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Coming to terms with the progression of lung dis-ease......

hufferpuffer profile image
21 Replies

I'm so glad I found this to read this evening, perhaps some of you know I recently began oxygen treatment after more than twenty years of Emph/Bronch, and I have been going through a rollercoaster of feelings about it, not least because my good man is coming home after three weeks away at sea and is feeling upset about my need for oxy....I feel shy about him seeing me wearing a cannula, my nose feels dry and sore and blocked,could it be the oxygen or the effects of a lady sneezing all over me when I went for some retail therapy after the CT scan on Tuesday...well I just don't know! My back is still not very good after carrying those heavy bottles around,I can't tell you how relieved I am to be getting a portable concentrator ( I think ) next week....I have started to paint again...if you don't hear much from me for the next few weeks I am probably just tied up! Here's the link for all oxy virgins!

healthoxygen.com/blog/five-...

Love Carolhufferpuffer! who is painting Charlie Parker.

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hufferpuffer profile image
hufferpuffer
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21 Replies

Dry sore nose. Definitely oxygen related. KY jelly is recommended as it is water based and is therefore not flammeable. Sorry having trouble typing on phone but hope that helps a bit.

hufferpuffer profile image
hufferpuffer in reply to

Thank you Alwayssmiling I will get some! x

limbobimbo profile image
limbobimbo in reply to

Hi Alwayssmiling may I pick your brain as you've helped me in the past. I know you're on 15lpm oxygen can you tell me how long you've been on that amount and more importantly how quickly did you get to that stage I'm panicking in case I'll be confined to my house.

Thanks in anticipation Liz xx

RichardAT profile image
RichardAT

Hi Carol, the dry nose will be due to the nasal cannula and the O2; I have the same problem. The painting that you are doing looks absolutely excellent! Take care, Richard.

raptor profile image
raptor

While i myself dont use oxtgen at the moment,,it is on the cards in the future..I just hope that i will have,, the strenth and dignity and good humor,,that all you oxy users have on this site :)

libbygood profile image
libbygood

My nose is continually sore and my sinuses block up alot. I use Stenimar salt spray every morning and then gently blow, if I blow too hard I get a nose bleed. I will try some KY jelly.

Lib x

peege profile image
peege

Is that you painting Huffer? WOW!!

hufferpuffer profile image
hufferpuffer in reply topeege

Thank you Peeg and Richard and Sassy, I am painting all of my mans favourite jazz players, I've done Django,Theolonius Monk, and Mingus so far..

peege profile image
peege in reply tohufferpuffer

This one looks amazing, what a gift you have Huffer

weeannie60 profile image
weeannie60

hi im just new to oxygen and my gp gave me aquagel which is just like ky jelly and it is helping the dryness in my nose hope this helps you anna xxx

libbygood profile image
libbygood

I have told my resp nurse about my sore nose and she never mentioned aquagel, I will ask my GP next time I see him.

Lib x

Mocarey profile image
Mocarey

The answer is definitely kyjelly.

Healthy oxygen are wonderful. nothing is too much trouble for them!

Hope your new portable machine makes the world of difference to you.

It is so difficult coming to terms with wearing oxygen all the time but I am glad we are able to get out and about with the portable ones. I remember my poor grandad being stuck in bed for year with massive oxygen tanks by his side. so I count my blessings. M

janie62 profile image
janie62

I don't know if this may be of help, but I wear masks around the house and garden, I am on 2Lof o2 . You can get the masks from your local chemist with a prescription from your GP or just go into your chemist if they know you well and ask for some, tell them the level of oxygen you are on so that you get the correct mask for the amount of o2 that you use. I use the cannula when I go out shopping or visiting friends, as I suffer with blocked sinus and have to nasal wash outs daily, bit sore, to start with, but really clears out the gunk, which incidentally, can and does go onto your chest. I have a portable o2 concentrator which I had to buy as they were not available from the o2 supplier I used to be with, although your GP can prescribe smaller cylinders that last about 3 hours, these are usually got from your chemist who should have a bag to put them in, so that you can carry on your back as a backpack or just carry by the handle on top of it, also there is a special trolley that these cylinders fit into and can be bought online. I forget the name of the company who sells them, will find out and come back, they are quite expensive, about £64 but you can claim the v.a.t. back , they are made of iron and will last forever lol,. hope this has been of some help to you. good luck and healing wishes to yu all , Janie xxxxxxx

hufferpuffer profile image
hufferpuffer

Thank you everyone for your wonderful helpfull replies! you are all so very wise and kind,I realy don't know what I'd do without you, I am so grateful to all of you! hugggsssss! xxxx

Puffthemagicdragon profile image
Puffthemagicdragon

Don't feel shy about wearing a cannula. It becomes normal after a few days and I doubt your partner will take any notice.

sassy59 profile image
sassy59

What a great talent you have hufferpuffer. Enjoy your time being tied up!!! Good for you. xx

Spritz profile image
Spritz

Hi Hufferpuffer. My lovely husband totally ignores the oxygen tube: he feels it's just another aspect of me! I'm fortunate in that I don't seem to suffer with dry nostrils (oh dear, I feel a 'tempting fate' moment coming on, lol!)

As regards the portable oxygen cylinders, my supplier gave me a backpack to carry one in and now I can no longer carry anything, they have given me a little trolley to put one in. When I went away for 10 days, my prescription was given to the suppliers in those areas and I got the same from them!

Your painting is great, Carolhufferpuffer! I have grand ideas of being good at drawing and painting but sadly in the time it takes for the idea to get from my imagination to my hands, something seems to happen to the signal.......... =(

Enjoy your reunion

Jude xx

elian profile image
elian

Don't worry Carol :) all will be well ! I'm sure your loved one won't even notice, he'll be so glad to see you again.

I had the same problems as you with the sore nose when I first started oxygen therapy (thankfully I no longer need it now) and can highly recommend a product from a company called Hope2Sleep. It's CPAP moisturer cream and is completely petroleum free. It's not cheap at £7 for a small tube, but you only need the tiniest amount just inside each nostril and it certainly does the trick, or at least it did for me.

Their website is hope2sleep.co.uk

I am truly in awe of your artistic talent, the Charlie Parker one is sooooooo true to life :) I have problems drawing stick people for my grand-daughters :( lol

wellman2 profile image
wellman2

Great painting Carol , would like to see any others you would be willing to share.

hufferpuffer profile image
hufferpuffer in reply towellman2

Thank you wellman, I would love to, I'm enjoying all these lovely comments! I will post another blog for you! :)

dime profile image
dime

Hi I have a really sore nose due to oxygen 8 litres a minute 5 when resting.My nose gets completely blocked with huge dried blood clots. It is horrible !!! I use K jelly and Stermat spray . What does help is using an oxy arm rather than a cannula up your nose.You can only use it when you are sitting reading or watching tv as when you move the oxy arm moves usually up to your forehead or in your eye etc !!!!!! It does give your nose a badly needed break !!Any other suggestions ??? From Dime

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