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Emails to individual members?

2 Replies

Hi

Is it still possible to send messages to individual members and, if so, how to do this please. I would like to contact some members with Allergic Broncho-oulmonary aspergillos that were on here a while back as the consultant thinks I may have it.

2 Replies

Hi Carla

I posted a while ago as I have been diagnosed with allergic bronchopulmonary Aspergillosis earlier this year and

Wanted to find others with this condition. I have been given anti fungal medication. I also have Asthma and have

Inhalers for that.

Not sure about your question re emailing, but you can ask questions and find info here or at the aspergillosis

Website.

Hope this helps

Debbie.

HI Debbie. Asthma all my life and have attacks which clear up. In August been clearing up the garden and have not been short of breath ever since. Consultant thinks I may have ABPA. 4 years ago I had a similar incident and they found ""insignificant amount of aspergillus"" in my lungs, lasted 12 wks. In November when saw consultant he gave me 2 months of fluconazole and went back in 2 wks and as no improvement he has put me on 4 pred per day which he said used to be the drug of choice used before anti-fungals and told me to reduce to 3 when I started to feel bit better which I did. Last week I was feeling great and so happy but now it has come back. I go back to see him on 27 Jan.

How are you and have you any advice? How long have you been taking the anti-fungals? Thinking of ringing up his secretary tomorrow as I had to really push to see a consultant as my new GP just kept saying there is no wheezing, which I never do. Wondering if I should have stayed on the anti-fungals all along. The nurse practitioner was absolutely marvelous and gave me the support lacking from my GP. I will look on ABPA website.

Thanks so much for replying. x

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