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I am12 week sheilding but have to go for xolair injections at the hospital feeling anxious and nervous, any advice?

ozboz123 profile image
6 Replies

Hi this is the first time ive posted and would greatly appreciate any advice and hope you are all safe and well. I am 12 week self sheilding and i have to go for my monthly xolair injections this week and feel quite nervous about going to the hospital. Im confused as the letter i recieved says not to leave your home.

Kind regards to all.

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ozboz123
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6 Replies
Tugun profile image
Tugun

Hi,

First question is how do you get there - bus, taxi, walk, own car? Do you have a mask and hand sanitiser? The other thing you could do is ring the hospital and get their perspective on it. Can it be done at the local doctor's? Ring and just check that everything is going ahead and also what they advise you to do regarding social distancing etc.

Remember coronavirus can stay on plastic and steel for up to 3 days, so make sure you don't touch your mouth, nose or eyes after touching these things and sanitise or wash your hands with soap and water constantly.

CRP386 profile image
CRP386

As Tugun says...also if you do go in, when you come home you may want to shower and change clothes. Also, if you do end up having these injections at the GP, please remember that you GP practices arent immune to CV either, so please remember to wash your hands and use hand sanitiser - all the precautions if you were going to hospital. Please note, the 12 week shielding letter does say that you allowed to see healthcare workers who must see as part of you medical care.

angievere profile image
angievere

You must have your Xolair injections so try not to be anxious about it. Don’t think it can be done at GP surgery as the prescription is ordered by the hospital. My son had his injections last week - the nurse was in PPE and my son had hand sanitiser and tried not to touch anything.

Mogget profile image
Mogget

Hi, I had to do the same recently and spoke to the hospital who reassured me I wouldn’t be around other patients in the waiting areas as most clinics were cancelled. I wore gloves and a mask I had. Still felt nervous going in. But it’s so important to continue having your injections.

On that visit they trained me how to use my Xolair injections at home and gave me a 4 month supply to take away. Is this an option at your hospital? It seems to be happening elsewhere too.

Sparkimoore profile image
Sparkimoore

Hi!

I’m on MEPOLIZUMAB injections every 28 days too. I was advised it was far too dangerous for me to go in to hospital as I’m immune suppressed & have severe lung disease. After much fuss, it was decided the Respiratory Nurse would visit me at home to administer the Mepolizumab as it MUST be given every 28-35 days. You must have a Respiratory Nutse who visits people on oxygen at home, so they should be prepared to add you to their visits. You are indeed very vulnerable, & you should contact your consultants secretary & day your worries. You should definitely be having this at home. I live in Jersey but you should get this care too as you are vulnerable.. FIGHT FOR IT!

Good luck! Stay well, stay safe.

Rose

Travelling profile image
Travelling

Hi there, please don’t worry. I’m severe asthma, refractory, I’m on Nucala ( Mepolizumab) and go every four weeks to the hospital for the injection.

I go to Wythenshawe, they called me to explain they are using a different clinic area and we wait outside and go in one at a time, through a fire exit so it’s away from the rest of the clinics. Your clinic should be doing something similar. I drove myself there, waited in my car outside until it was my time, they gave hand sanitiser at the door, only saw the nurse for the injection, they aren’t doing any tests now, just in and out. No queues. Hand sanitiser again on the way out. I took sanitiser and antibacterial wipes in my car.

Take as many precision’s as you can as I did to reduce contact with others and objects as you go for your vital meds. Don’t worry.

When you get home, wash your hands well.

That should all be sufficient.

I wear a scarf daily anyway and always cover my mouth and nose when out as it sets off my wheeze if I breathe the cool air.

We can minimise the risks to us by following the guidelines.

Keep positive! Find something funny to watch online, or on tv, laughter boosts our immune system and anxiety lowers it.

Keep safe, keep well!

Xx

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