this sounds very strange, I agree with you until this matter is looked into you cannot risk your sons health. Maybe your Xhusband mis understood what he was told, that could be another explanation too. Hope you get it resolved quickly without more worry.

[kaz67]

I would be very worried & how inconsiderate of the GP, I myself would still use a monitor as well if I had one for my son, as he has asthma & is on medication! have had a few scares where I've hardly heard him breath & feels tensed up but when mentioned it to the GP he didn't reply to my question, it was very intimidating, either he didn't hear me or refused to answer, I think it was the first, as he is a good doctor! I say it's best to keep using it you will only be punishing your self if you don't & you don't need the added stress, which type of monitor do you use if you don't mind me asking!?Because I bought one online that said it was for all ages & had to send it back it wasn't for all ages & it only lasts for two years if used correctly it was a mat u put under the mattress it was called the nanny baby monitor, it's not what it was called online though, it was called apnoea cessation of breathing monitor, ,I must say it's very hard to get much sleep at all! I still haven't found one yet, looked online again on a site called Aremco that deals with all kinds of monitors but they cost far too much hundreds of pounds, am at a loss at the moment, what would you recommend!? Anyway I really do hope your son gets better very soon, it is very serious what your going through I wish doctors would take more notice of us all! Feel free to get in contact if you wish to!x,

[kaz67]

Thank you for replying 02 Trees to the question I asked! I will do what you have suggested, your right I'm sure it's a bit different for a child but I will find out anyway, have a good day with many more to come!

[beverleylouise]

thanks kaz67 im using what they call a pulseox monitior i think its provided by the hospital.i no how you feel with the lack of sleep im often up all night then have to go to work all day. its so hard when the doc takes no notice of you ,my gp just says the monitor is wrong or faulty its been checked twice since christmas,iv over 50 photos and 3 videos of this happening but still takes no notice, ive now changed doctors hope this works .the advice i can give is keep pestering and try the district nurses at the local hospital they have been so much help to me checking my monitors ,one even came round friday with a new one ,so much for my gp saying he doesnt need one