Diagnosed Nov 2023: Hi all. My name is... - Asthma Community ...

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Diagnosed Nov 2023

whufcleept profile image
45 Replies

Hi all. My name is Lee Jolly I am reaching out to others who have asthma of any kind, and are very fit and active. I decided to join this community on recommendation from my GP as a hub to speak to others with the same condition as me, and show that even though asthma is a chronic condition, you can lead a full healthy life and still do all the things you dreamed of. If anything I also joined to say hello and to speak to people who are newly diagnosed and struggling to come to terms with their condition, if you want to chat I'm always here.

Best wishes fellow asthma sufferers.

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whufcleept
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45 Replies
janedivney profile image
janedivney

Welcome to this friendly forum, Lee. I hope you can continue to be fit & active, and that your asthma stays very mild 😊

whufcleept profile image
whufcleept in reply tojanedivney

I appreciate that thank you janedivney. Cheers for the reply. Kind regards Lee.

Homely2 profile image
Homely2Administrator

Welcome to this forum. There are lots of different types of people here.

The thing you will notice is how different asthma is for people, it effects us all in varying ways.

For me I was never very fit and active, but I did stagger around mountain marathons, and was a leader for my mountaineering club, so had endurance.

The thing I have learnt is that I can still fulfil my dreams, but I have to adjust how I approach things and be prepared to retreat to have another go at later date. Asthma for me, is one of the first things that I have encountered that you cannot beat by just pushing through it.

whufcleept profile image
whufcleept in reply toHomely2

Thank you Homely2. That's amazing I love all the hiking, and mountaineering stuff, always wanted to do the three peaks. It's a huge accomplishment when you can climb mountains still with such a debilitating condition. Just shows it can be done, diet plays a big part in managing asthma as well, I tend to eat a lot of nuts, fruit and foods that help with the inflammatory side of things, I do around 300k steps a week and keep myself fit in the gym, and I train people also and just keep powering through it, I am fortunate it was only mild but I've been really active with football, karate and ice skating all my life I probably managed it well without medication up till last year, I got a huge chest infection and went into hospital three times in the ICU, it was scary times for sure but I've now got to crack on with it, I have never let anything get me down in life, I just get on with it now. I have regular check ups with my asthma nurse and she is really happy with me, so it's being managed well at the moment, I suspect I suffered with it all my life but I put it down to anxiety, I didn't know I had it, I was premature by 8 weeks, and I had a big ol set of lungs and they needed treating in the womb while my mother was having me to open them up a bit, this probably didn't help as was probably a reason why I developed it later in life, but it's interesting to hear different people's stories, thanks for the reply best wishes ;-)

Patk1 profile image
Patk1

Welcome to the forum Lee.youll meet many people with varying levels+ types of asthma and other lung diseases.not everyone with asthma is able to maintain fitness and follow their dreams unfortunately.its gd that,at this point, you can

whufcleept profile image
whufcleept in reply toPatk1

Thanks for the reply, Patk1. Fully aware of the bad side of asthma, my best friend died not too long ago with brittle asthma, I really miss her I know first hand how it affects some people. No offence meant with my comment.

Patk1 profile image
Patk1 in reply towhufcleept

I'm sad to read u lost yr friend.my sons friend lost their 18yo daughter to asthma.no offence taken at all.ive severe asthma+ many other lung diseases.i used to go gym,swim,line dance,wLk miles up til about 12/13 yrs ago+ miss it all.i do think it's important to keep moving + mobile to within yr limitations.i didn't know if u were aware of those limitations some people have. X

whufcleept profile image
whufcleept in reply toPatk1

Of course I don't like to blow my own trumpet but I'm an exercise referral specialist and a fitness coach with specialisations in strength & conditioning. I am aware of quite a lot of lung diseases and how they affect people differently. Thanks for your kind message it's tough sometimes life, I couldn't believe how sudden it was but brittle asthma is very severe and fatal it's pot luck x

elanaoali profile image
elanaoali

Welcome to this forum and yes we are friendly and we don't bite. I have had asthma for 19 yrs but it go much worse in 2015. I got double pneumonia 14 months ago and was hospitalised. However last year I managed to complete an open water swimming race of 1.9km. I was amazed I did this and raised money for charity. I swim three times a week, pilates twice a week and aqua fit. My peak flow is much higher than it should be instead of 400 its 500.

