Diverticulitis and other causes of clots?

[Phildob]

Hi, can anyone describe the process they followed to identify what caused their clots? I have DVT / PE which I believe is not caused by cancer, but might be due to my diverticulitis. The investigation seems very long and drawn out, probably due to NHS waiting lists, but it's frustrating as all I seem to be doing is injecting daily tinzaparin (had a heamorrage due to Xaraltol/Rivaroxiban, kidney troubles due to fluidinone).

Anyone out there have a successful id of the cause of your DVT/PE?

Am 46 and the prospect of worstening gut and circulatory condition is not making me a happy bunny.

On the plus side am trying my best to incorporate daily exercise (walk/bike/swim) and making my gut better by avoiding processed sludge and enjoying plenty soluble fibre. I am starting to take kefir and through a healthy gut biome I hope to achieve long term health once more. One day even come off anticoags.

Thanks for any comments

[andkin]

Hi - I haven’t heard of this cause before, has someone suggested this? I had a large dvt clot in the calf, lots of blood tests and no causes (ie unprovoked), my conclusion is it was caused by sedentary lifestyle, working too much. I got the dvt when 50, had blood thinners for three months and nothing since - no return!

[Picklemonkey in reply to andkin]

haven't gotten testing yet, but I fear mine too may simply be from working too much at my desk the past 7 months. I have spent nearly 14 hours a day for 7 months at my desk, and I get hyperfocused and don't move much for hours at a time. I also do travel for work and it's generally overseas long flights, so between them both, I am hoping this is just a one time thing! But I had SO many clots (they didn't even count them), I'm not sure...

[andkin]

I agree that solution is exercise and healthy eating plus less sitting!

[cheritorrox]

Mine echoes andkin . No direct cause found but sedentary lifestyle, overweight (far too many daily beers!) and smoking thought to be factors. I changed lifestyle: started eating Low Carb High Fat and lots of walking, swimming, pilates and (a small recent attempt at) strength training at a gym. That was last June. I lost 4 stone / 25kg and feel great. Last review was January and there was still a bit of clot remaining so I'm on sintrom (like warfarin) til June this year.

You might like to take a look at the lchf forum as cutting carbohydrates and increasing healthy fats is now recognised as helping lots of health problems (not DVTs but possibly the diverticulitis?)

[Daneball]

If you go to a hematologist, they will likely do a huge blood workup. I was 100% healthy, 8 months pregnant and had a huge DVT in my groin. Through blood testing, it was discovered that I have Factor V Leiden, which is a blood clotting issue that makes you more likely to clot in certain environments. In my case, it was pregnant and hormones. I had 6 months of coagulation therapy, then off that. The DVT scarring is extensive, so my left leg was always more swollen or pinkish. 7 years later, another DVT, that I blame on running, then sitting at a desk and eating LOTS of Kale. Foods high in Vit K can actually cause a clot if you eat them excessively.

other things I know I was tested for at the time of the testing was Lupus, and I have a friend who had a clot and then found out she had lupus. Good luck, they should always investigate WHY it happens, ESP before you go off thinners. What caused the hemorage on Zarelto?

[JulieRoberts]

Ive had recurring dvts and am now on warfarin for life. Ive been on warfarin for 21yrs so far and had no explanation of why i get the clots! I had diverticulitis 3yrs ago and was told its an infection/inflammation of the intestines and bowel (bloody painful!) i was never told of any link between the dvts and diverticulitis. Maybe I should query that with my gp. I have been told that once having diverticulitis once you are prone to having it in the future so I do tend to be careful!

[AnneTS]

Hello Phildob. This must be very worrying for you not knowing the cause of your clots. My diagnosis of the cause of my clots was really quite simple. The haematologist took a large number of blood samples and from there found that I had a faulty gene that was discovered in 1993 and that there were probably other clotting Genes causing me problems that had yet to be discovered. She is also a specialist in APS (antiphospholipid syndrome) which brought me into a whole new world of discovery. I was then able to warn my children that they might like to get tested for faulty clotting Genes etc. I have, unfortunate!y, passed my clotting problems on to them. It means anticoagulation for life but if it keeps you alive that is a small price to pay. You might like to look at the Hughes' website for APS or go to the APS forum on HU. Annel.