Is anyone using tezepelumab??

[k0914860]

I’ve been recently approved to commence tezepelumab, and I’m interested in other people’s experience as it seems to be quite new?

[risabel59]

please let us know how you get on. I assume you are in Europe or the US as it’s not been decided who will get it in the UK. Unless you are on a trial. I am hoping to qualify for this.

R

[k0914860 in reply to risabel59]

No I am in the UK! Under the Guys asthma team. Not on a research trial as far as I’m aware! It does seem very new though, can’t find a huge amount of patient experience about it, hence me asking here!

[risabel59 in reply to k0914860]

Please keep posting about this. I was told it wasn't going to be fully approved until next month. Tezepelumab got general approval in the UK last year, but apparently NICE cant make up their mind who will qualify. My consultant is trying to jump me through the hoops to get this but he still doesnt know if I will qualify. Can ask if you have high esophills?

Thanks

R

[k0914860 in reply to risabel59]

Yes I do have raised eosinophils but not massively although I have been >0.3 in the last 12 months.

I think the advantage of tezepelumab is that it’s not reliant on a specific bio marker, which is helpful!

[SmilesForMiles]

hmm also following.

Not currently on my consultant suggested I read around it and that we give it a try if things aren’t under control this spring /summer

[SmilesForMiles]

(not in the uk)

[hainsy52]

after spending nearly 3 weeks in Brompton my consultant told me he wanted me to one of the first for this treatment which should be available sometime in February.I had a call from Brompton on Friday to say they are having a meeting on Wednesday and I should know by the end of the week

[eleanordigby]

I’ve heard of this, really hope you benefit from it!

[k0914860 in reply to eleanordigby]

thank you!

[MissNyxiie]

Hi, I had my injection at guys Monday, she seemed quite hopeful it would help. Ive had constant chest infections and asthma attacks for 3 years and really hopeful it will help. Had no side affects after the first jab and i think she said it would take a couple weeks to start kicking in. Theres good information about it from the states, so fingers crossed im sure she said its not available currently on the nhs its through, i think it was called patient services or something like that. I got approved early December and she rang a week and a half ago saying they could book people in who were on the list already, suprised it was that quick!

[k0914860 in reply to MissNyxiie]

Thank you, this is really helpful to know!

[k0914860]

Just to update this thread:

I had my first injection this week and it was fine. I’m under the patient access scheme.

[SmilesForMiles in reply to k0914860]

how are you feeling now after a few months on it? My consultant recommended I try it yesterday at our appointment.

[k0914860 in reply to SmilesForMiles]

I have had four injections in total. I’ve noticed I don’t need my salbutamol as much and I’ve remained off prednisolone so far when unwell with e.g a cold. So far I’d recommend you try it!

[SmilesForMiles in reply to k0914860]

thanks! Yea I’d really like to be able to use less of my steroid inhalers (though I know they didn’t look at that in the studies, just oral pred use)

Any side effects so far that you’ve noticed?