It’s always a fun conundrum isn’t it. You get told asthma will improve with exercise, but you know if you’re uncontrolled the exercise will trigger off the asthma, and the lay person stuggles to understand this!
I spent a few years really unstable and uncontrolled, not able to reliably walk the 500m to uni each day without running the risk of landing either in an unfit state to study or back in hospital. This came after years of being a high performance sports person, where I was flipping and flying through the air. It was (and still can be now) upsetting to be constantly told exercise would help, when it really wasn’t an option at the time.
In the long term I feel like all the sport has increased by PF best score, which does mean I have further to fall until I’m in really dire straits, but also comes with the issue of being way above predicted so often have to argue with docs that 300 is not a good/ok number for me post meds cause it’s below by 50% despite being 68% my predicted (it has often meant either under treatment, or time in being a lot longer). And I think it’s also falsely makes people think I’m improving when I’m not... ie an increase of 100L in predicted is 22% so decent, however for my best it’s only 14% so not as good. This means I then drop back a lot more I think (this is all my opinion but so often people tell me I have ‘great reversibility so am fine’ which then only lasts an hour etc, so kind of makes sense)
However, more positively, I AM now a lot more stable. It took 3 years, 3 biologics and lots of trial and error but I’m now able to start back doing exercises. Some days I’m fine, other days there are issues but so far not to hosp level 😅. I exercise because I finally can, and because I hope to loose some of my pred tummy (cause that’s the kicker isn’t it, exercise = attack = pred = weight gain = ‘exercise more’), and I’m hoping to be off the pred soon
I’m currently part of the ‘we are undefeatable’ campaign for those with long term health conditions. I can appreciate that some days you can and some days you can’t, and when your as uncontrolled as I was exercise was an impossible dream. I wish there was more advice out there for severe/difficult/uncontrolled asthmatics other than ‘don’t do if uncontrolled/speak to your doctor’, which was particularly useless... they’re the ones telling you to exercise sometimes, but have no advice on how to not end up in hosp due to it except ‘don’t do’ 🙄. However, those who can should (if only for the other health benefits and the endorphin rush 😉😂), and those who can’t/really struggle, I hope you find a semblance of control soon, and can manage to do something, whatever it is.
Where are you on the spectrum? What do you find that you can and can’t do now? What do you enjoy doing or what do you hope to be getting back into?
( facebook.com/40952091012/po... - I think I was too cheerful on the resus pic for them to use it... here is what I think is my best and worse 😂😂)