Hoping this year to do more open water swimming. So having asthma is a pain sometimes but you can have a good quality of life. Keep taking your inhalers every day.

whufcleept profile image
whufcleept in reply toelanaoali

Hiya elanaoali, I had pneumonia twice too they couldn't figure out what it was if it was asthma at all, they were talking about COPD and all the nasty things like cancer, they had to rule out so it took me a long time to be diagnosed. I blew 800 on the peak flow between hospital visits, between flare ups so they were perplexed as to what it was. I was laying there in ICU so thought I had something really serious, they tested me for absolutely everything and did an echocardiogram to check the heart and didn't find anything wrong. I spoke to a lung specialist and she told me it's been undetected since birth so it's extremely mild. I do however take my pink inhaler twice a day, I am on fostair it sorts me right out. I don't use the blue one hardly ever. Before I took my meds I was croaking like an old man, snoring loudly, got chest infections one after the other (three in a year). Since November 2023, I've been doing absolutely fine so I hope it continues (fingers crossed) I keep active, I eat well, swimming and aqua exercise is excellent they've found to be very effective when having asthma. Glad you're OK and your peak flow is perfectly fine. Before I was treated my peak flow was around 200-300 so very low, but normal is around 500 I was told but everyone is different. I get 750-800 now most mornings so very high, but I have been extremely fit since a young lad so that's helped.

runcyclexcski profile image
runcyclexcski in reply towhufcleept

>>>. I blew 800 on the peak flow between hospital visits, between flare ups so they were perplexed as to what it was.

My "normal" peak flow is 850, and I feel sick when it falls under 750, whereas my "predicted" normal value is 600. It took a year to get the asthma diagnosis and to convince them to put me on biologics. The key for them was to show variability of peak flow and spirometery, not the absolute value, and I also have to stay off steroids and rescue inhalers before testing. But it is still difficult with doctors who have never seen an 850 peak flow before and just dismiss it as "impossible".

In the past, I used to do competitive endurance sports like nordic skiing, ultra trail running, mountaineering and cycling, but I mostly stopped after I got asthma. They key is not to drop the medications when one feels better: asthma is for life. The fact that I have big lungs helped with the sports, I think (when I did not have asthma, I could just go forever). But it also makes it much harder to get treatment.

I am really amazed that you survived peak flows of 200-300 while having a normal of 800......

whufcleept profile image
whufcleept in reply toruncyclexcski

So am I buddy, it wasn't no picnic I was in ICU for 8 days. Ran more tests on me than I ever thought possible. Glad to be still here to tell the tale. ;-)

pink123floyd profile image
pink123floyd in reply towhufcleept

Welcome Whulcleept all the figures every one has makes me feel some thing wrong ,my peak flow has always been 250 and only hit 325 once in 24yrs i have savere asthma,although i do have quite a few other lung problems and had covid in oct which has left me with a bug ( lab discription)😏 not mine on my lungs as well now.

whufcleept profile image
whufcleept in reply topink123floyd

Really sorry to hear about your COVID diagnosis, just to be clear everyone's peak flow is different, so what's low for me might not be low for you, check your O2 stats on a finger pulse meter and make sure your 02 stats are (over 95) and keep an eye on your pulse rate too (below 90 is ideal) get yourself a peak flow meter on Amazon they are only cheap and do regular peak flow readings once before medication and once after and see the difference the 250-325 could be fine for you that might be your "normal" range. Some people have a big lung capacity and others don't. I have been super fit all my life so my lung capacity would be at the very top end due to my being a P.T and a exercise referral specialist. I did a lot of V02 training to improve my lung capacity over the years. With peak flow it's not a one a one size fits, all, I blew 200-300 when I was ill, so that's dangerously low for me, as I am now blowing around 700-800 on a good day. Seeing as I am not a doctor I would suggest speaking to your GP or asthma nurse if you are confused or worried, you might benefit from a lung function test to get an idea about your total lung capacity, it's worth looking into. I had one between hospital stays and they were brilliant they explained everything to me. Asked loads of questions because I was worried. I am glad you're OK now, thank you for the reply. Take care pink123floyd love the name. Good luck.

Lysistrata profile image
LysistrataAdministratorCommunity Ambassador in reply towhufcleept

Hi Lee, appreciate the advice is well meant but just wanted to say pulse oximeters aren't generally recommended for people with asthma to use at home for monitoring their asthma.

