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EmmaF91 profile image
EmmaF91Community Ambassador
โ€ข3 Replies

Hi guys

Something to hopefully make you laugh ๐Ÿ˜‰

So I am under both secondary and tertiary care but usually I stick to secondary as they see me more. Because of my weird way of accessing tertiary (transferred from another tertiary and then went to research dept for early access to Benra) I havenโ€™t yet met all the team like youโ€™d normally do even tho Iโ€™ve been their patient for 2 years now. Case in point I havenโ€™t met any of their asthma nurses and donโ€™t think Iโ€™ve spoken to them all either (Iโ€™ve only called that number twice before ๐Ÿ˜…) As I said usually contact local hosp when there are issues or if I have a question and they are usually ok (less so since theyโ€™ve gained more nurses who donโ€™t understand severe asthma but hey ho)

I swapped off of prednisolone and onto kenalog injections just over a month ago. Was doing fab but some issues now (excessive salb use) so called local and asked for plan if things worsen. Do I get pred? What dose? Etc etc. Question got ignored twice (by different nurses) so decided to call tertiary.

โ€˜Oh hi Emma. I feel like I know so much about you, even tho weโ€™ve never met!โ€™

I do not think this is a good sign... ๐Ÿ˜ณ๐Ÿ˜ณ๐Ÿ˜ณ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚

(And yes weโ€™ve formulated a plan pending on spec cons approval)

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EmmaF91 profile image
EmmaF91
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3 Replies
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Claire-Rose profile image
Claire-Rose

The same thing happened to me I email my asthma nurses a lot but donโ€™t really see them I went to get my xolair injection and one of the nurses came and said why do I feel like I know you by your name but not your face ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚

EmmaF91 profile image
EmmaF91Community Ambassadorโ€ข in reply toClaire-Rose

My fav AN at local (the one how usually

Does my injections) knows my hospital number. Her and the other 2 old ANs (we have 3 newbies and 3 oldies) can recognise my voice (and I them ๐Ÿ˜‚).

But someone Iโ€™ve never met or spoken to before (Or even emailed) was a bit ๐Ÿ˜ณ- ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚

Claire-Rose profile image
Claire-Roseโ€ข in reply toEmmaF91

At my local my name is known by a and e,the assessment ward, the respiratory ward and icu so when they hear my name they donโ€™t even have to ask where I am they just come and see me. I have to have my xolair at my respiratory hospital ( royal Brompton) some nurses remember me from when I was an inpatient but the proper asthma nurses only know me through emails as I am new to xolair and have only seen them since then so they find it so exciting when they finally see my face ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚

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