How are you Sweething12?

[laig]

We haven't heard from you to-day and I wondered how you were coping?

Gail

[Gidge]

Thinking of you Sweetthing.........

Gill

[Hidden]

Hope you are ok sweetthing xxx

[Hidden]

Hi and thank you for caring.

Another terrible night, up all night with hubby, the antibiotics have still not kicked in, the respiratory nurse came again last night on her way home, his sats are in the acceptable level, so even if he was back in hospital he would be sent home again. He is using his nebulisers as he should be, I am literally shoving it on his face, I am giving him his tablets and water to make sure he takes them. I am now giving him a bed-bath and cleaning his teeth as he cannot lift his arms up, he has not eaten since he came out of hospital on Tuesday afternoon, I keep making meals that are easy to get down, puddings, soups, eggs etc. but he won't touch them. The respiratory team are coming back on Monday and our Matron will be back from her holidays so I will be ringing her. Thank god for the chemical toilet.

If it wasn't for the fact that his sats are between the specialists acceptable level, 85/88% when resting then I would think he was dying as he is just lying there. We have no back up at all this week-end apart from the GP's deputising service, I have been told to call an ambulance if he gets worse but if his sats are classed as normal they won't take him in.

If I could just get some food inside him that would help but the dietician says she won't prescribe nutritional drinks for him as it will curb his appetite for normal food, but he needs something to get his appetite working. The respiratory nurse says to tell the Matron on Monday and she will prescribe some for him. By that time it will be nearly 6 days without food. My son is coming today and my husband says he would like some fish shop chips so he is bringing him some but he has said this all week that he fancies something then when I make it he won't eat it.

I will keep you informed. He is asleep at the minute so just going to check on him. I think he should be on a drip as I think he is dehydrated and also should be put on IV antibiotics. But all the hospital go by are his oxygen sats, if they are within the acceptable level they class him as being well it is ridiculous.

[laig]

I'm so sorry things are no better. I am surprised that the district nurses aren't coming in .It doesn't look like you are getting the support you should be getting.

Is there any chance that you could get out for a break while your son is there ?

Love Gail

[Pepsicoley]

Hi Sweetthing

There is nothing more that you can do. You are doing everything possible for your husband - you are an absolute star sweetie.

I hope things improve soon for you.

Take a break when you can.

Love and hugs

Annec

xxxxx

[sassy59]

The hospital needs to get its act together sweetthing. When Pete is in hospital his sats are also generally good but he is not just sent home like your poor hubby. I feel he should still be in hospital being rehydrated and fed and not sent home until he is actually doing better. You need all the help and support you can get. Maybe your sons could speak with a doctor or phone an ambulance and have a word in someone's ear on your behalf.

I do wish you well and hope things improve very soon. xxx

[knitter]

You must be absolutely exhausted, especially as your are ill as well....you are doing everything you can for your husband.

But I thought the NHS had a duty of care, I cannot understand the hospital only relying on his SATS , I know mine can be within the acceptable level but I am still struggling to breathe.

I think the McMillan nurses deal only with people with cancer, but I wonder if it would be an idea to ask their advice on where to get help.

Just make as much fuss as you can, you have the right.

[Hidden]

So sorry to hear things are no better. Try to get rest when you can. No one could be doing more than you are. Take care lots of love tad x x

[Hidden]

I am not understanding the dietitician. Surely, husband will need weaning onto normal food with nutritious drinks but it seems to be the less he eats, the weaker he will get. I wish I could help sweetthing, but how does your husband feel about accepting help of any sort.

I really hope that something happen in your favour sweetthing, soon. Love anniseed x

[thatcham1939]

what does the medical people are doing, you should have a district nurse coming for to blanket bath, I know he did discharged himself but you are not well enough to look after him. I had a lady of 99yrs old and her daughter was looking after her, but she was unwell herself, so I called the doctor in and said if you don't take the old lady into hospital, you will have two people in hospital, and two patients is dearer than one.

I often think of you and wish you better.

love jan

[KingoftheCocktails]

Take care sweetthing

Richard xxx

[undine]

Hi sweetthing just to say I notice your comment is all about your husband and his health and the only time you mention yourself it is relation to him and what you have to do for him, and this unfortunately seems to be the root of your problem - it is as if you have no identity outside of that of your husbands or at least yourself in relationship with him and his illness, it is as if you are subsumed by him - but we know that is not true, I think people would really like to know how you are - in yourself - we can guess from his continuing behaviour but you do not mention if, instead of phoning around etc. for him, you have made any phone calls for yourself in seeking help as some people advised before - you seem to be going round in circles with him and we can all tell this is not doing you any good mentally, emotionally nor I would guess physically - I think that is why people like Laig are showing their concern when we do not hear from you. Please take some time for yourself to decide what you want from now on and then start the process of getting some help to help you achieve your goals - you are not alone - as you see you have a lot of friends here willing to help - good luck and take care xxx