People with asthma can be quite ill with apparently good oxygen levels, so it isn't necessarily helpful to monitor them and can provide a false sense of security if the number looks good but they should be getting help right now.

Obviously if someone has been advised by an asthma or other specialist to do it that's different, or if they have another condition that does need O2 monitoring. But for most people with asthma it's not needed or useful.

This post from the ALUK nurses and doctor has more information if it's helpful healthunlocked.com/asthmalu...

Good point for anyone reading re peak flow though. As you say people do vary, and it's important for everyone to learn their own best and what their peak flow does when they're unwell.

As you say pulse does go up with asthma flares too (not just the medications) - not always recognised I find even though it's in guidelines!

whufcleept profile image
whufcleept in reply toLysistrata

Hi Lysistrata

My asthma nurse tells me to check mine all the time it could be just me though. She believes they are an important indicator to make sure the body is getting enough oxygen, yes you're right it doesn't always show you can have good readings if your asthmatic, and it's not a diagnosis tool by any means, but when oxygen levels get down to dangerous levels the body needs help and sometimes you won't know until you're seriously in trouble, i,e when its dangerously low until you get major symptoms like blue lips and racing heart, mine plummeted when I was diagnosed it was one of the things I reached for and the score prompted me to get help it also probably saved my life (I must add I wasn't telling the other poster pink123floyd) to rely fully on a pulse meter) I said speak to her GP if she is confused or worried. In my case I went down to 85 on the pulse meter when I was short of breath before I was diagnosed this helped me seek help. I find mine very useful, as if it falls to a certain level I know trouble is around the corner. I should have explained better that a pulse meter won't diagnose your asthma, but used in conjunction with peak flow and advice from a consultant or GP helps. My pulse rocketed up to 120 when I had an attack. I believe they are really handy to have even if you're not using it for those reasons, everything is connected the heart and the lungs, and when one is in trouble you get signs from Oximeters but respect your view fully. I was hooked up to a pulse meter when I stayed in hospital to monitor those things too so I guess it does have some bearing on overall health even if it's not for asthmatics. (which I am)

Lysistrata profile image
LysistrataAdministratorCommunity Ambassador in reply towhufcleept

Hi Lee - I appreciate it may have been helpful to you and you weren't suggesting to rely just on that. I also know it's not about diagnosis.

But I still wanted to emphasise for anyone reading why routine monitoring of oxygen sats at home isn't usually recommended in asthma unless it's been suggested by a specialist. Not everyone will ask their GP or asthma nurse even though they should, but anyone can buy a sats monitor and use it without telling anyone or understanding why it can be dangerous to be relying on those 'good' levels during an attack when everything is not good.

This isn't my personal view, it's advice from healthcare professionals at ALUK (see the link I posted) and is in asthma guidelines.

Hospital monitoring is different as yes they are just going to be keeping an eye on levels generally. Plus there are healthcare professionals there obviously so you can get treatment right away if your asthma is getting worse with or without a drop in oxygen sats, (or if something else besides asthma is making your sats drop). That's why I said home monitoring specifically isn't recommended. Plus yes I agree it can be useful for other things and they will want to know what it is in hospital - just wanted to make it clear re asthma.

As I acknowledged, individual cases might be different but anyone with asthma reading this post should know the full story on how and why they're not recommended for use at home for asthma without medical guidance, which is why I replied.

whufcleept profile image
whufcleept in reply toLysistrata

I understand. I should have explained I used mine to monitor the severity of an attack not a diagnosis tool. I think radial blood gases give a more accurate picture in the healthcare setting, they are more reliable.

Lysistrata profile image
LysistrataAdministratorCommunity Ambassador in reply towhufcleept

Sorry for any confusion but I've actually been saying they're not recommended for people at home for monitoring an attack either. Sats levels in asthma don't necessarily drop even in an attack. If and when they do it can be long after someone should be in hospital.

That's what the link I shared is saying about why they shouldn't be used at home in asthma.

Even healthcare professionals can at times over-rely on sats. I and others with severe asthma have encountered that. We're told we aren't having an asthma attack because of good sats, even with many other indicators that we are.

