venta55: hi I’m new to this group but... - Asthma Community ...

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venta55

Venta55 profile image
22 Replies

hi I’m new to this group but after reading some of your posts concerning the removal of ventolin inhalers and replacing it with cfc free inhalers. I too have noticed a significant change in my condition I’m more breathless wheezing more and my chest is very tight. I’m going to complain to my GP this week to see if they will change me back to venolin wish me luck. Even if these are better for the environment or cheaper which I think may be the case that’s no good for everyone if we end up in hospital because our condition has worsened

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Venta55
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22 Replies
Patk1 profile image
Patk1

Wel ome to the forum x

Venta55 profile image
Venta55 in reply toPatk1

Thank you

RABS1957 profile image
RABS1957 in reply toVenta55

Hi iam new too, welcome, this is my first chat, ok if you feel worse because of the removal of the gas cfc would that not be that your illness wants cfc to feel better what’s that gas perpelant doing that without it your word, I would want to know what it does to help and without it in, your worse, please keep us informed, (can the cfc been helping all along 😳good luck on your out come👍

Venta55 profile image
Venta55 in reply toRABS1957

Thank you

Poobah profile image
Poobah

Welcome to the forum Venta55. I'm glad the forum has already proved helpful and you're advocating a return to your tried & trusted inhaler. Good luck.

Venta55 profile image
Venta55 in reply toPoobah

thank you I’ll post how I get on

Thomas45 profile image
Thomas45

How often do you use your blue inhaler? Do you use it with a spacer? Some years ago I was issued with a very large spacer which though easy to carry, was an awkward shape, which couldn't just be slipped into a pocket, but had to be carried separately. Just recently I've been given a new spacer, which is a short tube

It's much easier to use, and works, to get the Salbutamol where it's needed, into my lungs.

I should add that I was changed to a cfc- free Salbutamol inhaler several years ago, and it works as well as Ventolin did, especially with the new spacer.

I also have a preventer inhaler, which reduces the occasions when I need to use the blue inhaler. I last used the blue inhaler when I had a lower respiratory infection in early December.

Venta55 profile image
Venta55 in reply toThomas45

I do use mine with a spacer it just isn’t working so well

Bagpiper0304 profile image
Bagpiper0304

My pharmacist changed over to the CFC free inhaler without informing me and I didn't like it so asked them to change back to ventolin which they did but I have to check every time I collect my prescription to make sure they've put the correct one in.

I've been more breathless recently even on the ventolin and I seem to be picking up more chest infections

Venta55 profile image
Venta55 in reply toBagpiper0304

Thank you I hope you get your chest problems sorted

Kurty2 profile image
Kurty2

My ventolin which is the normal puff style has not changed shape or method of delivery and has been cfc free for what feels like 2 decades.

Venta55 profile image
Venta55 in reply toKurty2

That’s good but mine is having serious affects for some reason

Kurty2 profile image
Kurty2 in reply toVenta55

I think they've all been cfc free for many many years, it is an aerosol still, is yours a suck type or something?

Venta55 profile image
Venta55 in reply toKurty2

No it isn’t and I’ve only been changed recently but I’m having problems with this type

Kurty2 profile image
Kurty2 in reply toVenta55

I'm wondering what the difference is? I just googled it and it says ventolin has been cfc free since 2008

Venta55 profile image
Venta55 in reply toKurty2

They have give me a different brand not ventolin that’s the problem. However I have visited the gp today and have successfully changed back he even admitted that the inhaler I was swapped to was cheaper

TheBard1 profile image
TheBard1

Hello,

Please tell your GP. I did, and she changed it back and also sent me to a consultant who told me to use a spacer (a narrower, shorter one, which I bought from the Internet), and told me to press the inhaler whilst breathing in. He told me to keep inhaling: in/out (don't press the inhaler) until the chamber of the inhaler is empty (you can tell) & repeat. I do the same with my two other (preventative) inhalers. I have been so much better and I feel my asthma is more under control.

Good luck!

Venta55 profile image
Venta55 in reply toTheBard1

Thank you that’s great advice

Spikedog66 profile image
Spikedog66

Hi👋 I've had no experience as yet with cfc free inhalers but change should make you better not worse. The saying goes don't fix whats not broken. Ask to go back it isn't agreeing with you. Hope all gets sorted. 👍

Venta55 profile image
Venta55 in reply toSpikedog66

Thank you

Anniecath profile image
Anniecath

I have had similar experience. If I didn't have Ventolin handy I don't think I would be here replying to you. The medics just don't seem to get it.

Venta55 profile image
Venta55 in reply toAnniecath

I agree they maybe cheaper but if people end up in hospital it’s counter productive glad you got ventolin back

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