I've been on Omalizumab for I think almost two years.
I think it has made quite a difference for me - certainly I have far far less hospital admissions and they have been much shorter. However, I am still on high dose Pred and can still be very up and down, so it hasn't been a miracle cure, though things are better.
I'm moving away from London at the end of this year. Where I'm moving to I'll be a long way from a hospital and anywhere I could continue the Omalizumab. My current consultant reckons I'm going to commute to London every four weeks to continue the Omalizumab but this really isn't possible - I couldn't do it in a day and I couldn't afford the travel/accommodation.
So a couple of questions:
Would it be possible to move my Omalizumab treatment - do most hospitals offer it?
What happens with funding - would a new funding application have to be put in if it could be moved?
If I stopped the Omalizumab, what are the implications? Are there withdrawal symptoms, would I go back to how I was before I started or does it offer some long term protection?