Terminal Diagnosis, Lung Fibrosis. - Asthma Community ...

Asthma Community Forum

22,428 members24,828 posts

Terminal Diagnosis, Lung Fibrosis.

I8tories profile image
17 Replies

On 12th March 2020, I received the news the the last bad respiratory infection, in January/February had resulted in the terminal stages of my life. I have had asthma since 1950, in latter years, it became COPD. Now developed into final stages, Lung Fibrosis, a non reversible, progressive, thickening of the lung. Drugs can slow the progression, but not stop. End result is always the same. I've encountered close associations wit the Grim Reaper a few times in the past, now I'll finally meet it. I'm philosophical, about this, but I dont intend to go to final stages of this problem. Current Peak Flow 250, 150 will be my trigger point., between 6 and 18 months.

Kev

Written by
I8tories profile image
I8tories
To view profiles and participate in discussions please or .
Read more about...
17 Replies
debindurham profile image
debindurham

Hello Kev

I was struck by your pragmatism and straightforwardness.

Are you comfortable? Do you have family/ friends about to help and support you?

Deb

emmasue profile image
emmasue

I am sorry to hear this. I have had asthma all my life too and it's where I myself in 20 year's time. Living with asthma you get used to thinking about death but it's still not something we want. Try to make the most of what time you have. I wish I could give you some better words. Enjoy the sunshine while you can. Listen to the birds sing. Sometimes it's the little things. Take care and God bless.

in reply toemmasue

I am so sorry for you and admire the way you are handling it.best wishes to you and family ,friends.take care.x

emmasue profile image
emmasue in reply to

Thanks. Don't feel sorry for me. I am blessed with what I have. x

grannygreen profile image
grannygreen in reply toemmasue

As u say we all one day will pass. Don’t know wat u believe in but if u read John 3 v16 it tell u how God gave his life for you. Consider this

emmasue profile image
emmasue in reply togrannygreen

I am a believer but struggle sometimes. I know John 3:16. x

Spikedog66 profile image
Spikedog66

Sorry to hear your bad news but you are still here now and no one has a crystal ball have they. On the bright side a lovely photo still smiling and you look a picture of health. 😀

I8tories profile image
I8tories in reply toSpikedog66

That's my positive image. As have been told, more than once by medical people, when having cardiac surgery and cancer surgery, I am very resilient. As we all suffer from terminal existence, and hope end is quick and painless. Unfortunately, not for all.

Spikedog66 profile image
Spikedog66 in reply toI8tories

You first posted a while ago so you still in land of the living thankfully. You like many will be isolating but I do hope not isolated. Keep posting have a good old moan if you want we are here with you and you with us... every step of the way. 😀

utkmybrthawy profile image
utkmybrthawy

What are you saying Kev? Live! Live!

utkmybrthawy profile image
utkmybrthawy

This world really needs you, and that face, that incredible smile! Live.

Getfitok profile image
Getfitok

Take care x

Poobah profile image
Poobah

Love your attitude in spite of such news. Good for you. Have fun and love each day. 🤗

PaulRosedene profile image
PaulRosedene

You seem remarkably calm. We are all going to pass one day. How do you remain so philosophical ?

I8tories profile image
I8tories in reply toPaulRosedene

I have been near death a number of times. Nearest was having surgery for oesophagel cancer, caused by frequent refluxing. Surgeon told me 30% chance wont make it, my immediate reply was, if I dont have it, 100% wont make it. Operation went well, 10 days in ICU, stable, moved to high dependency ward. Had a relapse, went unconscious. Rushed to theatre, but BP was too low and Heart rate too high to operate. So was moved back to ICU, where came to.

6 weeks later, asked surgeon, how close to Grim Reaper. His reply, very close, only gave you 5% chance of making it

Dietrech profile image
Dietrech

They are often wrong still! I have been asthmatic all my life, NEVER smoked, then radiotherapy for aggressive breast cancer caused lung damage, then came Bronchiectasis and infection which has colonised my lungs. I was given two years with my cancer diagnosis 20 yrs ago! My peak flow is 150-200 and I’m on oxygen most of the time, with advanced COPD, but I’m not accepting what Drs tell me because we are all different, and what they say can be self fulfilling and excruciating depressing. I know of people surviving much longer than their prognosis with , so hopefully you will prove them wrong. Quality of life is important, but thinking of death is essential for our peace of mind! I just want to go quickly with my close family near, no lingering for me I hope! Prayers said and please keep in touch so we can all support each other. 🥰

I8tories profile image
I8tories

When I got diagnosed, on 12 March, I just said 'Oh well, I'm philosophical', she said 'Good'. Left surgery, went for Coffee, muffin, and read the paper.

Not what you're looking for?

You may also like...

Lung function

I had lung function yesterday and surprisingly was told ""it looked normal"". I am taking pred at...

lung pain

Hi there, My asthma has been playing me up on and off for about three months now, I've had...

Lung specialist referral

Hi everyone been about six months since i posted on here but in need of if someone has been through...
reidie01 profile image

Lung Function Test

After receiving my initial diagnosis last week, I have now received a letter from the hospital to...

Lung Expanders

Has anyone tried the so called lung expanders? I suffer from a reduced lung capacity and wondered...

Moderation team

See all
Homely2 profile image
Homely2Administrator
Lysistrata profile image
LysistrataAdministrator
ALUK_Nurses profile image
ALUK_NursesAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.