I agree blood gases are probably more accurate, though not really accessible outside hospital (eg GP, out of hours, paramedics). (And blood gasses also need to be interpreted properly and in context - eg the O2 levels will likely be absolutely great.or at least normal if the sample was taken while someone was on an oxygen-driven nebuliser, but what does everything else say?)

whufcleept profile image
whufcleept in reply toLysistrata

asthmaandlung.org.uk/sympto... this is the page my nurse sent me.

Lysistrata profile image
LysistrataAdministratorCommunity Ambassador in reply towhufcleept

Hmm I can see the confusion. I'll flag that with the nurses on the ALUK team. It doesn't explicitly recommend home sats monitoring for asthma, but as the page is for lung conditions in general, it doesn't really explain that home monitoring isn't appropriate for all of them or why. Though it does say to speak to a healthcare professional before you do. Which people should, but I'd still be worried not everyone will when they can buy a monitor anywhere without medical input.

That page also doesn't discuss how or why you can have good oxygen levels during an asthma attack - this link I shared before goes into more detail.

healthunlocked.com/asthmalu...

As I said I'll flag it and see what they say.

whufcleept profile image
whufcleept in reply toLysistrata

Great if it helps someone else it was worthwhile having this conversation. Glad to have made you aware of information floating about. Thanks for listening Lysistrata. Hope you are enjoying the new year best wishes :-)

Lysistrata profile image
LysistrataAdministratorCommunity Ambassador in reply towhufcleept

Thanks Lee - and a belated welcome to the forum!

Patk1 profile image
Patk1 in reply towhufcleept

Yes oxometer readings (sats) along with peak flow are all gd diagnostic monitoring tools at home + in hospital. If Yr Airways are seriously constricted,air is too.gives dr a gd insight in emergency,along with hr and gd records to monitor for asthma nurse/ dr.even paramedics for them immediately too and monitor them during 999 event

whufcleept profile image
whufcleept in reply toPatk1

Yes Patk1, honestly that's what I thought, I find it awfully strange how some people with asthma don't get low sp02 readings, and am perplexed how with some people that the sp02 remains high sometimes even 98/99 during an attack, the lungs are all about air and every time I have had an attack my sp02 readings were all over the place and fell to 89/90 and I was even asked for these readings or if I had taken them all the time even on arrival to hospital 🏥 even in hospital they had been a major factor in my overall monitoring by doctors it is usually the first thing they check in resus/initial assessment. According to administrator on here though you can actually have very high readings even during a major attack, I find that hard to believe surely sp02 is affected in some way but apparently not. It is for me (definitely weird if you ask me) x

pink123floyd profile image
pink123floyd in reply towhufcleept

Thank you for the reply ,glad you like the name .take care.x

Lysistrata profile image
LysistrataAdministratorCommunity Ambassador in reply topink123floyd

Peak flow is personal to you though - and is strongly influenced by age, sex, and height. It looks like the people here with the stellar peak flows are mostly men and (I peeked at your profile sorry!) also younger. They are always going to have much higher peak flows especially as they are quite likely taller than you as well, because on average men are taller.

Having said that there are other things which can affect best peak flow but those include being sporty which several people have mentioned too. Plus a lot of singing or playing a brass or wind instrument can push your best up too.

High or low best peak flow in itself isn't necessarily an issue either. I'm a woman in my 30s and my best is 630, predicted 450. It's high probably because I played the oboe for years. I still have severe asthma that isn't well controlled and it doesn't really help me much to have such a high best. In fact it's annoying because I get told everything is fine when it isn't if they go off predicted.

Meanwhile a friend of a friend has a lower best than predicted but she doesn't actually have asthma or any respiratory problems at all.

whufcleept profile image
whufcleept in reply toLysistrata

Exactly there are a lot of factors, I'm only 5ft and my peak flow is higher than a man that is 6ft 3 even my consultant had to look at the readings twice, she said I had a better set of lungs than someone who is not asthmatic. I guess at the end of the day it's not a one size fits all, everyone is different. I'm a shorty but I got a pair of lungs on me, lol I guess it's a good job I have really due to the asthma being mild at the moment, who knows it could all go pear shaped when I get older.

runcyclexcski profile image
runcyclexcski in reply towhufcleept

With your height, weight and lung capacity you would make a stellar cycling climber!

whufcleept profile image
whufcleept in reply toruncyclexcski

👍😂 My GP said something along the same lines, the old eyebrows raised and she said blimey not seen that score in a long time. This is why they didn't think I had anything wrong, but then I had another two visits to hospital and they looked a bit harder and tried me on the meds, and I improved really quickly. They got a specialist down to see me and no word of a lie, there were at least 20 people looking at different aspects of my health, from blood, to x-ray, to CT-scans to echocardiogram to check my heart as well. I got a full MOT lol

runcyclexcski profile image
runcyclexcski in reply towhufcleept

***They got a specialist down to see me and no word of a lie, there were at least 20 people looking at different aspects of my health

:) Sounds familiar! All I know is that I improve on prednisone and albuterol, that I have high IgE and Eos, and that I have "variable" lung function.

