OK So the reason for this question is RB is being assessed for Epilepsy on top of a load of other medical conditions. He keeps getting what he describes as butterflies in his stomach that spread and start stabbing him with there wings and then he will be awake but un-responsive and his right arm will start twitching and lashing out. He has no control over this and doesn't even know it is happening unless he feels his arm hit his side. This form of Epilepsy is called Myoclonic seizures and are more common than people think. But they let him home last night and today he is really bad again and is just sleeping. I had to wake him for breakfast because his sugar level was dropping and he went straight back to bed and is fast a sleep again. This isn't him at all. He is normally so hyperactive you can't get him to sit still and when he is sitting he is so figgity it is un-beleivable.
So they have said that if they decide to put him on Anti-Epilepsy Drugs (AED's) then they will want him back in hospital so they can start them under medical supervision so they can treat and make sure they have the right medication in-case it does affect his sugar levels or his asthma. I am not happy with the way he is today and I do feel like ringing the ward he was on and speaking to them as I know my son and I know something isn't right and he is very ill
Thank you for your input and I anyone has any advice or experience then I will be very grateful
Thank you once again from a very concerned mother