Monteleukast bad reaction?

[Calmcat]

Hi all

Back in the autumn I was given a one month trial of monteleukast- was really looking forward to it at that time as I was hoping to reduce my steroid load. But I only managed three days- symptoms so much worse - really tight chest like I was wearing a tight band. I stopped and immediately felt better. My GP believed me and we moved on but in a review with the practice specialist this week I was treated with scepticism 😒 Apparently people tend to be responders (in a positive way) or non responders. Just wondering if anyone else has had a bad reaction like this?

[Hidden]

I am on montelukast and I had no problems with it just getting from the pharmacist I use but that's been sorted out

[Troilus]

I started on it 4 weeks ago. No problems.

[Hidden in reply to Troilus]

If you get your preventer every 2 months then you can ask montelukast to be the same after a trial. I have done this after a 6 month trial

[Calmcat in reply to Troilus]

Thanks for replying-

Glad it’s working for you

[Hidden]

I was hospitalised due to allergy to Montelukast a couple years ago so your defo not alone in having a bad reaction to it😅

[Calmcat in reply to Hidden]

Wow. That must have been scary for you- looks like I got off lightly. Nice to know I’m not alone though. Hope all is ok with you now.

[polgara36]

I was constantly nauseous with it - great for weight loss but felt so bad

[Calmcat in reply to polgara36]

Being constantly nauseous can’t have been much fun. How long did you tough it out?

Hope you’re GP was supportive.

[polgara36 in reply to Calmcat]

Did about 4-6 weeks but thankfully the asthma nurse agreed that was enough time to demonstrate that the increase in lung capacity wasn’t worth the negatives

[Calmcat in reply to polgara36]

Thanks. Glad to know you were supported with that.

[cairneyh1]

Hi Calmcat

I was put on montelucast over 3 years ago and immediately felt unwell. High temperatures and aches. I mentioned it at an emergency doctor appointment and was told to continue taking it.

My aches and high temperatures continued so I stopped it after advice from a pharmacist. I don’t mean to cause you to panic but my story then becomes a little scary as I was admitted to hospital.

I was diagnosed with a rare type of vasculitis called Churg Strauss Syndrome which was a listed side effect of montelukast.

Having this condition turned my world upside down but doctors refused to link my condition to the drug despite the facts being printed on the montelukast leaflet.

My advice would be to see a doctor and seek their opinion about the side effects of the drug.

Harry

[Calmcat in reply to cairneyh1]

Oh my goodness Harry! Thanks for sharing. Thank goodness the pharmacist stopped it. Can’t believe the doctors refused to link your condition to the drug! Pharmacist 1 Doctor 0!!!

Thanks for the advice. I’m defo going to refuse it if it’s offered again.

Hope you’re ok now

[cairneyh1]

Hi Calmcat

I am much better now. Thank you. I will be on medication for the rest of my life and I now have an internal defibrillater as my heart was damaged so badly. However, I am back working full time and able to have a full life which is better than a number is people with CSS.

I hope you keep well in the future.

Harry

[Calmcat in reply to cairneyh1]

Thanks- so glad you have a full life. Take care x

[Suze4212]

I was on montelucast for a short time and had daily migraines while taking it, not one of the listed side effects.

[Calmcat]

Daily migraines sounds awful. Just goes to show we are all unique. Hope you’re ok now.