I have had asthma for 22 years but since April 2014 i have been diagnosed with brittle asthma.
I have today been discharged from hospital again, was initially admitted to ITU for 48 hrs then to the ward.
I was trialing xolair as i have many allergies, but this has been stopped as it was not working. Although it did reduce the number of asmissions and level of severity.
The team now want to revisit a lot of tests for other conditions that could be triggering my symptoms, like tests for reflux, reducing my steroids (which is great) having physio for breathing techniques and looking at vocal chord dysfunction.
They are also saying my feno is low so shows low inflammation in my lungs.
I juat wondered whether anybody else has any other conditions that induce their asthma, or are your numbers still within range and feel unwell. I am feeling very low after this admission and alone.
Sorry for all the questions
Written by
Bubblybird
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Im sorry your asthma has been so rubbish and you have been in and out of hospital a lot. Xolair doesn't always help people even with allergies which is annoying but there is a new one mepolizumab which is at the end stages of trial which is good for eosinophilic asthma (allergy driven).
I have been told a number of times that I seem to feel a lot worse with attacks than I should but I don't think Drs understand its not often just the one attack but its an accumulation of everything and a struggle for longer than just the attack.
I do FeNo and can find that it can be lowish but this is when I am on higher doses of steroids. When you had your FeNo done were you on lots of steroids etc as this can give a false low because the steroids are reducing the inflammation in your lungs. I do my FeNo every 2-3 weeks and find it can vary a lot between morning and night and also on what steroid dose I am on. Your FeNo could also be low if you are allergy driven and not under attack from allergies and then would have less inflammation.
Take care and hope you feel better soon and pick up a bit!!
Hi - loving your username. I understand everything you say except for the feno (I've never heard of that) .
I too have brittle asthma but also hv vocal therapy for vocal dysphasia. I have a cpap mchine got nighttime which helps my breathing. And counselling for anxiety. I also have lanzoptozole to stop the acid reflux. All of the above are triggers for my asthma and all affect me every day. Vocal therapy is very good - it teaches me to breathe correctly from my belly - rather than from my upper respiratory system. The theory is that any improvement that can be made to any of the secondary problems this will in turn help my asthma. The Vicious circle of breathing issues.
I have a low feno too. Mine is only 7. I have just been changed from prednisone to hydrocortisone. I see a physio for hyperventilation. I have been breathless for nearly a month. I just started a course of antibiotics. I been given Gaviscon to take for a month.
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