I once had a really bad attack and was asking for prednisone at my A&E. The young doctor said that I was two sigmas above the norm, that he did not believe I had asthma, and thus no pred for me. I then noted to him that he himself, when he got accepted to his med school, was selected from 100 applicants, and thus should be familiar with what 2 sigmas from the "norm" feels like. I had my pred prescription next minute.

whufcleept profile image
whufcleept in reply toruncyclexcski

They treated me mainly on Prednisone for the inflammation, antibiotics because of the buildup of germs in my lungs at the time (was found to be rhinovirus) that set me off into a full blown attack. Final lot of medication was indeed the fostair and the albuterol (now salamol) blue inhaler but since I left hospital in Nov 23 I've only needed the Pink Fostair one x2 in the morning and x2 at night, I'm good to go.

###I once had a really bad attack and was asking for prednisone at my A&E. The young doctor said that I was two sigmas above the norm, that he did not believe I had asthma, and thus no pred for me. I then noted to him that he himself, when he got accepted to his med school, was selected from 100 applicants, and thus should be familiar with what 2 sigmas from the "norm" feels like. I had my pred prescription next minute.

This is bloody downright stupid if you're a doctor making assumptions about whether or not you had asthma. Further study should have been done regardless, sounds very careless and could have been very dangerous for you, pleased you put him right. I doubt he'll make that mistake again.

pink123floyd profile image
pink123floyd in reply toLysistrata

Thank you for explaining that and your reply .take care.x

Allbranuser profile image
Allbranuser in reply towhufcleept

Hi Your post has caused me to reflect. I too was suffering from chest infections on and off for 25 years, after two lots of chest infections over a short duration ( steroids both times) a young locum doctor thought I was a newly minted asthma patient ( 10 years ago). Had spirometry etc which must have indicated asthma although could blow 800 peak. Started qvar 100 then fostair 100, was doing fine for years. Covid then whooping cough have spoiled the success. Still blow 750 peak but more breathless than before.

Gave up the fags 35 years ago. So pleased you are well on fostair but remain alert and have your asthma nurse ready to help. It can all change very quickly.

whufcleept profile image
whufcleept in reply toAllbranuser

COVID has been a right nightmare for a lot of asthma sufferers, it's such a horrible thing as it's really dangerous in people with respiratory problems. I had whooping cough and croup as a child and I was premature born so that's probably not done me any favours. I have a very good support system in place at the moment, and I have only yearly checkups due to it being very well controlled, I never miss my fostair I take it daily without fail, sometimes I forget sometimes in the morning as my breathing is excellent thank god. I spent three times in hospital three visits 8 days each, and was in ICU on loads of oxygen but recovered. Asthma is part of my life now like it or not, but there's a lot of people worse off, it could be worse.

Thank you for the reply allbranuser

elanaoali profile image
elanaoali in reply towhufcleept

Hi whfcleept

I think my asthma was triggered by the extension on my house when my youngest was a toddler. As a child I was known by my family as the home for homeless germs. I know asthma can be genetic but neither of my parents or siblings have asthma. My father's side of my family have no history either. However as my mum is adopted the medical history on her side is non existent. I do have a daughter who developed asthma at the age of 19 yrs old.

I have been very blessed not to get too ill last year except for covid last October. When I had pneumonia I had had cold then chest infection.

