Hi all. I am currently in the process of setting up a group which will meet quarterly in Surrey. Each meeting will host an expert speaker who will give a short talk on an area of the disease followed by an open discussion and q&a.
The purpose of the group will be for better education to help with self advocacy, more understanding and compliance with medication, better mental health and anxiety management and ultimately, the sharing of experiences.
Please could you indicate whether you would be interested in attending such a meeting?
Thanks all!
Beth