Anticoagulation UK, in partnership with Adelphi Research UK, is carrying out a piece of research to capture the views and opinions of patients with atrial fibrillation (an abnormal heart rhythm).
Why are we doing this?
This research will be used to understand the information currently provided to patients when they are diagnosed with atrial fibrillation to see if patients are receiving the most up to date information and if any changes are needed.
To reassure you the research will be conducted in line with all applicable legislation and guidelines which include the:
•Market Research Society (MRS) Guidelines
•British Healthcare Business Intelligence Association (BHBIA) Legal & Ethical Guidelines
•Association of the British Pharmaceutical Industry (ABPI) Code of Practice and Data Protection Legislation.
What’s involved? As part of this, Anticoagulation UK is looking for patients who have been diagnosed with atrial fibrillation in the past 18 months.
The research will take the form of a short online survey of no more than 6 minutes that can be completed on either your phone or a laptop.
Great that someone is looking into AF and anticoagulation. As an ex Clinical Nurse Specialist in Anticooagulation my concern with the new anticoagulants was that because they required no routine monitoring, people, especially the elderly, would just ride off into the sunset on their anticogulants and never be followed up specifically regarding their anticoag' My 85 year old father was diagnosed with AF when he went into hospital following a fractured hip last year. He was started on Apixaban , the higher dose based on his weight and kidney function. As an 85 year old, his kidnesy function could change over time and a dose adjustment would be needed. He wasn't given ANY written information regarding what to look out for with anticoagulation and as he has a dosette box he didn't even have the information sheet out of the box the medication comes in. When I called the ward and asked they said they never give patients any written information when they start apixaban. This is completely in contrast to patients starting warfarin who always have a yellow book and also doesn't meet the advice from the drug company and NICE guidelines. They reluctantly agreed to send the information in the post. He didn't have any follow up at the hospital either by the orthopaedic or elderly care consultant .
He does wear a bracelet which says he takes apixaban and is anticoagulated which he wears all the time. Of course the thing with apixaban is that , unlike warfarin and dabigatran, there isn't an antidote.
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