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TRANSPLANT ASSESSMENT TUE 28TH NOVEMBER

Sara_2611•

1 year ago•19 Replies

Hi everyone

I've got my transplant assessment at Wythenshawe hospital tomorrow (28/11)

Even though I spent ages persuading my specialist to set this up I'm still nervous about what's going to happen

I'm taking all my Emla cream so that when the doctors come at me with a needle I can numb up. And of course any medication I need

I'm being picked up by ambulance & my mum & dad are following behind with all my oxygen tanks in their car because I'm on such a high dose of it the tanks will run out very quickly. Thankfully mum has confirmed with them that it is booked & that oxygen is being supplied. I've no idea how long the appointment will be so we ve had no choice but to request an ambulance ourselves

Im very sure they ll say no because there are some things not in my favour such as my weight BMI & fear of needles so it ll be a wasted journey. Least it's only South Manchester not Sheffield like before. I know that you have to wait for ages when requesting an ambulance home So I'm very mrtvousy

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19 Replies

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peege1 year ago

Wow, amazing so wishing you all the very best for tomorrow Sara 💐

Sara_2611• in reply topeege1 year ago

Cheers appreciate that

Sara_2611• in reply topeege1 year ago

Thanks a lot. I'm quite nervous

PaulRosedene1 year ago

I have never heard of transplanting as a treatment for asthma. Is it the lungs that would be transplanted ?

runcyclexcski• in reply toPaulRosedene1 year ago

They say the asthma "resides" in the lungs, thus, yes, if the new lungs are non-asthmatic it should be "gone" :).

PaulRosedene• in reply toruncyclexcski1 year ago

Wow. I assume it's a pretty major operation.

runcyclexcski• in reply toPaulRosedene1 year ago

It sure is :). Here is a 2019 paper which has references to previous studies as well. Apparently one can still develop asthma many years down the road (this patient got 10 years asthma-free, I call that a win ). I can get you the PDF if you message me.

casereports.bmj.com/content...

"Background

New-onset asthma has never been described after bilateral lung transplantation. This case presents the unexpected development of new-onset asthma, 11 years post-transplant. Asthma is normally considered an airway disease that cannot develop after the denervation that takes place during lung transplant surgery.

Previously, it has been reported that asthmatic recipients of normal lungs do not suffer from asthma after transplant.1 In contrast, it also has been reported that asthmatic donor lungs have transferred the disease to non-asthmatic recipients

who after a very short period complained of asthmatic symptoms.1 We here present a case of what has been considered as ‘the impossible’, that is, asthma developing in a lung transplant patient 11

years post-transplant"

Sara_2611• in reply toPaulRosedene1 year ago

It's not for Asthma I have Interstial Lung Disease which subjects me to extreme exhaustion & lowers my oxygen levels. My base percentage is 88-92 % oxygen I have in my lungs. And I am on a concentrator 24/7 that pumps out pure oxygen. 16 times I have been hospitalised over the dangerous lowering of my oxygen levels. I am on 10 litres when moving about & 8 when at rest

Pardon me for making this observation but I'm curious to know why you thought it was Asthma I re read my original message & there is no mention of Asthma- just curious that's all

Last night (29/11) my bedroom oxygen concentrator gave up the ghost & I had to ring the oxygen service who tested it & installed another one & tested it & that didn't work. I had to borrow the one my mum had installed at her house & for one full night it worked then the next night 3 hours into being attached to it & that broke forcing me to sleep downstairs attached to the one I have in the lounge

CallysMum1 year ago

My best wishes for a good outcome for you. Be brave.

Sara_2611• in reply toCallysMum1 year ago

Cheers

Moomin211 year ago

Good luck at your appointment Sara. Great idea to take emla cream if you hate needles. Let us know how you get on 🥰🥰🥰

Sara_2611• in reply toMoomin211 year ago

Ok. I'm taking lots of it. I'm taking my iPod so that I can have maximum distraction as well

Purpleotter1 year ago

All the best!

Sara_2611• in reply toPurpleotter1 year ago

Cheers much obliged. At least I'm going in an ambulance so oxygen won't be a worry I hope

DannyQ1 year ago

I hope you got good news yesterday and I wish you all the best

Sara_2611• in reply toDannyQ1 year ago

Appreciate that Danny. Like I said I'm pretty much sure they ll say No as there's few things not in my favour

fraid1 year ago

Best wishes that all goes well! 🤗

runcyclexcski1 year ago

I hope it all goes well!

I've been wondering about lung transplant to be a potential asthma treatment, but I would never get on the list: I am miserable, but there are plenty of folks who are much worse than I am. I ticked the organ donor box on my driver's license, but specifically said not to give my lungs to anyone :).

Holly_ALUKAsthma Nurse1 year ago

Hello, Turning of comments for this post now as original poster does not have asthma but ILD therefore may be confusing replies from peers on this forum.

Sara_2611 you may find the Lung Conditions Community Forum a better fit for advice for your condition.