Looking forward to a healthy new year. I set a challenge for myself to do more open water swimming.

whufcleept profile image
whufcleept in reply toelanaoali

Hiya elanaoali

Yeah it can be caused by many things and even though it doesn't always run in families (it certainly doesn't run in my family) I suspect mine was to do with the fact I was 8 weeks premature, I recall my mum telling me when I was younger about my birth and she said the doctors needed to inject her through the womb to sort my lungs out because they were not developed properly but they managed to sort it out before I was born, as a kid I just brushed this off as if oh well it must have worked otherwise I wouldn't be here lol. I would 100% put money on that being my issue of how it arose at a later age. I've always been fine, never had any issues at all up till I was 42, I have been extremely fit all my life so it's probably been unnoticable, I was always taking part in exercise and deep breathing sometimes was difficult after a long day at the gym or after sports but I just put it down to anxiety or me stressing myself out or overdoing it, and got on with it, I didn't even consider asthma as I never had any other symptoms growing up other than very deep breathing so nothing was ever done about it. I routinely got checked at the GP as I was growing up and all throughout my life I was tested for pretty much everything including x-rays and it always came back perfectly clear as well as CT's, so I thought no more of it. It was only when I turned 42 I started snoring a bit and my family would tell me it's got bad Lee do something about it, I knew then something wasn't right, after this few weeks of snoring loudly, I got a very bad chest infection, and it just wouldn't go I had it for months, I had lemsips, antibiotics, and much more but I was still functional but struggling with the coughing, nightly wheezing, I just got really worried and thought the worse, I suspected I had cancer or something really nasty so I didn't want to face the music, anyway a few weeks more went by and I got another course of antibiotics, and it got gradually very worse and very quickly, I started wheezing and getting very short of breath. I knew then I had to get medical help I couldn't ignore it any more. I went into hospital for the first time back in April 2023 and they put me straight on oxygen to improve my breathing but I was under close observation and needed a lot of supplemental oxygen as my lungs were working overtime due to a simple cold (rhinovirus), which put me into a severe attack not to mention I already had undiagnosed asthma, things eventually got better after batteries of tests and about 20 armfuls of blood, they said it was pneumonia but couldn't understand what caused it. I was then released after intravenous injections of steroids (prednisone) and antibiotics (two different types) a month went by and I was fine I was back out down the gym and flying around on my bike like nothing had happened not knowing what it was, they booked a lung function test to see if it was COPD or asthma but it came back fine. They ruled it out. Then after a month I started getting another cough, it was so persistent and due to the shortness of breath I went in again, this time for another 8 days, again they told me it was pneumonia, this time I was intent on staying in until I got answers as I was worried my heart was being damaged by all the stress it's been through, I had an echocardiogram to check and everything came back fine, they checked me for HIV/AIDS due to getting pneumonia back to back, and believed it to be a problem with my immune system, that all came back negative I didn't have that either, so by now they are checking for bronchiectasis and COPD but my cough went away in hospital and it generally doesn't with COPD it is still there even with medication but it does lessen somewhat and my results were excellent so they ruled out COPD. It was only after a third time I went in back in November 2023 that a specialist finally checked me on asthma medication and she is a consultant, she nailed it straight away. They then tried me on the fostair and albuterol (salamol) and I bounced back literally straight away after a couple of hours. So it's been a long journey but I finally got my diagnosis about 5/11/23 and I've been fine on the medication for nearly a year, just over a year actually and I am now getting back to normal again after all this stress and worry, not just for me but my family. I am very pleased to now "know" that is asthma, I wasn't best pleased I needed an inhaler for life, but I decided I'd have to "lump it" and carry on. I've always just got on with stuff in life. But that's my story. I am pleased you're able to feel you can do these challenges, but take it slow, asthmatics can sometimes be triggered by exercise, so make sure you've got your inhaler at all times, and I wish you the best of luck. Lee x

Patk1 profile image
Patk1 in reply toelanaoali

My son does cold water swimming.he loves it and it helps his rh arthritis too x

whufcleept profile image
whufcleept in reply toPatk1

Swimming is amazing for asthma.

PaulRosedene profile image
PaulRosedene

Hi Lee, I am a chronic asthma sufferer. My brother planned a trip to go hiking in Nepal in March 2022. Lots of websites said that asthmatics shouldn't go hiking at altitude. But I decided to go.

We hiked for eleven days in stunning scenery in the Himalayas. The main issue for most of us was altitude sickness. My peak flow did decline with the altitude, but the asthma wasn't a problem.

I have learnt that with altitude it all depends how high you go. We went to about 4,500 metres. But going above 5,000 metres would need more consideration, and, of course, everyone is different.

