Hi John I have been having this treatment at Glenfield Hospital for the past 18 months.If I remember correctly I was approved in March 2021 and started the treatment in October 2021
I am still on 3mg a day of prednisolone so I am not totally sure how much they are working. But apart from having covid last October and a viral infection in December I have not had to increase the steroids since being on the biologics (bendrazmabs)
Next injection in June and if cortisol levels are ok they hope to lower the pred a bit more 🤞
I don't believe I have any side effects from them.
Best of luck with your treatment- I started them in 2006 but unfortunately for me they were ineffective and at that time very expensive.Wishing you all the the very best - do let us know how you get on.
( I wasn't on a waiting list for long before I had them but this was many years ago) Hope you get started soon x
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