4weeks ago I was rushed into hospital with acute breathing difficulty.
After a ct scan it was found that I had numerous clots on my lungs. I was discharged and put on rivaroxaban 30mg per day. Reduced to 20mg as of now.
Today 09/11/2016. I went for a ct scan and when I questioned as to what was the purpose of this the radiologist replied that the clots on my lung where caused by a malignant episode somewhere in my body. I am now living in fear of the big C and await my results. Surely if I have cancer this could have done more sympathetically
Sorry but I'm crapping myself and awaiting results.
Written by
Stuart1100
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I completely get how you feel I'm having to go for a mammogram tomorrow & im awaiting ct scans & blood tests the same as you , I had a pe 9 weeks ago, I think they have to try & rule everything out as to why you have the clots,
Please try not to worry to much , I know it's easier said than done,
I'm so greatful to hear from yourself my darling wife is trying to give me reassurance however it is fabulous that I have found this website which allows me to talk to people who confirm her beliefs
I have found lots of streanth from wonderful people on here, my husband has been great but it's also good to see people who have got through this, this has happened to me twice now last time I'd just had a baby so this time unprovoked , I'm wishing you well, happy to keep in touch
I don't know how I came across this website I was frantic to find out how life had dealt me this blow at age 65 I have lead a very healthy life so this news has left me shattered this is what can only be described as fate all I know is today I was dealt a life shattering blow however at the same time I have found genuine people who care and if the worst comes to the worst I can give back the hope that you have given me today .
I'm a true believer in fate 😊 and it sounds to me that you have a great wife behind you so what ever life throws at you , you will deal with it together , I'm really trying as I said I've had terrible anxiety & people on here have helped more than they will ever know ! Let's stay strong until we know the facts & deal with it then ? Thank you I'm dreading today but best to check , you take care
Dear Emma I don't know how this site works an d hope you get this message wishing you the best mate as you were here for me I will always be here for you keep in touch thinking of you.
This my experience, I had a UNPROVOKED blood clot (PE) on my lungs and underwent lots of tests to find out the reason why, including a full abdomen CT scan. I was told that one of the POSSIBLE causes of a PE can be cancer. The CT scan you had was to rule this out. There are other causes for a PE like , Dehydration, DVT’s, Pneumonia ( that’s what they put my down to) ETC. I am not a medical person only somebody who has experienced the same. You will have to wait and see the Doctor who care's for you to find out the results of the CT scan which might prove all OK. I think the person in the CT room didn’t explain things very well.
As you can well appreciate bless you your words have given me hope I'm still frightened however it's good to know that I've got someone to talk to via this website who can empathise and sympathise my fears at this time and at the same time not taking away the support my darling wife is giving me bless her.
Hi Stuart, I know how you and your wife must be feeling and it’s a pleasure to be here in your time of need, as we have all been there. The advice of my Doctor was to talk and share your fears which this site gives the opportunity too. I had my PE last year at 58, it was a life shattering blow and has changed my outlook forever. Take care and be strong. Richard
Hi, I had the same thing, getting rushed into hospital with blood clots on my lungs but as it turned out I had Antiphospholipid syndrome....a type of blood thickening disease so I wouldn't worry yourself to much probably something that can be treated with a pill or two?....Good luck any how.
Vespa I hope you are my life saviour having looked on the net and reflecting on my health over te last 2 years it makes sense a lot to do but I'm convinced you are right. Would it be alright to keep in touch with you.
If you have APS the clots were more than likley cause by your clot loving blood. The Radiologist may not understand APS, as many have no clue. I usually have to educate people in the medical feild about it. You can tell if they are clueless buy telling them you jave APS when I say that and see the expression on their face I can tell weather they have a clue or not. If not I tell them what it is. Try not to worry, as I said the radiologist probably just does not understand APS so he is looking for a reason for you to have clotted. Do the tests because, u never know but try not to worry about anything until it has been seen and diagnosed. Then you can worry. What to do while waiting? Assume it to be the most likley cause, your APS, until someone diagnoses something else.
Nice one Im so glad I found you lot you've certainly eased my mind.
Well I hope you are feeling a little better now and not worrying too much it's very scary when they say things and remember he was not a doctor and would not be able to say for sure what started your clots the real Doctor will be able to tell what is what or at least be able to do something for you so please don't worry to much I just hope your news is good take care
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Check to see if clots have cleared
Your opinions, am I being paranoid?
Feeling scared and confused
Xarelto and HMB
Hello, I am new to this site I unfortunately had a PE in feb 2013 it was a very scary time as I'm sure you are all aware.