But it is possible, for some, to stay fit and active with asthma.

whufcleept profile image
whufcleept in reply toPaulRosedene

Hiya Paul Rosedene

Thank you for the reply. I am very pleased you're not letting your asthma hold you back. I do think you should always do what you feel you can do personally, but you should also be aware certain activities can trigger an asthmatic episode, (especially if it's exercise induced asthma) so please and I can't stress this enough make sure you have your medication with you at all times, and always take your medication 15-20 minutes before any exercise with guidance from a personal trainer or an exercise referral P.T they will be able to understand your condition better, or if you are in a group make sure someone is aware that you are asthmatic so they can act quickly in an emergency, in general though if you feel you can do it then by all means do it, but go slowly first after all there is scientific evidence backing it up that exercise, yoga, cardio training, and cycling as well as eating specific diets help with being able to do exercise even with asthma. You only have to look at players in football such as David Beckham albeit he only has mild asthma like myself, he eats very healthy diet and his high intensity exercise helps with his symptoms. Asthma is a chronic disease of the lungs, but improving the health of the lungs in general such as the vo2 max (with help of exercise, such as cardio, and interval training) helps with some symptoms and can also help make breathing easier in some people. It can also be very difficult with severe asthmatics as some cannot get the air in to complete these exercises but eventually if you change your lifestyle you certainly can make things easier for yourself. (also provided you take your medication as well before any exercise, and your normal dosage throughout the day) I guess the aim is to do things slowly and build up as you see an improvement, don't run into HIIT training straight away, build up SLOWLY. I can't stress enough that exercise is so beneficial to people with asthma. (but please take precautions and make sure your medication is to hand) I completely agree though everyone is different. With regards to your comment higher altitudes definitely affect asthma and not just asthmatics "normal" people in general always struggle to breathe in higher altitudes. It's because we aren't used to those high levels as we live on a much lower altitude, however people who live on high altitudes like Peruvians who live around 12500 feet above sea level are used to those higher levels are used to it because their lungs have always been used to that level and have adapted since birth. But like I said fitness is a very good way to help achieve your goals, good for you, I hope you are well best wishes

Lee.

My_fairy profile image
My_fairy

Hi Welcome Lee I am glad your GP recommended this forum for you to share your perspective. I found Asthma UK nurses very helpful and joined this to gain insight into asthma for my daughter.

I definitely believe in you that you can stay active with asthma but sometime it can be so severe that it affects every aspect of your life and can take a big toll on you as my daughter loves to be active but she has persistent symptoms so it’s not so easy. Even before being persistent her symptoms would get worse with more exercise so there’s time when the body tells you to stop. I am glad that moving on flat surfaces and getting around in college she can manage with inhalers. It’s definitely not the same for everyone and there are times when it’s worse but trying healthy lifestyle and activity can help. Nice to know you and will definitely get your input on different things. Xx

whufcleept profile image
whufcleept in reply toMy_fairy

Hiya My_fairy.

Thank you for the lovely response.

Pleasure is all mine, I completely understand everyone is different, that's asthma for you, my point still stands and I am sure you know already being a parent of a little one that exercise is so beneficial for it, just like you said. I know it's hard sometimes but improving your symptoms just that extra little bit can make all the difference to your daughters life. Thank you for the kind message it's always nice to chat to people, and maybe I can give my input when needed anytime, best wishes Lee.

Patk1 profile image
Patk1

This I'd a really gd post whufcleept. I've got a lot of lung and airway probs but I'm sure that having been fit + v active (until last 10-12 yrs)saved me from being so ill at a younger point in life.my sons+ their sons r all v active too. My youngest 6yo grandsons school has a playground called the " trim trail" and they're allowed on after school.its gd to see active children and it really should be encouraged

whufcleept profile image
whufcleept in reply toPatk1

I definitely agree Patk1, I appreciate your kind words about my posts, my intention is only to tell people what I've experienced personally, if everyone is different then there is no one size fits all advice on asthma, if anything my experience was totally different to most people's experience. Fitness is a very good thing, I don't like to be told that it's dangerous on certain asthma websites and people should be worried about taking part in it, because that also gives people the wrong impression, it makes them scared and low activity/sedentary lifestyles are not good for asthma. Obviously I'm not telling people to run until they are having breathing difficulties, I just think keeping fit to an extent, even if it's just walking 5/6000 steps a day is important, not just for the lungs but health in general. Exercise should always be encouraged by healthcare professionals.

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