Scan.

[Mavary]

My Husband is going for a scan this afternoon. Maybe when we hear the results it will be better news. He has IPF with a bad prognosis. Hope you all have a good day. It's bad news that Berwick is not well. We will miss him.

[Toci]

Hi Mavery, good luck to you and to your husband in getting better results today. xx

[Mavary]

Hi Toci. I keep thinking maybe they are wrong but in my heart of hearts I know they aren't. Anyway you have a good day and thanks for your comment.

[Hidden]

Good Luck Mavarey - will be thinking of you and your husband. Take good care, with love TAD xx

[Mavary in reply to Hidden]

Thanks Tad. We certainly do need your wishes.

[Hidden]

Good luck with the scan Mavary

[Mavary in reply to Hidden]

Thanks Berwick. You look after yourself.

[Hidden]

Oh Mavary,my heart goes out to you,do hope that you may be pleasantly surprised,we will all be thinking of you& your husband,such a hard time for you both,xxx

[Mavary in reply to Hidden]

Thank you Wendells. I hope we will.

[BugsBunny]

Hi Mavary.

Please remember that the doctors are only human even though some of them think they are mini gods. So when they spout their doom and gloom prognosis I suggest you only listen with half an ear. Lots of people live longer than the doctors suggest and there is no reason why your husband shouldn't be one of them. I hope you get good news from the scan.

Kind Regards

Mandy

[Mavary in reply to BugsBunny]

Thanks Mandy I am hoping you are right. I have read so many times that people go on a lot longer than they have been told. The reason he has a bad prognosis is that he has worsened this year.

[Mavary]

Thank you stitch.

[Hidden]

Keeping fingers crossed for you both this afternoon.

Best wishes BC

[Mavary in reply to Hidden]

Thanks Blakey. I have got everything crossed. It is so nice to have someone in our corner.

[longlungs]

Hi Marvary will defo be thinking of you this afternoon, and whatever is said you still have each other to laugh and cry with.You are a positive person and im sure hubby is Marvary.I think there are lots of us that the docs have given us time limits and we have gone decades past that So keep on trucking everyone here will be supporting in anyway we are able..,Takecare see you soon. Janexx

[Mavary in reply to longlungs]

Hi Jane. Thank you, we have been now and won't know anything until they let us know or send for us. I appreciate all the kind thoughts we have had.

[Hidden]

Marvary - Iwill be thinking of you both, and hope things will get better. Have faith in the medical staff -they aren't all bad otherwise they wouldn't be in practice. Big hugs, Anieseedxx

[Mavary]

Thanks annieseed. I could do with lots of hugs. You are very kind.

[appyalison]

Good luck Mavary, thinking of you. Alison

[Baldie]

I've learned to just listen politely to the doctors prognosis. They gave me two years without a transplant six years ago. I haven't had transplant but I'm still here. Like your husband I have IPF I have found i can live around it I am on 4 LPM 24/7 but still manage to get out it just needs a bit of pre planning but thats okay. Good luck and remember just listen and be aware nothing is written in stone and try not to dwell on things.

[Mavary in reply to Baldie]

Hi Baldie. People like you give us hope. I think all this Palliative care nurses and Hospice worries us. Did you have all that. Don't get me wrong. It is nice to know they are there but it makes you think more about it. How did you know when you needed oxygen at night? My Husbands breathing is very fast and I did wonder if he needed it for then. He is ok while he is sat down though.

[Baldie in reply to Mavary]

I've avoided most discussions about Palliative care and such by postponing them, to pessimistic by far. Although I have recently made my wishes, re amount of medical intervention at the end I want, with my community nurse who has been very positive and helpful.

As to oxygen at night I started using it when I woke with quite severe chest pains which seem to go when I had been connected for the day so it was fairly obvious what the solution was. I started with 2 LPM , when I had been on for a while my consultant wanted me to wear a finger thingy, technical term, for the night to see how I was doing at night and said I should increase to 4 LPM which I must say makes for a slightly more comfortable night.

The only down side of the oxygen is if you want to stay away over night. No spontaneity allowed here anymore because the suppliers need 2 weeks notice to arrange a supply. But the system works and thus far has been seamless.

For instance we're of to a murder mystery weekend in December every thing is booked oxygen arranged so, bring on the bodies.

[Hidden in reply to Baldie]

Hi Baldie, Went on holiday in the summer and the oxygen couldn't be provided on the day we wanted so we took it with us with their approval. Took the small concentrator we use upstairs and some 400's for out and about. Worked quite well. Popplewell

[Mavary in reply to Baldie]

Hi Baldie. I have just looked up the meaning of Palliative care. I thought that is what it meant. I can see why you avoid it. We will the same. We used to go away a lot. I think we had seven weeks holiday this year. I don't think we will be doing that again. We went on a cruise the beginning of the year along the Amalfi Coast. We went to Pompei and thought we were going to have a helicopter or ambulance to take my Husband to hospital. He did eventually make it back to our taxi but it was pretty scary. It was quite a while after that he was given oxygen. If he had an earlier appointment with the Specialist rather than a year we may not have gone. Anyway enough of our troubles you have a lovely holiday in December and think of us stuck here when you do.

[Baldie]

Hi Popplewell. Bad luck with oxygen supply, I've managed to get away 4 times in the last year and each time without a hitch. Who's your supplier?. Baldy